chemo kicks off 20 May - any good buddies?

system · 26 August 2008 00:38

Heya Lily

We’ll both go in optimistic tomorrow for a better round eh. Joanne… hope the night has given you some relief and tomorrow is better.

5th time around I know what’s coming but hoping it’s getting easier. Still was nice to see my ma earlier. Sometimes I fell so old it’s hard to remember I’m 33 it was only a few years ago I was still in the 20’s. Oh well I still intend to do a lot no matter how long I’ve got and under what circumstances. We have to be true to our souls don’t we… so onwards I say, no matter what, no rush though

Lots of love to you all.

Angie

nicky08 · 26 August 2008 06:09

Hi all

Hope your chemos, Angie and Lily, go well with no reactions or nothing worse than last time. Angie, my 5th FEC was OK, better than 4th one. Then you’re 5 down 1 to go. Hope both of you have good neut counts and get over the chemo bit as easily as possible.

Joanne - how awful for you. I’d ask about other anti sickness tablets as already advised above but you should also do what you want to do regarding carrying on. Have a good chat with your onc regarding the benefits of carrying against stopping now. There are other threads on here about other ladies stopping ‘early’ which might help you, it certainly doesn’t seem you’d be the only one.

I also seem to crave different foods at different times even staying on the same chemo all the time and agree it’s my body telling me what I need. The days straight after chemo I want comfort food such as jacket potato or fish fingers or beans on toast (not good for the wind!), move onto pasta with fairly bland sauce or homemade minestrone soup and finally something more spicy by the end of week 1. In between I go on and off things each time but enjoy strawberries for 1st week but I’ve read they are good for detoxing the liver so that’s probably why. Can’t stand cups of tea for 1st few days but get back onto my early morning cuppa by about day 5/6 which is great as I don’t need to drink my cooled, boiled water all day. But overall tend not to crave sweet things, which is probably a good thing as I’ve started to see my weight creep up a bit, I’d been fine up to now so will have to keep an eye on it. All very strange but not surprising I suppose.

To everyone, hope you had a good weekend and have either recovered from latest treatment or aren’t too bad with the next one.

Take care

Nicky x

system · 26 August 2008 09:50

Hi Girls,

hope those of you about to go for more chemo sessions are well and will cope ( I have my 3rd FEC tomorrow aghhhhh! dreading it) and sorry to hear others are feeling so so awful it is just not fair what we have to go through but good advice to let them know and ask for other medication to help you. I have to go for bloods this afternoon and feel really anxious as last time they really struggled to find any and it really hurt but I am hoping that as I have been by the sea the fresh air will have oxygenated my blood at bit (wishful thinking) Is there any magic way of making viens more receptive? My hubby is still poorly and is going to the Docs tonight as he has been like it for a week now and I need him fit and healthy! also I have been so paranoid about catching something and have been disinfecting door handles (and him!) etc I have now got some of the Vic first defence too so thank you for that tip!

Wishing everyone good luck this week

love Bevy x

system · 26 August 2008 10:57

Morning… late appt today. bloods at 2 and chemo at 3, sooo bored of it now which would make sense as it’s the penultimate. Just starting the drink an ocean’s worth of water spree now I can feel the wobble coming back already

Hope the hubby’s feeling better soon Bevy, and you too. I think you can encourage the veins to pop up by keeping your hands and arms warm so I wonder if mittens in the summer might work? but anyway I’m pretty sure wearing warm fleeces did last time for me, although you don’t want to read what happened to me last time, wasn’t her fault my veins jumped

Right. time to do lunch etc.

system · 26 August 2008 10:59

hi girlies

hope today finds most of you reasonably well,
trying to think what day it is? tuesday i think? so did you all do something enjoyable at the weekend? ive actually had a great weekend, been lots of places in the countryside (staffordshire moorlands). with all the family. i seem to be getting over the chemo, quicker each session, (hubby a bit concerned its still having effect) but i hope so, and i aint going to knock feeling ok, its great! just noticed a lot of us, seem to be similiar ages, something else we share ey.

