good grief Joanne I just can’t believe someone would be that inappropriate what is the matter with the woman!! barking mad. re the hosp visit take the girls advice and complain you deserve to have the time spent to explain procedures to you and if you’re not happy make sure you let someone know!
hang on in there Angie and count the days off you know you will start to feel better eventually
kirsty hope the weather improves and you have a good break away for a while
good luck Julia for tuesday ! will be thinking of you
what a star nicky don’t forget to let us know when it will be on and well done for looking as glam as poss
Lily hope you are feeling better it all sounds so horrible and unfair
kirsty take care what a terrible experience you have been through
thankfully my infection is appearing to respond to the medication as I am feeling more normal and have been able to go out and visit friends today which was good as both of them have been through chemo in the past (there is a lot of it about) and they both look great now (so there is hope for me yet as I didn’t look great prior to chemo so maybe it will transform me!) on a bright note my lovely son came home from his hols with is girlfriend and I was bit anxious at how he would react to a bald mum aghh but bless him he said I look cute with a bald head ( he must love is mum very much or have very bad eyesight probably a bit of both)
anyway girlies thinking of you all and here’s hoping for a peaceful weekend for all of us.
My plan for this year was to have a go at proper veg growing, you know the whole good life thing. Then I was diagnosed and that went to pot but OH did build me some raisde beds and I did scatter seed etc and had a go with this organic potato growing kit. £7 and came with 3 bags to fill with compost and 3 different types of seed potato.
Well seeing as it finally stopped raining for a moment I decided to go see what my courgettes are doing and the potatoes.
Well the courgettes are huge. more like marrows (but not as bland) and I just picked my first maris piper potatoes… you can smell the goodness in the kitchen. Sorry lily a few more snails went flying over the wall but I’m letting them live now even though I know they do actually home in on where they came from and return.
my first home grown potatoes. So I’m now bald, fat, muddy and happy.
They didn’t even sucumb to potato blight… I’m so proud… sob.
hi everyone
good to see everyones battling on. wow this thread is getting huge it takes me ages to read all the threads ive forgotten it by the time i get to the end. so sorry i can only keep up with a few of them.
lily 2000
hope you feeling a little better its so tough at times. if your a snail you can just curl up and hide in your shell. (sounds great to me!) i just got back from fishing trip with the men in my life. ( husband and son that is) . it was so peaceful, a log cabin by the lake. plenty of time to read and knit and just be plain lazy, how is mother in law? hope your treatment gets easier, i will be praying for that. take care. x
nicky 08
well hows number 5 gone? i think its been the easiest one of all of mine. hope you find the same. i actually feel as though ive had a break because i was up and about straight away., the only thing i have found with this one is period didnt arrive. so maybe i am now menapausal agggggggggghhhhhhh!
we went to gloucester while i was away, there is a great wig shop there, didnt buy one though, just brought some wig shampoo, which was £6, i hope it works, my wig seems to need reviving a bit (just like me) i did ask if there where any eyebrows available (he said hed never been asked). but i find eyebrow pencil so false on me, yet on others it dont seem to bad. somebody as said there available online so i will look one day.
i just had a funny thought maybe we could draw them on in the shape of a smile, we would make people laugh if nothing else. ( just a mad thought)
hope you recover ;quickly from this dose.
take care
hope everyone else is coping well, and as renewed strength each day, to enjoy their day
Hi,
hope you all had a nice day and enjoyed the sun. We have not managed to sort out a break so hubby has decided we are having a holiday from home? Basically this means we go somewhere every day, eat out, and eat as much as we possibly can. Today we went to Hatfield Forest along with 5 of the family. The girls and I just wanted to lie on a rug and soak up the sun and left all the males to explore, kick footballs, play tennis and eat.My little Grandson jumped in the biggest wettest cow pat with open toe sandals so glad people on chemo cannot clean things like that up. It was green yuk! We bought some lunch but were terrorised by wasps. I go mad and flap and run as soon as I see one. I hate the way they home in on you and then chase you. On Thursday I had one chase me all round the hospital. I managed to bat it at the receptionists. Ha ha for taking so long to see patients, too busy nattering! Two of them were allergic to wasps and were even more hysterical than me. It shot into a little photocopying room and was dive bombing the person in there. I nearly choked laughing, as it had been seriously chasing me beforehand!
