chemo kicks off 20 May - any good buddies?

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Heya Bev.

Got a tip for you, go in early and pretend you’re doing something else. We wandered around Carlisle castle and then went for a nice lunch in a little french place. I had spicy chicken in mayo in a croissant, was delicious and not at all respectful of the huge dose of FEC going in an hour later LOL. still it worked a treat due to the short term memory effects of the F you could easily make me believe it was just a fun day out, if it weren’t for the woosiness and holes. I have to confess she used a vein near the wrist this time and it hurt like **ggery going in and coming out but hey it was the last one, she did say there’s a nerve near there in some people which can make you feel it… no s***.

Anyway the last on is done and dusted WOOOO HOOOO.

I think I saw Lisa too but not sure. When I came back for the chemo we sat down and Tommy was sitting next to a lady but we didn’t talk but when they called for her I heard them say Lisa F*** so we maybe nearly met. Hope your OK Lisa ,you’ve been quiet hun.

so slipping back down the rabbit hole now and faster than usual, I think my body’s in a rush to get it over with too LOL.

Lots of love to you all, especially those of you being poisoned this week (You hanging in there Lily?) or with sliding neuts.

Oh hear comes to wooses again … BFN.

Angie

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Oh yeah I very nearly left without my meds, can you imagine… .yikes.

783

hi everyone,

glad most of you are quite upbeat at moment,( we are the girls against cancer army) united we stand and strength we gain from each other.

lily 2000
bet you feel like youve moved into a new house,
it reminds me of a friend who came to visit me a few months ago. the lady a few doors down was just letting someone in her house, and my daft mate, just followed in behind.she was in the front room before she was thrown nicely out. and she had no excuse shes been to my house several times. i know what you mean about forgetting words, i went to breast cancer support group with a friend last night, and was just about to call her by name and my mind just blanked. i tried the usual trick of going all through the elphabet but it still took me ages., when will our brains get back to normal. talking about wanting the rest of your house decorated, by neice has just applied for her mum to go on sixty minute makeover, to come and do her house up, i hope she manages to get on.

Nicky 08

i was diagnosed with bc firstly had lump removed and then mascetomy, and after because it had been quite deep they decided to cat scan, thats when it showed up in my bones after having been given negative feed back all along, i wasnt suprised. But i saw chemo nurses today, and they seem to think my 2nd scan which i had about 10 days ago, showed that it is stable in my bones, which i think ment it hasnt spread anymore. ( i thought it might of cos ive had quite a bit of pain) so im relieved but will not build my hopes up till i speak to onc, next wednsday. because in the past i was told i wouldnt have to have a mascetomy or chemo, and ended up with both. the chemo nurse still thinks i will probably have to have taxotere, which im not looking forward to. i darnt even ask what its like, cos im so nervous about it,. i will just enjoy this break, till they decide what there doing with me. i visited a fellow sufferer today who is quite poorly, its such a shame, shes a lovely person.

anyway girls enjoy the moments you can, and take care of yourselves. my thoughts are with you all.
x

784

Im back, sorry computer problems, couldnt get on until today, will catch up later, but just wanted to say, wondered if that was you angie, when I say you coming in it was what I expected you to look like but then didnt wanna feel like total twerp by asking! Oh did you see me trip over the chair. was crapping them about rads planning but was fine, albeit it have 9 yes 9 tattoo marks. Decided to try and take bloods but gave up in the end as no show! Wrist ones hurt angie dont they.

Well off to watch secret millionaire and then I will be back for a total catch up! soz we didnt get to speak angie, im such a chicken and didnt wanna feel like total dork incase it wasnt you!!

Hope all well, speak soon
xx

785

Hi,
first of all
Raaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa
Raaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa

Angie has had her last chemo!!!
Well done, so pleased for you and now you ‘just’ have to shake off this last one. Well done for getting through the 100 no less. I am needless to say green with envy and doing another lap round the track with Julia and Joanne!!
So so pleased for you hamster
Love and hugs
Lily x x

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Lily, hope you are well, will catch up soon, wanna know about your decorating!!! Youve set me off again, im becoming addicted, wonder if we can be as fast as 60 minute make over.