Nicky 08

cant remember when your due for next session, hope it goes well. im just feeling tired today (5 days after last one, but i think its because the steriods are out of system now) but not to worry i will have another lazy day, get the knitting needles out i think
. my youngest son whos 13 just come back from a weekend away with pal (fishing) so im just emptying his washing, wondering what i will find (no mice i hope) i do wish hed left his attitude by the fishing lake,
i know what you mean about food faddies, not sure what mine are at moment they keep changing, one good thing though, is salad as become more of a choice.

Lily 2000

hope you feeling a little better this week. my scan is next monday, same day as your mother in laws funeral, so i will be thinking of you too.

i know where to come now, if i need any wordly words of wisdom, seeing as you are so much older than me! (only joking)
i like you could talk about the grandchildren for ages, the little darlings. we took ours out at weekend, and one of them jumped off one of the things at the park, it must have been about 10 feet high,( he was being superman again), he didnt half cry, i thought hed broke his leg, but thankfully i managed to take him home in one peice. ( not saying the same about me though!)

everyone else keep up the good fight, chemo brain today, so cant write anymore.

x

system · 26 August 2008 12:33

Hi Everyone

Joanne - Hope you feel better soon. Can’t be much fun when your feeling sick all the time. Hopefully they will be able to give you some different anti-sickness tablets.

Bevy - Good luck with your bloods, let us know how you got on. Hope your OH feels better soon.

Angie - Hope all goes well with you this afternoon

Sorry if i have missed anyone out. So many threads to read and to remember, who has written them. Good luck to everyone who is having any treatment this week.
I am back to the Onc on Friday for a review, before starting any more treatment the week after. I must confess that i have enjoyed the past three weeks without any treatment…starting to feel scared, nervous and optimistic about starting all over again, especially after the last side effects!!!

I am also craving different types of food. It seems to be the ones we are advised not to eat. All i want is prawns and can’t have Another thing i am eating alot is cheese and brown sauce. The cheese as to be really strong, in flavour Yummy:-)

Take care all and my thoughts are with you

Kirsty xx

Lily200 · 26 August 2008 15:46

Hi,
reporting back from the nuclear bunker after just over 5 hours, yawn, yawn. Thank goodness I don’t do Mondays normally as I get a bit jumpy hanging around waiting for the blood results (due to bank holiday). Well I thought of Angie and her egg and bacon muffins and we went in the cafeteria and had a big fried breakfast each and that made me feel fab. It was a good thing as they went right over lunch and I had not taken anything and missed the trolley that comes round. I had the reaction again but shouted quicker so they stopped it before I passed out. Then I had the last part at one drip per minute almost! So that is number 5 completed and I wait to see what delights it bestows on me over the next week. Best of all some time off, hooray.
Hope your veins behaved Angie and that Joanne and Bevy are ok tomorrow. I am now glad I had the port put in but it took a while. The lady next to me had to have hers put in and taken out 3 times and it was still not done when I left. It was really bothering me more than her. Joanne focus on the big picture not short term and see what the onc says. Even a couple more may change your prognosis by a lot. I am willing you to be brave and ask for more drugs to solve the problem. They should be able to sort the symptoms out or reduce them to a tolerable level. Big hug with your decision.Bevy yes keep very warm to pop your veins up, they put my arm in abucket of really hot water the 2 times they managed to use my veins. It works really well and numbs it which is great. Kirsty big decisions this week then. Actually I think they will have already thought up a plan for you. I was told that they could transfer my treatment to FEC by working out how much epi I had already had and then dividing it to make up a 6 x FEC regime. Thinking of you and good luck. Lorraine Ha ha great joke. I think the country air is going to your head. You seem to be bouncing along, long may this last. Lots of love for your appointment on Monday and hoping it goes really well. Did you say you will be starting another drug after that? My Grandson dived over the side of the sofa and I had visions of going to A & E but he just looked stunned and then kept running. Lisa how are you ? How was the great weekend?
Going back to the sofa to battle number 5. Hugs all round and good luck
Lily x

system · 26 August 2008 18:16

Am back, joining you on the sofa though lily.

