Hi Shirley
My Eribulin was reduced by 20% when I began on it… due to high lft’s. However it has been miraculous for me, as my liver mets were non discernable at my last scan and my Tumor markers have hit the floor.
Hopefully this drug will work for youxx
Moijanxx
Hi all just had cycle one of eribulin. Mostly feel absolutely shattered , I could sleep for England. Appetite varies trying to eat properly but just not keen on full meals tend to be eating omelettes! mostly and cheese on toast. Hair is gaining in strands are falling out but no one else would notice, wait and see what happens. Start cycle 2 on Thursday. Would just like more energy to start getting out and about more .
Hope weather is kind to you all this weekend xx
Shirley
Have you asked for filgrastim?stops the bloods from dropping
moijan
Hi everyone,
I hope that you all have a peaceful Easter.
Warmest regards
Shirley.
Evening everyone,
I am back to the unit on Monday to give blood, if it is OK then I am getting another cycle of Eribulin. It would appear that my blood is still low, yet I haven’t had chemo in three weeks.
Good luck to anyone having treatment this week coming.
Warmest regards
Shirley
Hi Shirley,
Have they been measuring Tumor markers ? Mine began to fall after my first cycle, so maybe Eribulin will do its magic for you. When chemo reduces white cells - its usually having a negative effect on the cancer cells… but of course this all takes time. Xx very best wishes for a great response xx
Moijan???
Hi everyone hope you all enjoyed the warm weather at the weekend I did it was lovely but back to winter now.at hospital tomorrow to see consultant for my next lot of Cape I found I have indigestion at night if I eat anything in the evening, also my hair has started to thin a bit so might have to go back to wearing my wig for a while.consultant will be starting me on vinorelbine as well as cape so bit worried as to how they will react together. My cough and my breathlessness has got slightly worse hence the vinorelbine so worried and bit scared of what’s to come…
Just had an extra weeks break from eribulin, had lost a lot of weight watchers not eating or functioning. Had low lose of dexamethasone which seems to have helped. Onc said he will reduce dose . See him tomorrow and all being well back on chemo Friday . Hope everyone is managing the eribulin. My hair has thinned a lot around the fringe so I suppose more chemo and it will start coming out again. I did try the cold cap but gave up! Xxxxxx
Hi ladies
I’m Claire and I have joined the Eribulin gang. I’ve just had my 2nd cycle!
I’m 3 years down the line since secondary diagnosis. Eribulin was my next option after kadcyla stopped working for me after nearly 2 years.
Feeling pretty shattered with it which oncologist says is just the culmination of my body taking 5 years of chemo in total!
My biggest stress today (and I know you’ll understand) is now my hair is falling out!
Any advice… it’s falling out fast… will it all go? Xxxxx
Love to you all xxxx
Eribulin was a walk in the park for me, 50% hair lose but grew back quite quickly, if i rested the day after treatment i was fine the rest of the time. Gutted to say it didn’t work for me, massive progression on it after 5 months, back to taxol. Good luck everyone on it, wished it had worked for me!
Hi Ladies,
have now been on this drug for 10 months…it has been a bit of a miracle drug for me…and im grateful as it killed the bc in my liver and that site has not regrown…however, I understand there are a few very tiny
new growths in my liver that can now be seen on an MRI.
Currently im still on this drug, but am due for a plethora of scans after 6 weeks…and then…not sure just yet what the plan is.
New ladies, take heart. This is a kind chemo, a very short time on the needle…I have had very few side effects at all, though, week 3 I am always very m_oody and latterly a little depressed. _
HAIR.
I tried the cold cap but it lengthened the treatment time from 20 minutes, to nearly two hours, so gave that up…
lost lots of it, and its now regrowing…get yourself a wig or other asap, unless the tufty look suits you!
NUTRAPENIA
This drug does affect white and red cells, So I requested filfgrastim at the outset and have not had problems…I actually think it has helped me remain well and less tired.
URINE INFECTIONS
have had so many of these, ive lost count! They are listed as a side effect and so drink loads, wipe from front to back and pee after any other activity down there!..dont get constipated as the overcrowding down there causes stasis in the urine drainage and can allow bugs to grow, which wouldnt normally if pee is flushing regularly…drink bucket loads of water…especially after chemo for a few days. I often drink out of glass measuring jugs to see how much ive had.
SORE MOUTH
only had this during my first cycle, but I mouthwashed with sodium bicarb…which sorted it.
i had no diarrhoea, no sickness, my nails keep splitting tho…so
NAIL SPLITTING
I add a coat of clear nail polish to fingers and toes as neccessary…
the instructions say. “Avoid alcohol” I sometimes have broken that rule, but never went overboard.
LASTLY
this is purely my own opinion, but this drug is the third one that has been very useful in controlling my bc…
each of the three has failled pretty quickly after I had a break…this time, I only took _ one _ week off and bingo, the mri showed new growth…I personally think its not a coincidence…obviously you must make your own choices, but believe me…next time I find a wonder drug…I wont risk a break…it happened after two weeks off during Cape and after I stopped Letrozole, following 6 successful years on that…
the other thing I did recently was have much more sugar than I should have and so, im going to address that too…after the horse has bolted…but no matter.