Angie - huge congrats about last one, know its wierd but well done!!!
xxx

787

Hi,
well back to more mundane things, I had my chemo number 6 part one today, so back in next Tuesday. It is really starting to get to me, going so soon and the doses go down so slowly when it is a 28 day cycle. Chin up and keep marching I guess and should be grateful to feel better. As predicted I was really dozey and felt like I had been given vodka so have slept in the unit armchair, not easy and slept and slept at home too. Just hoping I won’t be up all night now. The piriton hit me fast and they even had to do that really slowly so must be getting too sensitive to things. Good news the doc says the eye problems are reversible at the end but I have liquid tears for the gritty eyes. Not sure how that will work with the weepy drippy eyes, just adding more liquid! He also gave me double folinic acid to try to cure the ‘Sahara desert’ tongue and mouth, as it only went just before this dose. He said it is really to stop soreness and mouth ulcers, which the methotrexate is the worst one for, but I (fingers crossed) have not had them yet, still time I guess! I also have a spray which is liquid saliva !!! OOOh my word, I hope it is not the real thing or re cycled from dribbly people! Yuk! I laughed like a horse in the unit, as I said I would test it on the dog or my hubby first! Can you imagine what they would be like, gulping down mouthfuls!! Sorry that might have made you feel sick! Anyway feeling good tonight although the ring is even tighter, doc ignored it as he couldn’t make my ankle dent! Decorator has almost finished, but had to have the front door, now trafalgar blue, wide open all evening so looking carefully for creepy crawlies, who might have dashed in to be executed on sight. Must be careful not to splat them on the newly painted bits. Bevy, sorry if I made you wistful about decorating, I did wait 18 years!! I have to say it has given me a real boost. The swelling is on the non cancer side and my fingers, foot and toes all on that same side. It is something I get in the Summer normally but far worse this year. Glad they got your vein first go and lots of luck for tomorrow. My chemo goes in my port so veins are not affected, blood tests go in first time. Might be worth asking about a line/port if you are struggling a lot.
Nicky - glad you are feeling better now, that has taken a disappointingly long time though. We got free parking about a month ago but only in the main hospital, so still pay when get bloods. I have to put a huge sign in my car window so everyone knows why I am there! It is a lovely idea to have another piece of jewellery, hope I don’t have to get mine chopped.Hope you have a lovely anniversary, mine was in an epi week so uneventful! I laughed about TTT stuck to my door like a fly in a trap but cringed at the clothes removal. He would never give up one of his range of tank tops!! LOL. Must be very cautious if I go out the house, while unable to move very fast!!! Angie - well done again and hope it passes soon, don’t forget every day is the last one on FEC and then it can FEC off. Sorry could not resist that one. I laughed that you nearly forgot your meds, I forgot my blood forms and had to go twice. Derrrh. I can’t believe you and Lisa were that close, you should have screamed one of you. I had a fab giant breakfast before my chemo, good job as could not have eaten much after the piriton. Lisa hope you are over the chemo effects or nearly. Gosh nine tatoos, yikes, did they hurt? I hear they look like pen marks. When do you start rads or is there anything else first? I have to drive to another town miles away for rads so will be very time consuming. Good luck. x Hi Lorraine, we were all very concerned after your silent spell but it sounds like you had some positive news and I can’t believe this would change when you see the onc. If tax does the stuff, and it is one of the bad boys who kick c up the rear, then it will be worth battling through.Especially as you did the army chant and got me fired up to keep going, I have 5 more. What is doing the ‘elphabet’!!! LOL I read it twice as elephant. Where are we going!! Not safe to be out alone! Liked your stories, apart form the poor lady with Bc. It does take its toll seeing others but you are like me and know that in their place we would not like to be ignored. You are a kind person to go.
Hi to anyone who has not posted, Julia did you get your dose and how are you. Kirsty how are you going on tax? Joanne let us know how you got on too.Lisa just saw your post after I did mine, so editing. I am good but feel like a separated twin!! Hall is duck egg blue with a big white feature wall that goes from hall floor to upstairs ceiling in white to cover in art and photos, looking for ideas on that. Carpet is a warm biscuity brown with a very faint second brown, hoping that will wear well.
Love
Lily x

