Hi Ladies
Firstly sorry - I feel like I’m on here asking for support but don’t feel like I’m giving my fair share of support back.
Quick update - BC stage 3 with spread to cervical lymph nodes in neck (not supraclavical I understand)all diagnosed at initial Dx in March.
4 months of chemo but stopped as not worked.
Referred for rads 3 weeks ago (hospital lost papers blah blah blah) still not got appt - told to ring at back end of week.
I’m having a major stress as the lumps in my neck are getting bigger/thicker and give a constant nagging ache/pain. (take pain killers daily).
Questions - assuming I finally get a rads appt, how soon after the first meeting do the rads start. I’m terrified I’ll have another long delay and the lumps in my neck will just get bigger and bigger
Has anyone got BC in their cervical lymph nodes? Any advice/comments.Don’t know if I’m just being silly but others seem to have their own little talking groups eg bone mets, lung mets.
My rads are being done at a different hospital so I don’t think my Onc has any control over appt delays.
I’m rambling, but I think my poor OH has done as much hugging as he can. Any words of advice. Sorry but I haven’t felt this low since all this began
Linda
xxx
Hi Linda, I am so sorry that your going through all of this, I can’t help much but what I would say is phone your Breast Care Nurse and have a good moan, cry or whatever and if she’s anything like mine is, she’ll get it sorted out for you in no time.
Big ((((Hugs)))) from me also.
Linda, it’s awful that you’re having to wait so long.
Could you find out the name of the onc you’ll be under at the other hospital and ring his secretary? I think that if you keep quiet and suffer in silence, you tend to be forgotten. If they don’t know you’re in pain, then they can’t hurry you through the system. I have always found that direct phonecalls to the right people makes a world of difference. Maybe speak to your onc’s secretary and find out the name of the doctor whose care you’ll be under, then chase from there?
I understand how worrying it must be. Sending you a hug. xxx Jane
Thanks Jane and Saphy,
Sorry for not coming back on earlier- a day of tears.
Anyhow, I’ve rung the hospital and apparently the doc I was going to see has gone on leave - as a result of this her referrals are being spread amongst other consultants. I have got the name of the secretary to the senior consultant but have been told once again to phone Wednesday.I’ve also booked an appt with my Onc - guess what - thats for Wednesday as well.
So one more day to wait and then they’ll all really know how I’m feeling.
Your hugs have reached me and have been much appreciated.
I’m sorry I don’t know your stories but I hope you’re both doing well.
Linda
x
Hi Linda,
Hugs from me too. I hope they get their a***s in gear and sort this out for you. I had to wait 5 weeks last summer for my lymph. mets to get rads after finishing chemo., due to complicated planning done by onc. as the fields were overlapping or something with the previous rads. He was also on holiday during that time. If you’ve not had your neck done before, I would have thought it would be way more straightforward. I hope you get some answers on Weds.
Love, Sarah x
Hi sarah
How are you?
Thanks for your reply. I think I’ve moved back into the world of frustration and panic. Whilst on chemo, I knew something was being done but then when nothing happens I think the worst.
If you waited 5 weeks I’m sure I can cope - all the same I’m seeing my onc tomorrow night - i think I’m just going to offload on him (so I hope he’s ready for it - up to now he’s seen a very controlled and rational woman - tomorrow will be another story!)
I hope you’re keeping well
Linda
x