Been so busy this week. cant resist a few coffees with friends (even though i have now gone to 13 stone) i am really concerned about this weight thing. and then oncologist was so kind to tell me i will probably put some more on with tamoxifen. aghhhhhhhhhhhhhhh! i have been on the tamoxifen for over a week now, dont seem to have side effects, just perhaps a little touchy. and would get upset easily i think.
lily 2000 the port thing sounds horrid, you brave girl. you seem to be really going through it at moment.
hope dogs settled, you dont need anymore sleepless nights. how nice to collect all the rings from the family. i cant remember if you have daughters to pass them down to eventually. You must have lost some weight not being able to eat, have you weighed yourself lately, or have you removed the scales from the house. mine our broke (thank god) i probably broke them!
Nicky 08
hope you ok, have a good weekend.
everyone have a peaceful weekend, take time to enjoy the moment.
Have a lovely weekend - Im off to bed early for a change. Went for rads today and had lots of aches and pains before hand and came out and was totally exhausted, trust it to be the day I drive myself. Went into Carlilse and wanted something that fits for the rugby tomorrow and nothing was getting round my additional weight and lopsiededness, I took one look at myself in mirror (which I try to avoid where possible) and burst into tears, its just so far awy from what I used to look like, bloody ratty changes me so much as does the no lashes but never mind, looking forward to Old Trafford tomorrow, think half of our town is stopping in the hotel, Ive been going for a few years now and watched a little local time as long as I can remember, see Im such a lady, not!!
Lisa - have a great time, hope your aches don’t cause too many problems and you’re not too tired after rads - take it easy but enjoy the vino! I’m sure they’ll be some flowing over the weekend. I know what you mean about how you look. Everyone says how well I look, and I have to admit I don’t look as bad as I thought I would, but it’s still not ME. Can’t wait to ditch the wig but will have the dilemma at some point when the hair has grown a reasonable amount as to when you go commando! Too much hair under a wig will not be comfortable but I don’t want to scare anyone with my crew cut when it gets there.
Lily - hope the trots don’t lay you low, I’m still suffering on and off, one day I think I’m all sorted and then the next I know I’m not!
I don’t have much to add at the moment. Fairly normal stuff going on with a huge list (for hubby!) of things that need doing this weekend. We have some friends coming round for a meal tonight, the first time I’ve done any entertaining since my dx! They have been very supportive of me and OH and it will be nice to ‘pay them back’ for the evenings they invited us round when I was dx. I’ve decided I must go shopping next week for shortsleeved tops. I’ve just checked what I’ve got and there’s not nearly enough to deal with impending menopause. I’m just hoping Dr Angie is right that it won’t be as bad this time round as my body might be used to it. But, good Boy Scout that I am I will be prepared. Have now started the Femara (hospital pharmacy didn’t have any, neither did local chemist so had to wait a day to start them) and am waiting to see if I get any of the long list of possible side effects. I always seem to get the rare ones so my GP never believes me if I report them but I do point out that if they are listed then they must happen to someone! I’ll be keeping an eye on my blood pressure as it went up on Tamoxifen (Lorraine - it may be worth you checking yours occasionally as well). There’s always something else that you have to get checked or sorted isn’t there? Anyway, better get on with my part of the list and get baking a cheesecake for later - may as well just smear it on my tummy as that’s where it will end up!
Take care everyone and have a good weekend
Nicky enjoy your evening it is so nice when we can get back to doing something bordering on normal. Cheescake is my favourite.
Lily hope your digestive system is behaving itself and so sorry you have had such a horrible time with the port business sounds horrendous you poor love but hang on in there it will all be over with one day (that is what I have to keep saying I am so weary of feeling ill all the time and exhausted)
Lisa I know what you mean about not wanting to look in the mirror I just hate the person I have become physically and mentally and not sure who I will be at the end of all of this just hope there is enough of me left to salvage. I think all the bloody chemicals we have in our systems sadly bring us down mentally and that is very hard to fight against.
I had some good news today a neighbour of mine had been recalled from a mammogram and thankfully for her it was a cyst that could be dealt with she felt terrible telling me but I was greatly relieved for her but told her to insist on a yearly mammogram as I had a cyst in exactly the same place my cancer was so it makes me suspicious that damaged cells could be a pre-cursor for the cancer.
I am so fed up that this should be my good weekend as my 5th Chemo is next Wed and yet I feel terrible so tired and just checked and I have a temp too so goodness only knows what is going on now just hope it goes away.
Cheescake… yum please Nicky. Hope the femara suits you well.