Joanne we are now on the same week and Julia we are on the same day. Once more we venture into new territory and lets hope it is a greener field because I am not up to a toughy. I know cyclophosphamide is the big sicky drug so make sure you have anti sickness drugs to bring home. The methotrexate makes you prone to thrush but is a small dose and yellow. I have to start taking a supplement with that one, so ask if you are not given it. The 5FU is the chemo brain drug, no change there then! I am wobbly about it and even wobblier about going in for a second. I may have to get really drunk to go back the second time! Fab news about your boys Joanne and a new baby on the way Joanne. Something really nice to keep you chugging along.Have you any news about yourself yet? I am open mouthed about the film, what a pr.t! Nicky I will be so excited to watch that programme and see you on it. I recorded the early am Olmpics according to the guide and was annoyed to find no diving. We saw it at about 4.30 this afternoon on the red button choices. Rebecca did not get to the final as had a dodgy dive but it was great watching someone we knew. She is apparently the only woman in th UK who can do one of the dives, we were impressed with that. Kirsty congratulations on those exam results and good luck for Thursday too. My son gets his GCSE results on Thursday, expecting a wide range! Hope you can really enjoy the time off treatment. Angie I was disappointed not to hear about your bakery lunch! Hope you are getting back to normal now and will you be trying to go self sufficient with your veg? Well done. Bevy well done for fighting the virus off again and hope you keep well. My son is like that about how I look too, makes you feel really good doesn’t it. Bless him. Lorraine thank you for your kind wishes and I will imagine curling up in my shell on Tuesday in the chemo unit, nice thing to visualise. The cabin sounded perfection, has it boosted your batteries? MIL has been stable but the nurse shocked us today by mentioning could be in the next few days. I think when people hang on for longer than expected you start to get a false sense of security. I hate to hear her constantly asking to go. We asked about the hospice and were told if she went in it would only be respite care and they would send her back out again!! That is not what I thought they did and the journey both ways would be awful for her. Just hoping she gets her wish in her sleep one night. She deseves that much. Will keep you posted how it goes.
Take care everyone. Lisa hope you are not so bad this time and nearly at the chemo finish flag, along with Nicky!!
Lily x
As Lorraine says, this thread is getting longer and longer and sometimes I forget ladies on here - but don’t mean, however it is nice to be able to chat and share support with so many of us.
Lorraine - touch wood, No 5 has been easier. I did ask for an extra anti sickness as last time I felt more nauseous and needed something extra to fit in between my ‘regular’ tabs - haven’t needed it much though. Haven’t needed stick-ons yet, pencilling in eyebrows is still working and with any luck enough will hold on till the end. Liked the idea of happy eyebrows though Glad you had a relaxing break, how lovely and I bet it was nice and quiet - just what we all need with our delicate natures as we go on and on with chemo. Take care and hope next one is no harder - is it next week?
Angie - or should we call you Barbara (and Tom - got one half already!) Well done on the pots and courgettes, how lovely to have something so fresh to eat and nutured by you own fair hands. This year I’ve only managed tomatoes which have been very slow so I guess they’ll be chutney before they know it, spring onions in a big pot - very easy, rhubarb as we love it but can’t pick it this year as it has to establish and horseradish which we’re looking forward to with some lovely roast beef when I can start having rare meat again! The last 2 things are at the bottom of the garden and just seem to get on with things except when OH ‘trims’ them with the lawnmower!
Lily - how do you always come up with the funny stories? Loved the wasp one and nice that you avoided the cleaning off of the cowpat. What is it with young children and poo? Glad you’re getting a break even if it’s based at home. When OH and I went away it was only for 1 night but I made sure I wasn’t cooking for a few days either side so got more of a break. We ate out a couple of evenings (handy 2-4-1 vouchers helped with costs) and bought a couple of meals to bung in the oven on the other nights which made it seem like a longer break.
I didn’t know the ‘C’ was the sicky drug but did know about 5FU. Don’t worry brain still in gear and I spend my free time doing puzzles etc to counteract the effect - well that’s my excuse! Hope all goes well for Tues, not nice going into the unknown again though is it?