But wait for it… drumroll please… neuts were up and I mean really up. 11.7 today. They were only 6.7 when I started. 2 nurses had to study my neuts and agreed that was extremely good especially as I haven’t had any of the neupogen or gcsf shots, just my old body saying thanks for a nice weekend and the picnic.

Could have been a bit of a palaver as nearly got run of the road trying to get there and OH got hit by a migraine so was very nearly a toss up over who got to drive home, him with a blind spot or me with the double vision… speaking of which must do the curling up now. still 5 down, 1 to go.

So Nicky you’re down to your last one now right? When is it?

Hope you’re all doing as well as possible and may your neuts work miracles.

Lots of love

Angie

Lily200 · 26 August 2008 22:51

Angie,
well done you are officially our expert on neuts and I think could have a little wage earner writing a leaflet/book maybe in conjunction with Mum on this. I was not so impressive but still managed 4.9 for my neuts on day 8 and what was my prize? You guessed another 2070 mg of poison. Must have been the booby prize!! They were pretty pleased with mine and I have absolutely no chance of talking anyone into reducing anything or stopping early now. Such is life.
Very sorry to anyone reading this with low neuts, I don’t do anything special except sleep, not work and eat excatly what i feel like but a lot of protein. Angie is the expert!!!
Joanne and Bevy good luck hope yours go ok . Nicky are you having a good week, I have lost the plot and meant to ask last time but got finger trigger happy and posted faster than expected.
Lily x

system · 26 August 2008 23:29

Lily… .steroid aking you hyper yet. I’m alternating between doze and rave at an alarming rate. In fact I think right now my left side says sleep and right side is jogging!

I wish it were true about the neuts… the only thing that’s really changed input wise is the picnic ie relaxation, sunshine and genuine calm, oh and last night I watched little miss sunshine. Maybe ate more mushrooms, just really got in to them and I’ve thrown the take out rule out the window. Had curry twice in the last 2 week, mind you only mild. The big question is this… I went back to work, I did the best work I’ve done in a while last week which made me happy. So did that make my neuts better or did having better neuts allow me to do the good work. I think it has to be the former cause I really threw myself into it about 2 weeks ago and I know a few days into that they were down to just 1 so I reckon acheiving something cheered me up and that did it.

So maybe try something you’ve always wanted to, nothing overwhelming of course but hey I discovered the library is great now. Just pop in when bored and see what takes your fancy… for me it was a book on german cuisine, don’t know why just fancied something different.

anyway tingling arms for the fifth time (yawn, bored not tired) so must rest, that and the slightly blurry vision. Sorry if I just wrote rubbish but I hope you get the idea.

Angie

lisaf · 26 August 2008 23:33

Hiya all
Good luck to those on chemo days!! Hey my neuts were 12 on last chemo day, is that good? I get confused by all the different figures, just looked back and for my first chemo it was 5.4 - god knows how I get it up with the crap I eat and drink. Well let me tell you, I would literaly smak anyone who put a camera near my face after seeing my picutre at the weekend - god no wonder I only have one pair of jeans that fit, cant believe how bad I looked. Got bloods done today and they were fine but couldnt really see what they were, I was worried after my boozy weekend that they could be effected.

Well my weekend saga - Friday went to see my friends new baby and had a pizza and champers - pizza hit the gut and was up all night on the loo and not being sick. got up Saturday for Carlilsle Live, dad called helpline to see if I could take diacalms, said would prefer if didnt and were worried about me having a bout of DIA, didnt like to tell them I was on the way to the concert, it calmed down a bit, had a fab day, few too many wines but was the only one with it! Boyzone were fab even though not my cup of tea and the young boy Andrew Johnstone from britian got talent was lovely bless him and he is from our city!