Lorraine: Glad your still out there. I know what stupid computer can be like. Mine had a new drive fitted last week and all is well again… phew.
Lily: I’ve got 2 pics for you soon, 1 when the steroids hit be at their worst and one from yesterday, it’s like I lost 10 pounds and a couple of them were on my face. I hear Maldon’s lovely… added it to my list of places to go.
Lisa: Have fun in old trafford and don’t worry about the weight and lopsidedness, you’ll feel a bit better when the rads are over and the hair’s coming back I’m sure, at least that’s what I’m telling myself
Bevy: Great about the neighbour. Don’t worry about being knocked out with no5. I know it’s a real **** right now, and I’m afraid to say for me 6 is taking ages to let go of me too, usually I have mouth trouble from days 7 to 14ish but this time it’s days 7 to now and the 3 week cycle ends tuesday so basically it’s dragging me down for a whole extra week this time… grrr. hopefully next week will be better. Just think in 4 weeks it should be mostly over for you. I say mostly as revocering from this is going to take some time (and effort). I’ve started my new improved diet and had a good dose of very live yogurt today. I know it’s a few days early but let the chemo diet police try and catch me (I can run BTW
Hi everyone,
Angie, I think we would have a problem casting the part of Shaggy.LOL.If you stuck all our hair together we might just about do it. Glad to hear you are reasonable and hope the final effects go soon. Brave stuff with the yoghurt, but I bet your tum will love it. Lorraine, so what about the weight. We love you just how you are and I am not mentioning how much I weigh but it is increasing despite not eating certain foods. Or perhaps my gluttony in the final week when I can eat most things counteracts the ‘good’ done in the earlier weeks of just carbs. I have 3 daughters and a son, so plenty of family to share all the treasures round and hopefully most will pass down the family beyond them. I am ok no dat yet so will put off that concern. i wonder if I could beg for an anaestetic!!! That would mean another cannula in the hand though and they burst 2 veins witjh my lumpectomy and then had to gas me to sleep. Swings and roundabouts as it takes a long time for me to shake off the drugs, especially morphine. Lisa so sorry you are not happy with looking in the mirror. I know how you feel, except more resigned to it as older than you. I have a real fat flat steroid face and everyone asked me why my eyes were so small and closed up today. Boo hoo. I have slight hair loss of the original longer hairs on this chemo but the new growth is over an inch but so flat to my head I still need to cover it. I am planning to dye it next week when I get to sainsburys for an organic dye and foolishly hoping that covering the grey bits will make a difference. Keep your chin up and hope the big day out will take your mind off it all. You will throw ratty away before too long promise. Nicky, hmmm cheesecake on the tummy is that a Basingstoke thing? Hope you have a nice evening and I can’t believe you still have things going on so long after chemo. I am hoping to be really good for Christmas dinner and 3 puddings every day to make up for lost time recently. My tummy survived a chinese to celebrate my daughter’s birthday so will have to watch it does not swing the other way now! I have promised myself that when I finish the treatment I will never talk about Poooooo again. I used to be able to talk about much bigger things.LOL. Good luck with the femara and I hope you don’t suffer side effects on it. I too am wondering about when to go commando, trying the hair dye first. I am going bareheaded in home infront of the immediate family now to get used to it. Might wear hats out all this winter though as my head is frozen most of the time. Bev sorry to hear about the temperature, keep an eye on it. By the way does anyone know if we should be getting the flu jab this year as they say it will ‘kill young people’ too? My hubby works in London so brings bugs home, more overseas visitors there. Intersting about the cyst Bev, we don’t really know do we? Hope it blows over and you are ok.
Well the boss decided not to pay me any more, said it would set a precedent. The letter sounded sympathetic but no go! I found out that my teaching union has e benevolent fund so will contact them next and see what help they offer. I have to pay every year so worth a try. My eyes are drip drip drip, so annoying. I get them teste don Monaday, so not sure how I will survive the glaucome puff in the eye, which normally makes me teary for hours, dripping away. I think I may have to get some cheap £1 glasses to see me through chemo. The CMF is changing my eyes a lot. I can now drive without glasses and see long distances but struggling to reaf small print unless I hold it away. The complete opposite of before. Weird.
Hugs everyone
Lily x x
fact: 1 litre of water = 1 kilo, so even the saline adds a kilo each dose, plus muscle weighs more than fat. It’s starting to look like I’ve actually got fitter over the last 4 months. the constant bowling ball has been incentive to keep walking but now the dex is properly wearing off and so is the desire for lots of creamy things I’ve notice the love handles aren’t as strong as before and my tummy was actually getting more defined under all that flab… or was it just water… god knows I was drinking lots and always felt parched so that explains it doesn’t it . so don’t worry just yet lilly, make no judegements until at least a month after chemo’s finished.