Hop MIL gets her wishes as you say, we are still thinking of her even if we forget to mention her. Hope the end is very peaceful for her.
To all I’ve not mentioned hope you are doing well either post chemo or having one of the ‘good’ weeks. Have a good weekend, hope we win loads of golds at the Olympics, not doing too bad at the moment are we?
Take care all
Nicky (taking time out of her busy publicity schedule to share some quality time with you all) xx
lily 2000
you made me chuckle, i am just like that with bees, and wasps. so stupid aint it, how would a wasp sting compare to the treatment were going through, So sorry you feeling anxious at moment about treatment (try not too think too far ahead ) enjoy today, as they say., and holidaying at home sounds a great idea, trouble is im on one long holiday while im at home. ( im so lazy) break away really did charge my batteries.
Hope your mother in Law doesnt suffer anymore than she has to, its so difficult for you. and hubby,
Like you said its great we dont have to clean up sh… while were on chemo ( one of the few good points) grandchildren really pick you up dont you find? how old are yours?
Nicky 08
i have the last of my six on thursday, ive been really lucky after this last one, but just hope its working, you wonder when you have it so easy,. im really not looking forward to thurs, but will just put it out of my head till then. are your periods still arriving, mine did until this cycle. just off to visit my sister, she has recently been diagnosed with bowel cancer, her op is on the 26th. ( at least weve done all that ) take care enjoy the weekend. i too am looking forward to seeing you on television.
let us know when.
best wishes to you all for a good day, and an even better tommorow.
lorraine
My periods stopped after No 1 and I’m really hoping they don’t come back. I’m very Er and PR + so don’t need any extra hormones around plus my hormone therapy is going to be Femara which I need to be post menopausal for. I’m sure once my periods returned after my initial dx and 2 yrs on Zoladex did all the harm - way too many hormones! I’m going to have a blood test done (well let’s say insist on one being done) to see if I’m post once chemo is done. I don’t think I am as I’m not experiencing any of the menopausal symptons I had when on Zoladex. I only have the occasional hot flush which is nothing compared to then. If I’m not post meno then it’s back to Zoladex or out with the ovaries - which is what I wanted 1st time round but professionals’ opinions thought otherwise - strange as it’s offered in other Health Authorities without a bat of an eye lid so to speak. Bet you can’t wait till Thurs to get this lot over with but do you start more chemo after? Hope it’s not too bad if you are. Also if you’re worried about if it’s working I had very good results half way through so really hope it’s doing the same for you as we’re in a similar position.
Hope your sister’s op goes well and gets rid of all the nasty stuff, I expect she’ll have to wait to see if she needs follow on treatment, not sure myself about bowel cancer but hope it’s not too drastic and she caught it early.
Have a good weekend, I’m aiming to do nothing and play up the post chemo bit for all it’s worth and follow the Olympics - there’s enough energy out there to make up for what we’re not doing
Hi MOVIE STAR and mere mortals,
hoping you are all well or improving and good luck to all of you going in this week with me for a quick poisoning! I am not looking forward to it all but will settle for thinking another one is done and I will be interested to see what my neuts thought of a week off to climb up to new heights. Do you think the level of your neuts make a difference to how you feel? I am not convinced they do but have not been to the low figures some folk get regularly. My friend who goes in the unit at the same time has her last one this Tues and I am really pleased for her but GRrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!! She has also had her rads cancelled so that is her done and I am glad for her but double Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!! I must keep focused on that will be me one day, but still Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!! I might have to go and buy a lot of clothes to cheer myself up. Glad no 5 was a bit better Nicky and hope I can say the same, at least you gave me some hope, thanks! I am enjoying the Olympics though and X factor is back which amuses me too. I was interested in your talk about hormone therapies, I know I am having it but no idea what yet. They don’t know if I am pre or post menopausal and have not even tested it. Not sure why. Lorraine I was so sorry to hear about your sister and wish her well for the op later this month. That is a lot going on in your family too at the same time. I bet the examinations are much worse than for us, poor thing. I only have one Grandson, who made a surprise entry into the family and is totally spoilt and adored by all, he is 3. How many do you have? Also glad someone else is scared of wasps, I feel such a fool, have convinced the family that wasp stings are very dangerous for people on chemo, so they save me first!! MIL is now totally sedated in bed and not waking at all because she is distressed when she does. She looks very peaceful tucked up in bed fast asleep but getting no food or fluids now.