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Hi All

Well not getting chemo tomorrow bloods are ok but their not taking any chances iam quite glad as it gives me more time to finish my daugters room like lily ive been decorating when I can although the other day was an emergency ok chemo brain kicked in. I have a large long pile wool rug in my living room which needed washed so i took it to the bath ran the water and left it to soak then went back few hours later drained the bath and ran taps to rinse it and went to get something downstairs spoke to my son and the my postie we were laughing at my new pup barking because i was outside and he was in the kitchen feeling sorry for himself but then i saw a glass that had water in it and something was dripping into it and yes you guess numpty nut had forgotten to turn the water off i floode my bathroom and kitchen luckily my son and daughter were near by to give me a hand but the damage had been done my laminate in the bathroom was ruined so up it came yesterday and had to lay lino. So my daughters room has been delayed again thats not bad only took me about a year lol. I dont know if I mentioned my pup but got him last week and hes the cutiest smartest we thing you ever did see He is a border collie which i have always wanted so it gives me a reason to get my sorry ass out of bed in the morning he is only seven weeks old but already he knows to sit and give a paw just the potty training bit to do but hes getting there.

Angie - Lucky you all done make me jealous why dont you lol

Lily - would love to see how your house is looking my youngest has applied to 60 min make over think she is getting fed up with me promising to do her room but will hopefully get it finished this week.

Not seeing my OH for 2 weeks which is a bummer so feeling low about that.

Joanne

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Hi Joanne,
hey we must all be on line and posted at the same time! Sorry you did not get your dose but really think you would have been terribly ill if you had. Is it just for another week? Does that work out better for your 50th now, hope so? Sorry also about the flood while you were chatting up the postman LOL , can you claim on insurance?
The puppy sounds adorable and just the thing to keep you happy, especially while OH is away so much. Will you take him to training classes when he has completed his innoculations? What did you call him?
Is everyone after the 60 min make over, that is a great idea. I would have to tidy up a lot first though, Wouldn’t want filming going on while in the loo or my undies on the tv ! Nicky has got us all on the tv star route. Did you see her anyone or was it just me? I have her trapped on my sky plus box, looking fab !!
Anyway make the most of this week if you can, not sure paint is good for a chest infection though. Be careful and wishing you well. Did you swear at Angie and my posts telling you to go to the doc?
Hugs
Lily x x

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Puppies, packaged dribble, hose make overs… busy people.

Joanne… I thought you had to flu, are your trying to kill it with paint fumes LOL :0

The steroids are keeping me alert quite nicely but I can tell this is working hard on my liver, I think it’s reading the liver detox book that’s encouraging the punched in the small of the back feeling that I always seem to get for 3 days after the dose. I am finding that one fascinating but lets just say theres a list of symptoms you get when you’re liver is under load and not surprisingly I have to the lot LOL. Looking forward to fixing that but won’t be able to do it between chemo and rads as it involves anti-oxidants and that so good for your body that it can heal the very cells the rads are trying to nuke apparently… grrr. So november for that and just a healthier diet as soon as I can.

I’ve got some good news (kind of) for you fellow bowling ball bellies. Apparently if the liver can’t deal with all it’s got to deal with right now it stores some of the toxins away in fat which causes weight gain… I thought it was just the dex but maybe not.

Lisa… can’t believe we were so close, was that a wig you were wearing? If so looked great, as did you. I nearly said something just in case but stopped myself as I knew you’d finished chemo pretty recently and couldn’t look that good yet… surely.

Joanne. good luck with the pup. Our collie was 1 when we got him and a rescue dog so we had to teach him to trust people (sad start to life poor thing) but after 2 years of consistent training from OH and me (and knowing he will literally do anything for a tennis ball) he’s the best dog in the village, and that’s according to everyone else. You wouldn’t believe how many people think Tommy must be a farmer or dog trainer lol. Tip If he’s bad don’t scold him, touch him or anything just turn your back on him (ignoring the puppy eyes as much as possible lol). They have a strong need to be part of the pack so just ignore him and a few mins later give him the chance to do something right, something he’s likely to get right like a sit and make a fuss of him… he’ll learn so quickly that doing what you want makes his life good. Learnt all this from a book by Jan Fennel, she’s a genius.

have to go wake OH up now, I think 4 months of chemo has taken it’s toll on him. I’d be sleeping too if it wasn’t for the blasted dex.