But I am still flabby but hey it’s 3 weeks since last dose on Ruesday so I’m not even technically finished yet right?
Angie how wonderful your last does this week! hope it all goes well. I am counting down the days to my last chemo 29th Oct! all being well and I don’t have any hitches.
Thankfully I feel a bit better today so cross that this is supposed to be my good weekend and I have felt so awful. The temp has been fluctuating from 36.6 to 37.99 so really confusing. I have just rested and drank lots of fluids as I have my bloods taken tomorrow and feel anxious that the immune system must be down chicken soup for my lunch!
Lily I was thinking whether we would be eligible to have the flue jab this year I see my oncologist tomorrow so will ask him. We may have to get over the chemo completely before we can have it.So sorry to hear you are having a grotty time hope things pick up for you.
hope everyone else is o.k. and thinking of you all.
Hi,
Bev I am fighting!! fit now, so no worries here just have to constantly watch what I eat on CMF. It seems to target my tummy and eyes too. Will be funny to see what the optician makes of my total eye turn around, will test if she/he know their stuff. I will be very interested to hear what your onc says about the flu jab and could you find out for me whether it applies to all people on chemo or just you. My immune system is supposed to be high so I hope it will protect me even if I don’t have the jab. Can I face another jab? I would expect your bloods to show up the infection and temp. Good luck that they are good enough to have the next. Do you realise that you will finish before Joanne, Julia and I, you lucky thing. I started on 20 May.Grrrrrrrrrrrrrrrrrrrr. Pleased for you though as you have had a lot of poorly spells and need a good break!
Angie thanks, I will put it all down to fluid retention but think I might be disappointed if I count on it. LOL. If we could swim I would be going all the time but just settling for I’ll do that later. I have really put everything else on hold while I deal with my cancer and hope my life changes will help my body to focus on fighting off the alien invader, who knows. At the end of this big run of surgery, chemo, rads and years of tablets I intend to have no regrets to beat myself up about. Anything after that will be out of my control. I have read that weight is looking like being indicated in some recurrences, so will start to focus on that when I move to rads. Always putting it off!
It is pouring here today, hope it is dry with you all
Lily x
Hi guys - what a yukky weekend. Faint glimmers of sunshine but also loads of rain. Still managed the walk to the pub, couple of glasses of wine, now back home to sort the dinner. At least it was better than staying in all day. Had a really good weekend with various friends so there is life after all the chemo cr@p. However, as you’ve all read, the last one seems to take an age to get over - well, for me and Angie anyway. Feel human now and looking forward to regular work rather than a few days here and there between appts and also less hospital appts - I feel as if I’ve lived there over the past week or so.
Bev - hope FEC 5 isn’t too hard on you next week and it goes ahead. It really gets to be a struggle now to be positive but you will be done soon and get a bit more of yourself back. As you say - what will we all be like when finished? I can only say that I live for the day, put the cr@p to the back of my head and do as much as possible the things I enjoy.
Lily - I hope you are still doing OK, when’s the next dose, can’t remember with this different regime you are on. I’d love it that any weight gain is fluid but some how I don’t think so! I definitely couldn’t think of sorting it out until out of the chemo woods. Just keep your head down, charge forward and finish this damn bit, then work out what you want and need to do. And don’t beat yourself up about any of this, it’s really not worth it.
Angie - woohoo - live yogurt - live dangerously! I must admit it’s been a constant with me since last Monday when I’d cleared the 3 week barrier and needed something to help with the antibiotics effects. With the risk of being beaten up by the remaining chemo girls it is nice not to have to worry about what you can and can’t it - so sorry all you lovelies still going through hell.
Take care everyone on this thread, must dash otherwise the family go hungry tonight.
i know i shouldnt worry about weight thing, but ive been told i need to keep an eye on it because of the secondary in the bones, but if im honest im more bothered about what i look like. it just seems to have appeared over night! i dont know if you can get a chemo belly, but i have one or maybe two. i was telling myself i would deal with it after chemo, but i still have no inclination. i think im just going to focus on trying to do more walking and being active and hopefully a miracle will happen,
Bet you enjoyed the chinese after watching everything youve been eating. we go to one of those buffet ones, but you really pig out because its all in for a certain price. after keep that treat for birthdays. hope you dont suffer to much on next treatment, i will be thinking of you. take care.x
Nicky 08
Wow, entertaining, you must be feeling better, but it is so nice too be able to show our appreciation to our friends. ive never made home made cheescake, just buy a frozen one or packet mix. you must be a good hostess. i like watching that programme on tv. when a group of people take turns to cook a meal, and then give marks out of ten, i always think it must be awful if you cant face eating what someone has prepared. bit like when my son brings his cooking home from school, i try hard to be the perfect mum,but sometimes i just make an excuse, such as im not hungry. ( as if hed believe that)
thanks for the advice on b.pressure im already on medication for that,so i will watch. my pain problem on it seems to be how its affecting my mood. i hope you get on alright with your new meds.