Hope some of you are enjoying the sun while it lasts. Had to rescue my son from the V festival twice yesterday, once as starving hungry and feet were hurting and this morning because the tent leaked. You should see his blisters as he foolishly went in new flipflops!! Ouch. I did try to warn him, do they ever listen.
Big hug to everyone
Lily x
Lorraine, hope your sisters not too scared prior to her op and that it’s very sucessful. I was a complete and utter scardy cat but did all I could not to let me mum and OH see just how scared. Glad it was no where near as bad as I expected, hope the same is true for your sis.
Lily. Flip flops… he’s mad as for feeling grrr at everyone who’s finishing treatment… that’s those neuts for yours all fired up me reckons. Can I have some LOL Must be hard for you with the MIL, hope the final hours or days are peaceful.
Hope everyone’s getting a bit of sun today (we just a little bit for our walk which was nice, not enough to stop me moping but nice none the less). Hope those of you watching the Olympics are enjoying it too. And of course hope everyones feel OK.
thanks everyone for kind messages of support concerning my sister, its a little difficult for me to be there for her after op, because i would have just had chemo, so i will have to keep in touch by phone. like all of us, she is dreading op, but she will come through like all of us did.
lily
sorry about MIL, i will pray for strength for you all,
it must make dealing with this illness hard for you. i have heard this morning that a friend who was in hospital with me, as passed away friday. and i must admit, i did think about my future, and its not something i normally give much thought to. ( i just focus on today, and enjoy it as much as possible.) but it does bring it home the uncertainty of this illness. but its no use going down that track, why spoil today, with tommorows worries. relax and be happy is my motto.
i have 3 grandchildren, 3,4,5 two boys and a girl. they really cheer you up at times . one of mine was naughty today, i asked him to apologise, he said “Sorry i think!” at least hes honest!
nicky 08
its so strange how these treatments effect us all differently,
Hi,
nice to hear from everyone. I am up late having been in a massive queue to pick him (my son) up from V again!! He rang earlier and said I’m staying the night, so I put my PJs on to watch tv. No sooner had I done that, but he rings to say can you pick me up now! So I went in my PJs and slippers, which was fine until he wasn’t where he said and had volunteered us to drive a friend home, who did not live anywhere near us! So we have been sitting in the car in the rain waiting for him to appear. He had a great time and has been in the dance tent all day. Blisters look really dodgy and very dirty.
How are you Angie, you sounded real fed up on another thread I saw? Are you feeling poorly or is it a bit of a low spot? I have been fed up since number 4 thinking I am only half way and have to do all of that again!! Lorraine, so sorry to hear about your friend and that you will not be able to visit your sister. I have just got a bad feeling that things are going to happen here too in the middle of this new treatment and I am going to be useless on the sofa. Still there is nothing I can do so will just keep chugging through.
I am really disappointed as BCN told me that you keep your hair with CMF but just reread the leaflet and it says it thins your hair. Well in my current state anything thinner will be no hair. It is strange that I have not had any sensation of hurting or burning on my scalp, despite losing so much. It just keeps breaking off and drifting past on its own. So it is goodbye to the cold cap and I will see what happens.
Good luck for this week
Lily x
Oh lily youve got so much to deal with and my heart goes out to you makes all my little niggles seem meaningless, Your an inspiratation to many on here.
as you know i shaved all my hair off after first epi. But it came back almost immediately as stubble and has remained through the 4 although snow white and about 1cm long looks very strange. but now its coming in as normal hair I wondering if I didnt shve it would I have kept some god only knows. Well iam off shoppoing as I have decided to give my room a 60 min makeover thanks to my OH giving me money for it. I guess if iam gonna spend this much time in it may as well have it nice.
Hope evryone had a good weekend and my thoughts are always with you.
Lily - Sorry about your MIL. With being sedated she won’t be so stressed. My thoughts and preys are with you and your family. xx
Lorraine - Best wishes to your sister, for her operation on the 26th. Good luck to you on Thursday also xx
My weekend was alot better than last!! Went out shopping saturday and brought a new coat and walking shoes, for the upcoming camping trip. Also took OH parents out for lunch yesterday. It feels soooooooooo good to be able to get out and feel a little normal for a while.