Sunday went for drinks with freinds (again) and pizza, ooopps - still had the old DIA but not as frequent.
Monday - leg waxing, god my stomach is still hurting from laughing, spent so much time with family who rally round and friends, my dad and uncle defo suffered, all those bad family members queued up to rip strips off!! and yet again more booze - wonder why I was worried about my bloods?

Well today up and off for bloods and then work, shattered now, have I wore you out! As usual though after a good weekend and a few too many bevies I go on downer and a bit weepy, maybe DIA is something else or maybe it is just combination of crap food and drink for 4 days, also back and stomach hurting all day today so had a bit of cry when my parents came up before which I know worries them, I just panic its spread to my liver or bones but asked onc’s asst. today and she said whilst on Tax hard to say about back pain as should expect it so will wait and see and after next chemo on day ten she’ll run through my “extra node spread” questions and plan out what to expect next!!

Phew - off to bed now as work tomorrow, mate called to say newborn baby has viral infection and bloke at work has full blown cold - praying all stays well until this time next week - might even try and eat healthy and cut out or down on the booze in case this is causing back ache re the liver - got Im soooo paraniod.

Good luck to those on chemo weeks! Lily glad this one went okay,. Angie hope you are doing okay.

xxxx

Lily200 · 26 August 2008 23:59

Hi,
Lisa I am crying I laughed so much about you smacking someone taking your photo, me too. I know they are going to get me at the funeral and I can hardly biff someone there!! Sorry I am laughing with you not at you, promise I am the twin smacker!! How about you Angie, a triplet? I think I remember that 12 is the top figure, Lisa you little boffin!!! been swotting up on neuts and got an A*! Angie you got an A.
Oh sorry I posted that before I got to your sad part Lisa, probably crashing back to normal life for us after such a brilliant weekend. Loved the waxing story too. Your onc sounds very caring so I think it sounds like you are fortunate to be able to let her sort this one out and try not to dwell on it if you can for now. By the way you shouldn’t go to work if someone has a cold. A dose of antibiotics on top of tax won’t be funny at all and a temperature on top of hot flushes!! strangely CMF has made me freezing and my temp is a little over 36 mostly, what is that about? Even my feet are frozen and shivering under the duvet but wake up cooking hot. I think I need a new thermostat, might mention to onc next week. I also have a funny long no tenderness lump under my collarbone scar where they put the port in but feels like a tube to me so I don’t know if one has gone for a walk. Yikes! Angie what news about your cheek , hopefully ok? Interesting ideas about the neuts. Yes I am tigger bouncy bouncy bouncy and trying to wear myself out before I go to bed as I have a terrible night at this stage unless I can fall asleep instantly. Might head for the bath next and read a very boring book. Bought a BC book about the outer edge and it wasn’t the outer edge I was thinking of. Some of it would send you off in one page, but some good bits. I just can’t keep myself awake long enough to get off this really boring blasted long chapter of a woman back in time who writes’ frightfully sorry darling but had the breast off last week so can’t see you’ type entries??? My chemo brain forgets where I am and find myself constantly reading the same stupid bit again before nodding off. Thinking about it I will go and read it and solve the problem. Would email you but would not get to finish it for the same reason!!!
Night night
Lily x

system · 27 August 2008 00:19

NIght Night or NN as we say on IRC.

I didn’t mention the cheek. Just really wanted to get it over with as OH was trying to sleep of a migraine in the car and I just felt poor thing. To put it into context he gets bad ones and I’m actually fine until several hours after the chemo kicks in so wanted to get him home.

But anyway she spotted me rubbing my cheek and asked if there was something there and had a feel for the lump herself and said it’s probably a salivary gland and she checked that my lymphs weren’t enflamed and said just to keep an eye as it is almost certainly a little mouth irritation or possible infection and to go to docs if the cracks at the side of my mouth haven’t healed in a few days. Had one of them for 4 weeks now but keeping it clean and it is healing slowly. hopefully faster with super neuts

Lisa, I had a similar reaction after my mad work stint I jsut cried like a baby and collapsed on the sofa, I can now see it was hormones and I over did it but I haven’t felt that low since my teenage angst years when I had the flu. Not pretty.