lisaf
my computers still playing up, hard drive to expensive for me at moment. i will have to hope hubbys feeling generous at christmas. hope you not feeling so tired this week. its best just to go with it when we get days like that. they do pass.
Hi,
popping in early today and will check back in later. Nicky I am on my fab fab week and out and about making the most of it as chemo on the next 2 Tuesdays. Not looking forward to it, as the side effects are accumulating I think. The second one really gets my stomach and eyes. Head down and charge straight for the hospital canteen for a big fry up each time.LOL . It has changed how I feel about going though as I have a nice bit first. I am not bothered at all really, just a glimmer of angst as they stab my chest but my little beetle is so near the surface of my chest, they would have to be an idiot to miss it! Then as soon as the piriton goes in, I pass out and snore till the end. My daughter is coming for the next one. I wasn’t sure whether to say yes but she is pushing to come and worries, so hope the reality is better then her imagination. Her little dog looks like it has cancer and fading fast and she will be distraught so hope it is not all too much for her. Trouble is you have to be all jolly and brave with the kids. Glad you had a good, social weekend. I hope to do that when I can face more cooking. Just had a bet with hubby and he lost, so he is loading the dishwasher for 2 days.LOL. Are you able to work apart from treatment days now? So glad you are human again.LOL No more alien talk or mad typing errors then???
Lorraine, hi how are you doing? Has the shop closed now? such a shame. I think I have a wall of chemo belly.LOL It is from the bloat I think and no muscles to pull it back in. Might be magic knickers, of Bridget Jones’ size from now on!! The chinese was yum and it didn’t fight back which was a relief. Sorry you don’t like what you see in the mirror, me too. I have such a flat, fat, pale steroid face from having 2 weeks of steroids. I have lost some confidence and try to avoid seeing people I have not seen while on chemo.
Will talk more later
Lily x
Just nipped in, hope you all had a nice as possible weekend. I had a very wet one and discovered the rat doesnt like the rain, i was literally a drowned rat and people we still wiping water off my face an hour later, drip,drip!!!
Good luck to all doing chemo this week - will pop in later, off to walk the mut (who didnt enjoy his kennel stay), make some tea and have a large wine and catch up on X Factor, before the dreaded diet tomorrow, think Im gonna roll off the rads table if I put anymore weight on!!!
xxxx
had bloods done today and then met my onc. later on thankfully the bloods were o.k. for me to have chemo on Wed (WHAT AM I SAYING!!) but I just want to crack on and get it over with. He did suggest he could lower the dosage for the last two as I have been pretty wrecked but I don’t really want to do that as I would worry in case it wasn’t going to be so effective. Lily I asked him about the flu jab and he thought I should have one just before my last chemo session so I will organise that with my GP he said so long as my immune system is on the up (being just before the chemo session) then my body will cope with the flu jab and then I will be protected. So ask your GP to have it done too so long as you are up for it.
He then went on to tell me about rads and tamoxifen and get the impression I am going to be a fat whiskered lopsided bald bird! really attractive but if it means kicking this horrible cancer into touch I will live with that.
Nicky thanks for the encouragement! I will grit my teeth and get on with it nearly there thank goodness (sorry guys for all you still facing a lot more treatments}
thinking of you all and thank you all for the continued support and information.
Hi,
thanks for that Bev, really helpful. I am justa little concerned as occasionally people have a reaction to the jab and wouldn’t want to walk straight into chemo if feeling yuk. I will have to ask because the double doses make timing tricky. Well done for getting the old blood counts up, very impressive. What do you put it down to? Oh heck, what is going to make me bald? I thought we had done that bit! Fat and whiskers, well familiar friends. I feel really fluffy since finishing epi as hair is sprouting everywhere but at different speeds. Lots of love for Wed and a big hug for the penultimate one.
Lisa glad you enjoyed the rugby but the weather, diabolical. has ratty recovered from the soaking? Laughed at the rolling bit, we are twinning again, but what is the dreaded diet about? Hope you recorded both x factor days or you will be lost next Saturday.