Lots of love to you all, and don’t be jealous yet, still got low neuts to contend with in 10 days.

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Hiya Angie, Yes, you have now met Ratty!!! I hate it with a passion but cant cope with all the stares when go au naturale! Rads start next wednesday, the planning wasnt half as bad and anticipated but they did try and get blood but gave up! Viens are shot now! I look pants, I could roll down the coridoor as put that much weight on! Very strange cos I nearly came into loo to ask if was you incase made prat of self! Wierd eh! Well I’ll be a constant vistor for the next 3 weeks, hour plus drive each way!

Hope everyone else doing okay!
x

792

Wow - what a load of comments to read today. I started this morning before I went to work but had to stop and didn’t have time to reply.

Angie - Congrats - Another Gold Medallist - aren’t Team BC doing well :wink: So glad it all went to plan and at least it’s the last lot of steroids. I’ve really suffered with the side effects of my side effects drugs this time! Only felt back to ‘normal’ on Monday which is about 4 days later than usual, hope you’re not the same. Mind you starting on antibiotics on Saturday hasn’t helped me this week either - can’t wait to stop popping pills! Keep healthy for your neuts dip then only another 10 days or so to go before you can start eating according to the non chemo diet! I said to OH I’d have a raw day next Thurs and eat all the stuff I couldn’t for the last 4 months but I doubt if I will as I’m sure my neuts will be lolling around the bottom of the scale for a while yet. Can’t believe you and Lisa were so near each other! I would have been the same though and not sure if I’d be making a complete idiot of myself :wink: Maybe you’ll meet up during rads if it’s at the same place.
Lisa - I also hate my wiggy but can’t go without it as I’d scare too many innocent bystanders. Can’t wait for hair to grow when I can at least go commando at home. I so hate my fluffy but bald head that I don’t let OH see it as I feel so ugly. Once my bonce has a good cover of hair that stays then I won’t mind, it just where it’s gradually been getting thinner and thinner that I’ve hated. My hair is so thick normally that I’ve never even seen my scalp probably since the day I was born (not kidding, looked like a monkey!) so it’s been a real shock. Also the mascara is going to make a come back next week, I’ve still got quite a lot of lashes which I’ve not touched for months so even if they fall out now I know they’ll be back.
Lorraine - good luck with oncs appt next week and fingers crossed all is stable - that’s what we’re after! I’ve got my CT scan next week and ultrasound this week then oncs the week after which will also be my 1st pamidronate on it’s own. I’m hoping results are good but also that I don’t feel sick going back to chemo ward again. As to finding a vein I wish them luck, I may end up with a portcath (sp?) like Lily after all. I feel like the proverbial stone and they won’t get any blood out of me! What a b*mmer finding out at the same time (almost) as primary dx. I didn’t realise that happened quite as often as it does until I came onto this website. For all I know mine might have been there all along as well as our HA don’t do scans unless ther’s cause for them. At least they did check though and it’s being treated and monitored.
Lily - Hope you feel OK after CMF and the spray isn’t what it seems - yuk! Take it easy for the next few days, I’m sure you know the drill by now! Do you crave different foods on CMF than epi? I seemed to change each time anyway on FEC and sometimes couldn’t stand the thought of what I’d eaten last time. Take care.
Joanne - how lovely to have a new pup, my girls would love a dog but I’ll be the one looking after it as they’re both off to uni next year and I don’t want any more responsibilities at the moment. Sorry to hear about the flooded bathroom and kitchen. You’re not taking anything at the moment that affects your brain are you? LOL Hope your pup keeps you company while OH is away. A week off chemo is quite nice as long as it doesn’t delay the finish by too long. Make the most of the extra ‘good’ time - I did when mine were postponed - and definitely better safe than sorry. Also it may work out better for your 50th as Lily says.
Bevy - Hope No 4 went well and you don’t suffer too many side effects. At least you’ll be over half way then (I think - sorry if I’m wrong) Again, look after yourself and look forward to the better days that follow the bad ones. Prem babies hey/ Now they’re a law unto themselves and not much info in the baby ‘manuals’ about them! My daughter was only prem due to my pre eclampsia which all went particularly badly at the end with both of us being close to dying. She progressed really well and you’d never know that she was early. It just causes a problem now with her birthday which is 2 weeks before Christmas instead of a month after, so no Sale shopping for me for birthday presents!