Scoff your face and bring on the moves that make you laugh… I have a theory I think the following mathematical formula may apply.

ROFLMAO = Higher neuts.

google ROFLMAO if you don’t know what it means but as a clue… rolling on floor laughing my **** off.

So it needs to be a really funny movie etc.

Hope you make it through the chapter lily, why do you think Im reading cook books… they easily hold my attention when on the dex… mmmmm black forest gateux.

nicky08 · 27 August 2008 06:41

Hi all you chemo bunnies, sounds like the drugs are working wonders but hope you got some sleep!

Whoa - what are all these freaky neuts readings? Surely they must be wrong? I had no idea double figures existed! Mine were low to begin with so I’ve had a standing start whereas all of you seemed to take a running jump each time. Oh well, we’ll see next week what happens. So far I have resorted to Angie’s advice - chicken soup and manuka honey (diet bit), GSCF injections (that’s the science bit) and now prayers (that’s the religious bit!). Just to explain the last bit. There’s a guy I work next to who is a born again Christian and lay preacher. He wanted to know if I wanted him to pray for me. I couldn’t think of anything at the time but then said, Yes, can you pray for good neuts! Had to explain what they were and why I wanted them but I think I’m now covered! If all else fails I think I’ll go with Lisa’s booze remedy which seems to boost hers no end

Lisa - what a weekend! Not surprising you were a bit low afterwards especially as you probably laughed so much on Monday with the waxing. Maybe you can give them some advice when the hair starts growing back as that’s sometimes more annoying than ripping it off! How lovely and soft they must be though! I hope it raised a lot of money and well done to all of them and you for getting it done.

Lily, Bevy and Angie - hope the recovery part is quick and you all get over any rough feelings as soon as poss.

I’m due FEC No 6 next week (Thurs) and really want it to go ahead to get it over and done with. Don’t worry, I won’t be deserting any of you, I’ll still be on here as much as usual and we all need support as we continue with treatment or move onto the next stage of treatment. I’ve just got to get my long list of questions ready for my onc to answer - boy I bet she loves seeing me each time!

Anyway, take care all, hope this week is a good one. It’s one of my working ones so I’m not on the computer quite so much but love keeping in touch.

Nicky xx

system · 27 August 2008 15:40

HI EVERYONE

Sorry i’ve not been on much but as you know this CMF has knocked seven bells out of me. I went for my pre bloods yesterday and made a stand that under no circumstances was I taking another bout till it was sorted eventually after almost rfusing to move I saw my onc He looked at my notes and examined my chest after I told him it felt as if Alien was trying to get out and that I was having real difficulties in breathing on any kind of exersion. He was sympathetic I must admit but then saw I was on TACT 2 trial. and said I couldnt stop the treatment that they would postpone it a week and give my the C over an hour to see if that would ease side effects. The shock part was when he casually said that they couldnt stop my treatment that I still had cancer I assume he meant in my lymph glands as they removed all from my boob and only remover the sentinal node which showed cancer. This will probably explain why I have now to get rads in my neck. I have so many questions but have written them down so I dont forget to ask next time.

Joanne

system · 27 August 2008 19:15

Yeah Joanne. I would get writing questions.

Seeing as I haven’t actually met the person who designed my plan, ie my onc. I’m thinking of writing my questions down and leaving them at the hospital with a request for a written answers if at all possible as I can be forgetful like anyone else. Not looking for a fight just some answers.

As for not stopping treatment that’s cr@p as any one can refuse treatment at any time it’s the 1 single right they can’t override (unless you’ve been sectioned I understand) and even then they need permissions etc from family. I think what he means is it would be very unwise until they’re sure they wiped up all the cells so really means mustn’t but really they should be saying things like can’t stop… It’s no wonder so many people feel out of control is it, as if the cancer’s not bad enough ho hum.