Glad you’re feeling much better Kirsty - a little retail therapy never hurt anyone
Lily - really hope tomorrow doesn’t have any nasty surprises for you. You’ve done so well up to now so can look on this next phase as the home straight - go for it like Usain Bolt! Take it easy, as I’m sure you know, and look after yourself.
Lisa - are you up with your twin tomorrow as well? Can’t remember exact dates now as we’re all over the place. Hope it goes well if you are and side effects aren’t as bad as 1st lot.
Angie - are you due in tomorrow or is it later this week? Chin up, No 5 will be well and truly ticked off and you’ll be nearly done. Mentally I’ve found it much easier this time knowing there’s only 1 to go, also physically it’s not been as bad as No 4. I’m currently on the honey, chicken soup and chemicals to increase my neuts - not really enjoying any of them as it’s a case of ‘have to’ rather than ‘want to’.
Lorraine - take care with your last FEC - hope all goes well and you get a bit of a break between treatments, not sure if you do though.
Wow what a lot of chemo’s this week! Hopefully I’ll be on the up so can dish out some TLC to you all.
To all the other lovelies - Joanne, Bevy and anyone my chemo brain has forgotten take care, have a good week if it’s due and a not so bad week if it’s meant to be.
Hiya All
God, I feel like Ive been away for ages and missed soooo many posts. Well no. 5 effects hit in hard but hey ho, hobbling like old woman and trying to do too much should have learnt by now. Had a very lazy time since wednesday, thank god for X Factor!! Hope everyone as well as can be! Well Dennis has about left but touch wood the hair seems to be coming back and still bum fluff but a bit more than had been, hope it carries on! Bloods were okay this time, apparently
Nicky - glad no.5 went okay, we must be on similar timescale and great news about you becoming a TV star
Angie- good news about the potatoes. Would love to meet up, havent been to Keswick for a while.
Lily - god you seem to have been busy , least you making the most of your extra week. think you are back in tomorrow? hope it goes well and also hope you MIL gets her wish. P.s. How much does X Factor cheer you up twin!
Joanne - congrats on becoming a granny.
Soz to those Ive missed out, bevy, everydaymatters etc. hope you all doing as well as can be
xx
Struggling with brain power so if I miss someone out, im very sorry!
Kirsty - hope you doing okay now. Im on docetaxel now - its not as sicky but really achy joints, currently feel like my teeth are going to explode owta head!
just when you think you are dealing with this emotionally, you suprise yourself. i felt really low emotionally yesterday after hearing about my friend dying friday i found it hard to understand because she said she had been given the all clear, when we both had follow up appointments after op. my husband said maybe she hid it from me, because of upsetting me, and that maybe all along shed known that she only had months. whatever it really made me think,
all those stupid negative thoughts “what if i dont make it” i dont want to die and many others, i was in tears (first time for ages) and my husband was brilliant, he normally cant deal with emotions,
anyway other than being tired today, after a rough night, i put it behind me and got on with today, like we all do.
lily 2000
i know what you mean about reaching what you thought was the end and then knowing youve got to have some more, sometimes you feel you cant go on, but somehow we manage to find the strength, and i know you will.
Nicky
sorry for short message last night, computer went haywire and started typing the wrong letters, didnt want to confuse you. im having next one thurs, dont know whats happening next, because i havnt had appointment for scans yet, and they were going to go on information off them.
i havnt bothered pushing for it, because i thought i will just have to have them after this chemo.(thats what i tell myself, real reason is i am a coward)
it must be great to know your coming to the end, something to celebrate i should say
kirsty
thanks for your kind support. look forward to the camping trip, ive gained a lot of peace from nature, while ive been going through this, i hope you do too.
everyone else, chin up keep smiling
take care of yourselves lorraine
Hi,
Thought I had better do a quick post in case my head is down the toilet for the next day or so. I will investigate the level of limescale if I am unlucky!! This is me trying to prepare myself for the change of drugs after reading 2 pages of side effects!! Not my best plan. I felt a bit manic earlier in the week but now calming down to face whatever it holds, What I can’t get my head round is if your neuts drop from day 7 why do we get another does on day 8 and are the counts likely to be good when they do blood tests on day 7? I guess I can report back on that soon.