Better go now as the aforementioned daughter needs the pc. Take care all, and anyone I’ve missed out. All those recovering I hope it’s not as bad as last time.

Nicky xx

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Hi,
Angie I am buzzy, bouncy, boingy, bla bla but not sleepy, could be a long night so I have started a big jigsaw to calm me down. Are you up there on the fairy lights with me for the next couple of days? I think Lisa passed the twin thing over to you, bad luck!! I don’t get any feelings in the back, what is that about? Does not sound nice, have you mentioned it? Hope this last one is kinder than Nicky’s and that you are over the low spell too. I can’t say I notice that effect so far, plenty of time to go though. The reflux is in and persistently annoying just as I try to lie down.
Lisa, you are sounding chirpy too. I have been told the number of rads you have depends on your breast size/density. The trouble is my onc decided mine before he had seen mine unclothed, so how does that work. Anyone know what it is based on? I can’t believe you and Angie didn’t both scream and have a hug. You silly billies, didn’t you recognise the bowling balls!! Hope the rads are better despite the horrible drive. Will anyone go to keep you company? My friend sais she got really tired on the 3rd week. Take care x
Nicky - I love the Team BC, marathon runners will be continuing round the track for a bit longer!!
A raw day!! Can’t you think of something more decadent for the occasion? I am super fluffy too on top, it does look like it will never be normal but has suddenly started to cover more. It helps having such dark hair, so I am sure yours will be the same very soon. I seem to specialise in yukky treatments and I am the worst one in the world to try them.It has only just arrived at the hospital and can’t drive now, they won’t post it so it will have to sit there for a while. I am really fine at the moment, a bit of reflux in the evening but not tired, super lively, waiting for the funny eyes to start soon. It must be tough still going back for the bone treatments do they ahve any side effects? Sorry I may have already asked, brain is doing circles so the 5FU must be getting up there tonight, keyboard going blurry too!

Well the decorator finished today so got the house back but still very smelly as did varnish on the wood parts today. The gas man came to service the biler and was also half way through chemo on xeloda tablets, max dose and no side effects at all so back at work. He had bowel cancer and I couldn’t believe he was bounding about! Small world eh, he asked for more tea, so I reckoi he has the dry mouth. I then gave him 2 sugars, when he has none and neither of us could work out why I had done it. It was the blind leading the blind! Hope the boiler is ok. Has anyone else noticed they can’t do 2 things or even 3 at the same time now? It has just got me while on CMF and I know which one I blame, rotten old 5FU again. Both phones went at the same time and I was unable to find my mobile in my bag because I was talking on the other one! dehhh. Sorry just back from a ranitidine break as acid heading North again. So annoying that it starts just as I plan to go to bed every night. I plan to stop the ondansetron ant-sick a day early this time. dropped one tablet last time and survived so tying one more. Hope I don’t regret it.

There were 2 men running away from a tiger in the jungle. they ran and they ran but the tiger was getting nearer and catching them up.
The second man said ‘do you think we can run faster than the tiger?’
The first man said 'I don’t care, I only care that I can run faster than you ! ’

All you ladies go and run faster than that tiger.
Love to all Lily x

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Hi all: As usual mega catch up - pages of scribbled notes - probably won’t be able to read the shorthand but here we go:

Angie: Lucky you, last one done, can’t wait to get thru that last lot. It doesn’t seem to have taken so long but still can’t wait until No 8 is over. Haven’t done any rads planning yet, but my immune system is so flat at the moment - Neuts down to 1.2 this week, had to be signed off by onc as OK to do part 1 of 6. My 67% is 10 year survival rate after EVERYTHING. Can’t believe it actually as my cancer is DCIS, v small, caught v. early, 1 node out of 24 cancerous, HER2+, so will have to get onc to redo crystal ball thingy!