I had a dodgy night and for the first time took the ranitidine tablets (bought myself, cheaper than prescription in fact) finally got to sleep at about 4am, wiped today so taken the day off. Will try again tomorrow, I’m not as emotional this time but the physical side effects are a bit worse. This does suit me better than being angry/weepy on an alternating half hour cycle though

lots of love Ladies.

sleep well.

Angie

Lily200 · 27 August 2008 23:15

Hi,
well I have been tigger bouncy again and did 4 loads of washing so basket now empty except one lurid item that looked likely to destroy anything else it went in with. All tumbled, folded and ironed, plus left over ironing from can’t remember when all done. Who is this woman CMF turned me into, it is seriously spooking me. I detest housework, am not particularly good at it and cringe when people feel it has any bearing on what type of person they are, or say ‘it was Monday so I did the towels’. Your life run by the house. Arggggggggggggggh. Apologies to those of you who may be much more hygienic than me! If I get the duster out in the same week I am going to ask to be sectioned! My OH who had a superb Mum as an example is in second heaven, thinks he has transformed me at last!! This is day 2 after chemo for goodness sake, I am now concerned this is not working like the epi.
Hair is over half an inch of soft baby fluff waving around like wisps of black grass and showing no signs of being the wonderful hair that foolish people tell me I will definitely get back after chemo! Anyone else think their hair is looking like it will be better? What happens to my hair that stayed ? Will it be a different variety then, so I have ordinary sides and this superb new hair on top? What do you think about this thing I can feel in my neck. Everyone thinks it feels like a tube about one inch long, going from my collar bone scar, where the port is upwards towards my jaw. The scar has visibly shrunk inwards after being darker recently. Just wondering if I should speak up but no way am I going back in to be chopped open again so feel like hiding it. Could it be why my eyes are odd, are the drugs going the wrong way, can they go the wrong way? Might start a thread and see if anyone has had this. Hate anything different these days, see bad in silly things!
Angie, the mouth cracks must be so frustrating. I get them in Autumn and curse every time I laugh and pop them open. Old wives tales say it is anaemia but you know that is not the case, don’t you? Good luck in shaking it off, no wide mouth snogging!!! Nicky , loved the neuts theory, I aimed for multi religious prayers to cover all options, when people kindly offered. I read a paper about them following people who were prayed for and the outcomess were more positive for those being prayed for. Ironically it also worked for those who did not know they were being prayed for too. Not sure how they worked it out, but greta to know. So glad you will not be leaving us completely when you finish chemo. Hope the last one is on time and kind to you.
Joanne, I am shocked by what they said to you. Did you ask them to explain or were you too stunned? You could do a search on rads on the neck if you feel brave, but I have to say it sounds like the treatment is planned to sort this and not a surprise to them. I have not seen my path report and can’t decide if I should to check or whether it will depress me and change how I feel. The Cyclophosphamide is the one causing my reaction, my nurse said it usually is that one if you are going to have a problem. The second time I had mine in a drip to make it smoother and more regular but it got me on the last 200mls. Now I have to have a drip and then have it really slowed for the final part to see if that helps. It makes me want to pass out and I can’t breathe but that stops when the drip is stopped. The pain in my nose is horrible nand if it gets up to my sinuses and across my head. Arhgggggh. Are your neuts still good on this, just wondering whether you bone marrow is worse this time. Have they given you something else for the sickness?
Bevy how are you ding? Did they get in the veins better this time? I hope so. Hi everyone else and good luck if you are having or had something this week
Lily x

system · 28 August 2008 07:13

Hi all

Moaning mini again lol

Lily there going to give me the Cyclophosphamide over an hour to see if that eases the side effects my counts have all remained high throughout this so its not that.

Ive been following various threads on here that you have in have you ever though about writing for a loving you have a way with words.

