If so I can save you from the center of Carlise and the M6 if so which is the real drag part of it… There’s a parallel road which is known as the DurDar road (goes past the race course) and it’s a good old very straight roman road so you can bomb up it at 60 MPH and hardly see another car… unlike the M6. And it brings you out west of Carlisle so you just nip around to the infirmary… I take it you found the car park that’s near radiotherapy as the other one’s always full.
Just realised A595 will be much fast from there anyway. Hope the rads don’t floor you too much. I think you’ll be finished before I’m up there for my planning session but if I get a date soon I’ll let you know so we can maybe meet if timings right. Otherwise we’ll just have to stick to the champers plan later
Dont hit the M6 and just come through the A595 straightinto carlisel then nip through an estate at at hospital! Just dump my car anywhere to be honest (have my dads parking permit so wont cost me a fortune for the next 3 weeks) but have used the other car park too when I went tot he look good feel good session!. Have been on the Durdar road a bit though for some events at racecourse, nice and peaceful!!
Did you ask them about Aloe Vera gel… do ask tomorrow if not as I’ve heard it’s great to stop the burning sensation. Sure works on sunburn and it’s not disimilar. So are you working during the next 3 weeks too? If so take it easy I’ve heard it can get tiring so maybe have a flask of really really strong coffee in the car I know how the views on those roads can lull you to sleep (they do me)
Its been about 5 weeks since my last epi and hair started growing in almost immediately think iam one of the lucky ones was sitting in the pub few weeks ago with shortish skirt on inviting everyone to feel my stuble i was so pleased had to shve my kegs few time since then with great delight as it used to be a chore before. Hair on my head is about half inch now and seems thicker everyday. wgere is all this curly hair iam suppose to have its just a straight as before but not complaining it came in white at first then alsorst of colours so i took the plunge last week and dyed it blond again and thank god it didnt fall out it actually looks good. I only wear my wig when i have got my full warpaint on as I look like a man i drag without it but prefer to go au natuale.
To lly and julia hope everything went ok today keep me posted my chemo is going ahead tomorrow but changed a few things again will let you know how it goes.
Angie sorry your having a bad time of it at the moment ive never been really bothered with my mouth apart from the first epi but taste and everythings been ok hope yours imroves.
Hi,
well that is 6 out of 8 finished or on Joanne’s system 8 out of 12. Can’t muster a cheer yet, maybe next time! It went really well the best ever for no side effects and didn’t even feel the stab of the port being accessed so that was fab. So something had to go pear shaped! The pharmacy had ‘a problem’ and no drugs arrived! So I sat for 2 1/2 hours in the unit with a needle in my chest waiting and waiting and waiting. sentOH to race round to find some food I could eat as curry was on the menu - I don’t think so, not with the trots from one tiny tomato. Had my lovely breakfast first though. I got a bit militant, but not grouchy and just stood up next to my drip. I think they thopught I might do a runner so was fussed and seen soon after. I think they thought I might do ’ a Beryl’ this lovely olde lady I chatted to. they kept here waiting for hours and she was dependent on a volunteer driver. She just pulled the cannula out and walked off bleeding all over the floor! I missed it but heard from a friend. Well Joanne and Julia I hope you were declared fit for the next one and get on ok this time. I had the craziest thing with my neutrofils. They were 3.4 when taken on the day beforethe first half of this dose. When I went back today for the second half they have gone up to 5.2. How wierd is that? I have long thought that my neuts don’t do the regular timed dips. Anyway that means that I am low risk should I get shingles so good old neuts.
Thanks everyone for the info about rads, just starting to think about them so I am informed when I go for my chat. Might look on the net for more on these boosters, good and bad points. Lisa have you started yours or are you about to? Hope you and Angie manage to meet!! How are you both feeling? Joanne good luck tomorrow. Nicky thanks for that info too, love the run and leave you to fry!! I might scream. The Letrozole sounds impressive, I know nothing about that either but will pick your brains when I get to that point as clearly a critical decision. So useful to have friends in the know. Was the secondaries day a local or regional event? I would love to go to something like that to pick up info or listen to talks.
Hi to everyone else, hope you are ok this week, especially my fellow TACTers climbing back out the bunker. Kirsty good luck for the next, you must eat bland stuff to protect your stomach lining,try to force yourself to have a litle and often
Hugs all round
Lily x
ok you right I got into trouble from my onc yesterday by saying iam on number 7 apparently iam on 1 of number 6 lol So i apologise
Any way got my chemo at 1.30 and seriously not looking forward to it my stomach is coming out in sypathy already I feel so great just now first on a long long time even finished my daughters bedroom. But the thought that this is giong to knock me for 6 again does my head in. I think its great how your all oping and I feel such a wimp but I hate being sick and avoid anything that makes me sick like the plaque.
Sorry for whinging again but fingers cross this ones better.
Keep being positive if you can - so much easier said than done I know. Angie - I’m sure you’re on the chicken soup and mushrooms so hope neuts pick up, mouth etc clears up and you can now see the very bright light at the end of the tunnel. Joanne, Lily and Kirsty (I think - sorry if I’m wrong) Hope you all don’t feel too grot after this dose, at least it is a step in the right direction although it must feel awful at the time, tick another one off.
Have just read the very sad news about Paula so a bit out of sorts with this bl**dy disease, what a tragic waste of a young life.
Will catch up again.
take care all who read and add to this HUGE thread
Nicky xx
Sob, B*gger, blast, damn etc (forum rules forbid me to say what I mean but you know). Why won’t this disease ever give someone a f***ing break.