Nicky: Hope everything OK with your son. Shame about your ring - my Mum had hers cut off and I still have it - she died about 4 years ago. Hope you are feeling better from your side effects. God it is all horrible!

Lily: You will see from above how I feel about the 67%. But will deal with that when next see onc. Got thru part 1 of 6 OK, although as above neuts v.low. Still can’t believe there is nothing we can do to improve immune system. WIll have to start reading again. Glad your decorating is going to plan. When I was waiting for op in March we decorated the bedroom with some paper with big blue flowers on it. Brain must have left home. It was vile, had to redo it about two months later - plain creamy sort of thing!

Spiders: Also hate the long legged things - I use a fluffy cobweb brush - if you get them on it and keep it moving they cling on like mad and you can then chuck them out of the window!!

Joanne: How’s the puppy? We have 10 year old Airedale who is now getting slow and creaky - bit like her owner! Saw in an earlier post that you checked your prognosis on a web site - which one? Is it easy to get into? Hope you are now OK after your high temp scare.

Well, that will do for now, better do some work!

No doubt will come back later or tomorrow

Julia
XXXXXX

795

Hi all

Has anyone noticed that they have short temper on this. To explain we have large grassed area out the back door which ahas been communial it has small hills on each corner and on one there were two trees planted over the past 24 years Ive been here kids have always played football there and one neighbour in particular always complained (they dont have kids) but yesterday to everyones horror they came and cut them down i was crying as was my nieghbour all those wonderful memories of they kids climbing the trees gone. I called local council and also my councillor who got back to me today he said that one of the trees was dying and dur to the complaint they decided to cut both tress down iam furious as it was large maple tree and beautiful there were also 2 magpies that nest in that tre every year. He said it was to stop the kids playing football when I told my boys there are more determined to play there so I think that this is going to back fire on her. She has made a lot of enemies here now especially amongst the kids who I have a funny feeling will make her life hell.

Even the coucillor said it was un called for but the powers that be won again NOT.

Sorry rant over but this has got my back up and Iam going out to buy more trees to replant them.

Joanne

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Hi Girlies,

well thankfully no.4 out of the way but boy what a horrible night woke at 1.a.m. feeling really sick and retching then the got the trots and was like this until 4.30a.m. and gave up and phoned the hospital and was told to take back up tablets too. Still feeling quite nauseous today hope it goes away as do not feel like eating or drinking! I was told my immune is really low being 1.1 so borderline to be done and I am wondering if that has had any effect on my side effects being worse this time. Still as has been mentioned no real way of building the immune up. This is all so frustrating isn’t it.

Yeah Lily things do all happen at the same time we dropt something on our worktop in the kitchen and dug a big hole in it and the same week my washing maching broke and so did my dishwasher aghhhhh good job my cook (O/H) didn’t break down too!

Thinking of you all.

Bev x

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Oh and Joanne you are absolutely right to be incensed by miserable people you rant all you like!!

Bev

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Lily: Sorry just watched comedy last night… big band theory on freeview, being a geek it makes me laugh cause I know too many people like that :wink:

Not bothering about back pain (or any pain) unless it sticks around. Had a good chat with my consultant surgeon about that and he said to contact them if any pain is round for more than a week or 2, these are certainly chemo pains and post surgery pains (the someone thumped me in the armpit feeling since surgery… no lumps or swelling, I think it’s just nerves rebuilding).

Joanne: Short temper… yeah I’m terrible for that. OH slept badly last night and I get ratty on the steroids so we walked seperatly a bit this morning so as not to just attack each other which we rarely do.

I think you should go demand some of the maple wood so you can get it carved into something as a keepsake. It is sad… demand that they replace them too, rant about how trees absorb carbon dioxide and how they evidently don’t care about the environment… go march on the council… ooops sorry I did mention the steroids right :wink:

Bevy: 4 hit me like a rock, sorry hun, I really hope you ride it out fast. As you know I don’t buy the “can’t do anything about it” line they feed us, just because the oncs don’t know how does not make it so. Although I haven’t been doing the manuka recently, the chicken soup and brazil nuts seem to have been working as my neuts last time were a good 8.7 which is again higher than started so woohoo.

