Withasmile xx
That is so generous of youxx thank you. I had been meaning to say, just how comforting it has been to get to know you a bit and to have you as a. Chemo buddy xxx
Am on the mobile so missed your comment to me-just replied to your reply to Helena, yes am in total agreement re s/e. Took 10 Ng’s of amitryptiline last night and slept from 12-9… golly that was quite good now I think of it!
My GP said it would help and it has! Any chance of your asking yours? Not sure about steroids for sleep… they will increase your appetite for you tho xx
moijanxx
Should read10 mgms of amitryptiline! Actually it is really an antidepressant… but they use it in piddly doses for sleep probs. moijanxx
So… now have revised my opinion of amitryptiline xxx I think I had taken half a tablet before but last night braved it and took a whole one x
Hi Marnster, great to hear from you. Lucky lady being in Oz
i wont say sorry about the heatwave! ? But im sorry its making you tired. I was interested to hear youd changed states and now dont know anyone…very brave, but have you any family nearby perhaps?.
wouldnt it be amazing if your scan shows a dramatic improvement! Then you might feel in a quandry?
anyway, very best of luck with your new trial snd pease keep in touch with us…xx
love,
moijan ???
One of the listed side effcts is urine infections…not sue how that could be tho, yes had a few before, but many more since I started erib.
Moijanxx
Hello Kay!
the very more…the very merrier.yes you are exactly in the right place.?
very best of luck with Eribuln…and with your pik line too.
we are a jolly lot on here…keep us up to date about how things go xx
withasmile does her bit to keep me smilingxxx
Moijanxx???
???
i often think its such a shame we cant all get together for some fun during our treatment sessions…wonder, if in the future somewhere,… will be able to book yr seat like going on a bus journey. ? Or a dental appt.
stranger things have happened.
M?
Yes…day 8 today. Sorry about the mouth ulcers, I found sodium bicarbonate mouth washes after every bit Of food useful xx
Golly what a lot of appts! I thought I was busy… you must get very tired. Yes will pm you
Moijanx
Hi Moijan, withasmile & Kay & anyone else on Eribulin
I am finally starting this on Thursday so have been reading about your experience with interest. I really hope that it will be ok. Have had a bad week with 2 ladies with SBC I know passed away and a close friend being diagnosed with SBC bones and lung mets. I’m finding it overwhelming at the moment x
Helen. of course you are finding things difficult… I have friends with cancer who are not doing Very well.
I guess the way forward is to try and detach from how others are doing… when we feel like that … and concentrate on our own treatment plan… mentally, I suppose I grasped mine and clung on for dear life… willing it to be successful and … then, once the’ train had set off on its journey’, I sat back in my seat and tried to read a book to take my mind off it until we reached ‘Scan Station’. That’s all we can do really… not sure if that metaphorical story helps… but that’s exactly how it was at the beginning.
Get in a small bag of goodies, sore mouth gels, sodium bicarbonate for rinses , antisickness tabs, just ‘in case’ lots of little nibbles/foods you enjoy so you can snack smaller. Amounts more often… my appetite goes down. I am in week 3 and find I’m worrying about loads of other stuff… nothing to do with cancer… my confidence in hobbies is low… keep thinking ‘I cant’ but it IS week 3 so am reflecting upon that and trying to think differently. It’s all in the mind… but of course you know that Helen
Best of luck for Thursday I have my MRI then too.
Moijanxx??
Kay, ( and Helen)
sorry I addressed that last post to You by mistake, I do hope you are doing okay thus far.
I saw that you are having treatment to orrow…very best of luckxx
reflecting upon my longer last post to Helen, I think tiredness is perhaps a factor. Have been taking sleeping tabs as I find I just dont get off to sleep…and do watch out fo r the rest week…I did get caught out again this week merely contributing to a (hobby)committee email which asked for ideas, then the sender( a highly strung guy) clobbered me for one id offered in good faith and actually, I did think…
'week three…how can I respond to this? ’
but still got caught out and an attempt was made to lumber me with a load of work…1/ im not skilled enough to take on …2/ I dont want to do it. So with my partners help, I have reflected it back to the person…
but of course all this is stressful.
Very best of luck with your treatment plans both of you. This is a good little drug, so travel hopefully.
Moijanxx
Withasmile…think the drug you refer to could be pertuzamab ( pergeta)
yes keep us updated xxx
Mx
Yes Kay and Withasmile, I agree with withasmile re the food. The nurses say it’s better to eat as it helps the veins.
I also drink buckets and keep a full bladder till the cannula is safely in.seems to helpxx
Very best of luck
moijanxx
Hope you feel better now, Helenxx
Pussy
If you are getting jaw pain you need to get checked by a doctor…ASAP. as could be something that needs investigation.
Yes the fish and. CHips can cause reflux as will tomatoes and other things depending upon who you are.
But… do get your jaw pain checked as it could be innocent, but two other possibly more serious options need to be ruled out.
Drink at least 2 litres of water Daily between chemo’s as Eribulin causes constip.
Water is the key to washing the chemo out of your body preventing Dehydration and keeping the large bowel happy too…Moijanx
Pussy, if you think you are getting reflux then drink loads of milk … jaw pain, back pain and chest pain can be heart and you may be right as to the cause, but loads of heart attacks in women get missed because the symptoms are milder than in men. Your GP would likely( should) get you an ecg done if you see him about it… best wishes
moijanxx
Tomorrow Withasmile…xx
Oh, thank you Withasmile xx I have always appreciated your name… and I was always taught that you’d find it hard to be depressed at the same time as smiling… apparently it’s a definite… so when I feel a bit down, I paste the widest, cheesiest grin on my chops! It usually worksxx