I noticed Paula hadn’t posted since end of Aug but didn’t want to point it out because I feared the worst therfore. Still it’s probably not so bad to have a good cry and get it out of the system but I was really really hoping that she’d be lucky. It’s just relentless isn’t it.
Stay strong Ladies… not like you have a choice but as snow patrol says in the song Run (I warn you we can’t listen to it without tears)
Light up, light up
As if you have a choice
Even if you cannot hear my voice
I’ll be right beside you dear
Hi,
yup I too had a cry for our lovely friend. I was being kept in touch so had the saddest feeling but hoped for a miracle with the last treatment. That is the second Paula that has gone in under two months for me and both with so much to go on for and deserving so much more. I asked my research nurse about this as it has unsettled me and my daughters who knew the other lady. She said the secondaries would have been there right from the start to go so quickly. I just mention that as it may bring some relief to any of you now feeling scared and anxious. There is a big question hanging over these hospitals that don’t do routine scans I think. I also heard today that a lovely young man who got testicular cancer at 20 with the obvious surgery he had and loss of fertility now has a big lump 9 years later.
This has been such a sad day.
hope everyone ok. I am fine after last dose.
Hugs
Lily x
Hi all: Have had a quick browse along all the messages and will try to do a catch up.
Lily: Hope you are OK, I had part 2 of 6 yesterday and was in and out in 25 mins! Must be a record. I’m fine – had day off yesterday by am back at work today and for rest of week. Just got the bloody three a day pills to cope with for another week – its so boring getting the timing right. Neuts were OK – back to 4.2 – the chicken soup does work. Have also tried the manuka with lemon at night – not sure it helps the neuts but does make me sleep well. Find the CMF better than epi in that it doesn’t destroy my taste buds. Have cut the alcohol way back – one glass then OH has the rest!
Only problem am getting really bad-tempered and poor old OH catches it every time! Will just have to keep apologising and being nice when I am in a good mood. We can’t blame everything on the bloody poison.
Joanne: Lucky you with hair – its 8 weeks since my last epi and still have bum-fluff on my head and some on my legs. Come on hair, get moving! Hope you were OK this week. Re puppy – have you tried wrapping old fashioned ticking clock in jumper for puppy to cuddle up to – sounds like mummy apparently!
Bevy52 – re your arm – I’m still number yet slightly tingly at edges of surgery area under arm and around shoulder. My op was on 10 March – not sure the feeling will ever come back properly.
Vertangie: Lily and Joanne (?) are on the trial but I am on standard treatment. I think the arm of trial that Lily ended up with was the standard route. V. boring!
Kirsty40: Sounds like hell! You poor thing. It is hard to believe all this is supposed to me making us better. Hope you are feeling better now and the next dose does not knock you out again.
Nicky: thanks for the hints re keeping message, Lucy (facilitator) suggested typing it in word and then cut and paste. Am trying that today so we will see how it goes.
During conversation with the guy I work for this morning – he was doing a How is it going chat – I said that working here has been a God-send to me as it has kept my mind off the disease and the treatment. I always work on the assumption that if they are not complaining then they are probably happy. I intend to keep going here as long as they need me and it works OK for me.
Am going to do some work now, but will keeping looking at what you are all saying.
had some wonderful news today. was dreading seeing oncologist because of the thought of more chemo. but he said for the moment he was leaving the chemo and rads and i could just take the tamoxefan and bone strengthening tablets. and save the chemo for later date if needed.
i was so happy, i told him he was a very nice man. forgive me if i seem insensitive to others who are still going through chemo, i really feel for you and hope that soon you will have a break too.,
it seems the secondaries in my bones have stabilised for the time being. which is encouraging. all of you who are still going through chemo, just think you will feel so elated too when its over.
Hi,
Lisa you have been worried about your back right through, did they never actually do any checks on it. Sorry I can’t remember back to what happened. If not have you actually asked for a scan, I can’t believe they would refuse you and if they did you can go through the GP and ask him/her as though it was a normal patient’s request. Someone else I know has done that and got x rays. If yours had been one of those really aggressive ones and had not responded, to be horribly blunt we would not be having this talk. I hate to say that, but don’t know how else to ease your panic. I won’t even scare you with the speed it took the other poor lady.That has frightened the life out of me since hearing.
Joanne hugs mate, hope you got the dose as planned and take it easy, too much of a shock to us all.
Julia -glad yours went so well. I was wondering how you were so quick but remembered you have the C by tablets and M is such a tiny tot, people take it for rheumatoid arthritis and psorisis too. Glad the neuts were up for you too and take it easy at work. I am being a slug as usual.
Hugs all round everyone and pleae talk if you want to, don’t sit alone and worry
Lily x x
Thanks Lily, no what you are saying is true. Back seems worse at work and never bad enough for pills, think its my paranio, hope so anyhow, once the zapping is done I’ll be going for an xray whether they like it or not! Presume other boob ok otherwise would have shown up on CT scan in planning for rads! Well onto the next stage, just to let you know ever for a wuss like me rads aint too bad, mind you only had first zapping today!, mind you didnt appreciate the fact that the took a close uup picture of my face just for their records, ratty ejoyed it thought, thought it might get a zapping but no such luck! Wedding went well in the end, nice to catch upHope the decorating is going well and you are feeling a bit bette!!!
Everyday matters - glad you are having a break from chemo - enjoy
xx