Here’s what I just passed on to my cousin who’s got a cold but getting married on Sat (I’m not going, I’m not getting myself hospitalised at the last hurdle… she understands):

"Eat 2 brazil nuts every day (1 morning and 1 at lunch time), wash hands with antibac, steam face to clear bacteria in nose and drink hot water with lemon & honey (ideally manuka), whisky optional (but I like it :wink:

Eat proper home made chicken soup, chicken stock made from the whole bird contains a vitamin called argenine which is basically immune system builder, it’s the bit that saves you in 2 days. I like to make minestrone soup with home made chicken stock. But the stock must have had the carcass boiled or there’s no goodness to it"

Nicky: TeamBC leader… how you doing? My hair is also fine and fluffy and really pale blonde, like when I was a toddler gulp. I’m just determined to stay in a good mood and not go down the rabbit hole proper this time so it was a big bowl of porridge for breakfast and the healthiest loaded with veggies and lentils soup coming up… yum (Sorry Bevy, no more talk of food).

Lots of love to you all, gotta rescue soup now and do some work after housework this am (steroids again)

799

Hi,
not sure what happened to my second buzzy day, just went flop for no apparent reason and started feeling a bit sorry for myself. I think it is because I can feel my eyes starting to go and thinking about another treatment on Tuesday. It is hard to keep up with the first effects coming and then steadying yourself for the next one, when the side effects cross over. Don’t know about anyone else on CMF but I am finding it hard to predict how I will be and that makes it hard to plan good things to do. Might just be me. Joanne I would have stomped over there if I had seen the trees, yes. Idiots. Are you feeling better with the dose going in slower? You sound better apart from the upset with the trees.
Julia, I was reading your stats and hope you get more joy from understanding them. Is it just me, I can’t understand how it is ductal in situ, if it is in a node. I thought that meant it was invasive as had gone elsewhere, or am I confused? I don’t mean to worry you more by saying that. Sorry the neuts are low, mine have been fine right through but others have felt low when they dropped. I am not working at all so maybe that helps as your body has less to do. I am having naps on CMf quite a lot. You take care and don’t work with those low neuts or you will be in the firing line for anything about and struggle to recover, get signed off or the next one will be tricky too. Not sure what they do if you need a gap between the first and second half, do you know? Anyway take care of yourself, we have a lot going round our bodies right now.
Bevy, how annoying to do so many things! Hope you pick up soon, and not just the pieces of china. LOL
Angie, glad you had a good laugh last night, much better for the neuts. nice to see they are up again. Why can’t you go to the service and sit away from anyone ill? Or is it because you won’t be up to it? Seems a shame to miss her big day. Hope your big eating plan keeps you out the rabbit hole. well done again for getting to the last dose, just keep battling that tide to the shore.
Two people came to visit me today on day 2 after chemo and I had to make them both tea and wait on them!! I did point this out to them, my Mum and Daughter !! Both chuckled, do you think I am putting on too good a performance? My daughter then made me a nice big banana cake to eat. Funny day, you could make me laugh or cry so easily, fortunately all laughter but still feel a bit sad. Still trying to work out why, probably the obvious. Going out tomorrow for the day as obviously need a diversion!!
Hugs to all of you, and CMFers keep battling round our marathon course. Everyone else hope you keep improving. Anyone having fun out there, do let us know, to cheer us up
Hugs
Lily x

800

I was really tempted to go to the wedding but it’s a long drive and I have to try and be selfish and just finish this. I will see her later. I thought about it long and hard and realised that there’s going to be loads of people there so I’d drive 3 hours there and back and hardly see her but pick up on all the stress etc. As luck would have it poor love has a stinking cold as does soon to be hubby etc so it realy would be kiss of death (figuratively not literally I hope).

I’m going to see her afterwards and then we can chat about the big day which’ll be much more fun than 5 mins with her on the day, everyone noting the chemo induced cousin and her feeling guilty 'cause I’m laid up with her cold.

God such a logic head aren’t I :wink:

PS: Don’t know it any of you use face book but Tommy and I have started the photo journal of the recovery from fec on flickr. Made my mum cry though, but then she just bought a camper van so I can see family envoys occuring… don’t tell Tommy yet :wink:

If you want to see the revoery from FEC as per us then google for

flickR tommymartin