Joanne

system · 28 August 2008 09:27

Hi All: It’s my Thursday catch up - I am back in the office. As usual it is difficult to keep up with you all, but is fascinating to see how we all react differently to things.

I did really well on the epi - apart from the hair thingy - but am now on the CMF and the daily C pills are making me feel yukky after the first one. For the first time I am having to take anti sickness pills other than the prescribed ones after each epi. Also I am developing a sweet tooth - don’t normally have one. Keep cooking dinner and then when I put the plate in front of me to eat, don’t want it. I think tonight we will have fish I won’t eat rather than the chicken I didn’t eat last night!

My neuts were down to 1.7 before the first CMF but up to 4.55 before second one this week. I went to St Cross at Rugby on Tuesday morning for the bloods where they fast track you ahead of the queue if you are on chemo - really pleases the rest who are waiting - then went to Coventry in the afternoon for the poison. My neuts were only about 4 before they started all this so don’t think I will ever achieve a 12 - bit like an Olympic Gold.

Joanne: how dare they say you cannot stop the treatment. You always have the final sanction on anything they want to do to you. It is your body after all. I didn’t do the trial thingys as I wanted time between each treatment rather than having them bunched up, but I seem to recall a line on the agreement that you could stop at any time and they would find another treatment plan for you.

My onc said right at the beginning that I had the right not to have any treatment at all but that he would be very concerned if I didn’t. I am a member of the awkward squad so they have to justify three times over anything they want to do to me.

Lily: I got a copy of my path report that did make interesting reading, onc was quite happy to send it to me, also I always have a copy of my blood reports so I can keep track of what is happening. Looks like we are on track for the same timetable with the rads - but some oncology/radiology people do let you have a rest between the two treatments. I would like that to give my body time to recover from one thing before the next but we will see. You seem to have got the energy for even housework from somewhere! Well done you. Haven’t made it to the fitness class yet, but OH is away Sunday thru Thursday next week so will try on Wed. I am scheduled to go girly shopping in Leicester on Monday, but wil be thinking about you and yours - let’s hope the weather is good for you.

I must read thru all these again and try to get my chemo brain to take it all in!

Take care everyone - pleeeeeease can we have some sunshine - lie is soooo much better with sun!!

Julia
XXX

system · 28 August 2008 10:15

Hi Girlies,

Joanne I agree with the girls it is your body and you have a right to stop anything being done to it at anytime or they jolly well need to explain everything in finer detail to you

lily you sound energetic? I am like you too normally housework is the last thing on the list if there are other options I think I have a bungalow mentality I tidy up downstairs as that is what people see and upstairs, well, it just kinda gets left to another day that somehow never arrives.

Angie have your tried anyting with aloe vera in it I have been drinking aloe every day and it has certainly kept the old bowels in good nick and also I hold the juice in my mouth for a while before swallowing to ease any problem that may be occuring in my mouth, just a thought.

There was still a struggle with the viens but fortunately after two nurses refuses to attempt another appeared who got it second attempt. The joke was when I had my chemo yesterday the chemo nurse needed two attempts but I poured with blood made a right old mess. The thing that gets me when I go for the chemo sessions each time the delivery is sligthtly different, do any of you find the same thing?, I feel I am red alert when I get there to make sure it is all done correctly, first time around they had someone elses name board up that they were happy to put my blood presssure results on until I told them and then yesterday I had to ask if gloves could be worn? and remind them a couple of times to give me my anti sickness tablet that was prescribed for me which you are supposed to take an hour before treatment! no wonder my blood pressure was exceptionally high. My lympocytes were very low and I was told to keep away from anyone with anything wrong with them Iooked over at hubby happily reading the paper as he is still experiencing stomach problems and our Doc thinks it is a viral infection aghhhhhhhhhhhhh! I feel like spraying him with antiseptic.

Anyway so far so good don’t feel to grotty yet but scared to speak too soon.

love to you all and hope all goes well for everyone today all week!

love Bev x