I really wish you all the very best results on this drug, love and hugs
Moijanxx
Hi all,
My eating is terrible. I hardly eat anything but what I do eat is usually sweet. I went through a time when all I would eat was muller rice pots, but my taste buds changed and they didn’t taste the same, but now I am eating bread and butter pudding with custard. I don’t fancy any meat, I use to love fruit and veg but it doesn’t taste of much so I don’t bother. Bad I know, but it is keeping me going.
Hugs to all
Shirley x
Hi again
Does anyone get a painful jaw after having Eribulin? After each time treatment I have had really bad pain in my jaw. The pain killers work and it is only the first day after treatment. Just wondered if anyone has had the same thing.
Hugs
Shirley xx
Actually, I do seem to recall someone on Eribulin getting a painful jaw… have a rummage through the other Eribulin threads
I get sensitive teeth, but dentist thinks I grind them in my sleep
Hi ladies, hope things are going well with you allxx
by the way, i dont quite look like this, not just yetxx
Hi Lizzie5, Welcome,
Have been on Eribulin for about 16 cycles…it has had a big impact but now there are queries about wether its beginning to fail.
Have had so many uti’s, have lost count. I am now resisting Cipro because it can cause tendon damage…tendons can suddenly snap without any warning even years afterwards, there is a black box warning about this drug in the USA …and a few court cases - the drug actually changes the cells which the tendon is made of.see link below.
Posted a summary re my experience on Eribulin a week ago, but this is the gist of it.:
have now been on this drug for 10 months…it has been a bit of a miracle drug for me…and im grateful as it killed the bc in my liver and that site has not regrown…however, I understand there are a few very tiny
new growths in my liver that can now be seen on an MRI.
Currently im still on this drug, but am due for a plethora of scans after 6 weeks…and then…not sure just yet what the plan is.
New ladies, take heart. This is a kind chemo, a very short time on the needle…I have had very few side effects at all, though, week 3 I am always very moody and latterly a little depressed.
HAIR.
I tried the cold cap but it lengthened the treatment time from 20 minutes, to nearly two hours, so gave that up…
lost lots of it, and its now regrowing…get yourself a wig or other asap, unless the tufty look suits you!
NUTRAPENIA
This drug does affect white and red cells, So I requested filfgrastim at the outset and have not had problems…I actually think it has helped me remain well and less tired.
URINE INFECTIONS
have had so many of these, ive lost count! They are listed as a side effect and so drink loads, wipe from front to back and pee after any other activity down there!..dont get constipated as the overcrowding down there causes stasis in the urine drainage and can allow bugs to grow, which wouldnt normally if pee is flushing regularly…drink bucket loads of water…especially after chemo for a few days. I often drink out of glass measuring jugs to see how much ive had.
SORE MOUTH
only had this during my first cycle, but I mouthwashed with sodium bicarb…which sorted it.
i had no diarrhoea, no sickness, my nails keep splitting tho…so
NAIL SPLITTING
I add a coat of clear nail polish to fingers and toes as neccessary…
the instructions say. “Avoid alcohol” I sometimes have broken that rule, but never went overboard.
LASTLY
this is purely my own opinion, but this drug is the third one that has been very useful in controlling my bc…
each of the three has failled pretty quickly after I had a break…this time, I only took oneweek off and bingo, the mri showed new growth…I personally think its not a coincidence…obviously you must make your own choices, but believe me…next time I find a wonder drug…I wont risk a break…it happened after two weeks off during Cape and after I stopped Letrozole, following 6 successful years on that…
the other thing I did recently was have much more sugar than I should have and so, im going to address that too…after the horse has bolted…but no matter.
I really wish you all the very best results on this drug, love and hugs
Moijanxxx???
medlineplus.gov/druginfo/meds/a688016.html
[Ciprofloxa_cin may cause swelling or tearing of a tendon, especially if you are over 60, if you take steroid medication, or if you have had a kidney, heart, or lung transplant.
You may not be able to use ciprofloxacin if you have a muscle disorder. Tell your doctor if you have a history of myasthenia gravis.
You should not use this medication if you are also taking tizanidine.
Stop taking this medicine and call your doctor at once if you have sudden pain, swelling, bruising, tenderness, stiffness, or movement problems in any of your joints. Rest the joint until you receive medical care or instructions.]_
Thank you Bon xx
How are you ?
Mx?
Hello ladies! Oh Dear! Its the 20th May already! Wasnt expecting it this earlyxx
" Has this thread gone Dead"?
or are they in Bed!
this is the weekender -
so time for a Bender!
so how are the ‘bobs’
all feeling like blobs?
or - if in the garden?
I do beg your pardon!
So lets shake a leg, ??
and put on our shoes ?,
theres some of us here, ???
lets all share our news 
???
Xxx
Carolyn! I realise this will be as big a big shock to you as it is to me…but rumour has it, a very large airbus marked ‘Spongebobbers Explorers - Off on World Tour’ was seen getting airbourne at Gatwick Airport…
late last night!
so I guess Withasmile, Kay, Marnster, Lizzie5, Atters,Helen, Nicky and Uncle Tom Cobley, have all vamoosed with their overnight bags and beach balls!
aah, Such is life,
Moijan???