Joanne and Carrieanne we will have to compare counts. By the way Carrie, Joanne is superwoman when it comes to high counts and low side effects, so we have no chance of beating her!! Do you eat lots of haggis or some other secret Scottish ingredient? I am impressed OH has given you cash for a lovely room, what colour will you choose? Lisa, you have been gone for ages!! I was worried about you. Yes, X factor was great, really mad me laugh and forget it all for a while. back in the bunker tomorrow for my first CMF, so scared of the unknown. Well done for getting through number 5, are you leaving the bunker soon? Those Dennis will be back before you know it, remember I said this, when you have to get your tweezers out again and have forgotten how much it hurts!!! Nicky glad you sound so well and I think you are Bolt, I’m the one who pulled their ham string and went back to the start!! I am so pleased you are all getting so far on, but why didn’t you pack me in your suitcase???
Angie how are you doing? Hope you are just busy with the spuds and veg and not poorly. Lorraine, I know exactly what you mean and I really feel for you. Good old hubby. I think he is right, maybe she could not bring herself to say it or wanted things to carry on as normal for as long as possible. If she had not told people in her family, she may have been worried that the news might get to them. My daughter has been frightened by hearing someone she knows has been told, in the middle of chemo that she has secondaries everywhere and very little time left and the poor girl is young with a family. I hid it from her, but it really shook me up too and is on my mind. I do feel like I could have a big cry and that it would do me good, but I know that one is coming very soon. Kirsty, wow you sound better, glad you are getting out. My leaflet on chemo says xeloda can give you angina so hopefully you have not suffered a heart attack. Enjoy your time off as much as you can. Bevy hope you are still improving.
Well better go and dive into bed as I am in the African land snail tank at 9am tomorrow so hopefully out by lunchtime, at least i won’t have a frozen head and ears this time. It has to be an improvement.
Hugs all round
Lily x x
Good luck for tomorrow, will be thinking of you! i know what you mean about the secondaries bit, ive jsut made the mistake of re-reading my path report and still dont understand if only in 1 lymphnode what does “probable extra nodal spread” mean - worried it means good chance of going elsewhere and every twinge which at the mo is lots has me panicing, hopefully just fat but went to walk the dog and my big warm duffle winter coat wouldnt fasten over my stomach, yes its where I hold my fat but to have arriven so fast does worry me a tad! Think we all need a good cry sometimes. hope you get some sleep lily and once its done tomorrow then its a move forward, sometimes I think the fear of the unknown is worse that it is - says me high on paracetomal!
Hi Lisa,
I have never seen my path report, did you ask for yours? Not sure whether I am brave enough to see it though. I do know that the path report is just on the tissue they are given, so if they said it was wide spread they are talking about in the piece of tissue, not your body. They can only talk about what they see in the sample. I think it might mean that it was throughout the one node rather than just one or two cells in it. So it had more chance of being in the next node, but they checked it out didn’t they and found it wasn’t? How many nodes were checked and ok? Everyone seems to have fat tummies but if you are worried tell the BCn or lie flat and feel that it is soft and blubber like! See if you weigh more. I think I might have a paracetamol with you to get off to sleep. Cheers and just think you are almost there.
Big cyber hug, champagne and choccies coming your way
Lily x
its so scary if we let our minds wonder isnt it? im ok if i just focus on today, because we dont have that much to worry about then. its the what ifs, that drive us up the wall! i know ive been worried since my friend died, because i have secondaries in the bones, and im wondering if they can escape from there? and how? then you compare yourself to what treatment others are having. well im going to stop it! i was having fun before my brain went haywire, so im just going to let it go all over my head, because even if the worse was to happen in the future, its not worth spoiling today.
i know what you all mean about a fat tummy, but trouble is i have fat arms at moment and fat everything else. but i will do what i can and try to have as much excercise as i feel up to(which consists of leisurely walks at the moments) and just try to keep optimistic.
whatever we feel like there are people who are having it much worse, but it doesnt help much knowing that when you feel like crap, you cant help but wish this would go away.
hope your all finding some enjoyment in your days take care everyone.x