We were caught in the rain too, absolutely bucketing down and we were at my eldest daughter’s putting a new floor in - not me, I just go along to chat. Anyway we went off to Sainsbury to check out the organic hair dyes and picked a copper colour. I plan to dye it when slightly longer, or may ask my mobile hairdresser to come round. Also picked up my son from his new job.When we left it was falling out the sky and realised I now had two 6 foot plusers to fit in my 2 front seats and a baby back bench seat car. We drew straws but decided hubby was not able to limbo in or out the back and I said my car I’m driving, so my son had to origami himself into the back! The car was about 20 feet away with a waterfall coming out of the sky between us.LOL. I bleeped the car and boot to open them from the house and my son sprinted off to get in the back as fast as possible. But he found that I had left the driver’s seat right back and couldn’t get in the back so dived into the driver’s seat. Hubby mistook this for his signal to go next but when he got there found the boot was not open. Son is by now totally mesmerised by his latest downloaded cd at deafening volume and has crawled into the back and oblivious to anything, particularly his Father shouting through the glass ’ for crying out load, open the boot!!'. The rest of us were laughing our heads off from the doorway. I bleeped the boot again and eventually he let go of the button so it worked. Derrh. We were all splitting our sides when he found one of his pieces of wood was too long so he had to shut the boot and run back to the house again!! LOL very loud! He was dripping off his nose, his head, everything and he was blind as a bat with his glasses wrecked too. Had another good chuckle as he ran off again to get in and then followed in my waterproof jacket and hood. You probably have to know him to realise quite how funny it was for him to be running ( he doesn’t do sport) and getting absolutely drowned. Hope it has pushed my neuts up. We had a holiday in Ibiza a few years ago and there was a tropical storm and the streets there flood in minutes, really deep. We were at a water park but he doesn’t swim so was watching with my brother (I don’t do sports either). The girls went off ahead with their friends and left me with hubby, brother and son. My brother refused to move and said I am staying here in a cafe, it’s safer so we left him behind. When the water reached all the electricity points they were told they would be electrocuted and got moved out! We started walking and it was right up to our knees, right across the roads and pavements, just like walking down a river with manic car drivers speeding through it and causing tidal waves up our legs. My son and I were in swimming costumes and towels and they kept soaking the water up and falling down. I also had all our money, passports and the new camera so trying to wrap my bag in the towel. We had to keep stopping to wring the towels out. Hubby is the only one in clothes and his shoes, trousers, etc were all under water by now, but we were shivering as we had been swimming for hours. He is blind as a bat without his glasses and of course couldn’t see a thing with the rain pouring over them. (When he goes to the opticians and I say how did you get on, he says well I could see the light was on over the letters!) He then got all dramatic and said 'I can’t go on, I can’t see anything, just leave me here . Just leave me and I will find my own way back later. That’s how those 2 cope in emergencies! He had the last laugh as we were dragging him along by telling us that in those conditions, drain covers pop up and you can be sucked down the hole!! I I then had to walk like a snail, one foot at a time as terrified of falling down one.Amazing the storms there and then a couple of hours later it is sunny and the water has just vanished, no puddles, nothing.
Sorry went into story telling mode again. Hope you are all ok. Joanne and Kirsty where are you, hope you are not too yuk.
Hugs
Lily x
well it’s now been 3 weeks since the last dose but it still feels like week apart from the fact that the chemo brain is lifting and the hair is growing back, but to be honest I ache everywhere and it I hadn’t done chemo I’d think I have the flu but I know I don’t (I had really bad flu once and it comes on fast not like this slow drawn out thing).
Rads planning is on Thursday so going to go stock up on some M&S ready meals so at least we don’t have to cook/wash up every day when that starts.
But we did open that bottle of fizzy wine that was waiting for day 126 (6 x 21 days) so chemo for me is officially over, someone just needs to tell my body LOL
Hope you’re all coping OK and not too getting cold from getting soaked etc, stay warm and safe.
I won’t be doing the flu vaccine myself, I prefer the antibac, homeopathy and stay the hell away aproach but that’s another thing altogether not chemo related just personal choice.
Anyway going to jump in bath and see if it gets rid of the aches and pains, they keep moving so don’t think it’s anything sinister and I’m pretty sure the punched in armpit sensation that comes round every 3 weeks is chemo related, after all every 4 weeks… it’s gotta be hasn’t it.
Actually hoping that I don’t meet dr D on Thursday and have my 3 months touchy feely exam with Mr O (surgeon) next Friday and I do like him. Starting to think Oncs are some kind of witch doctor from some of the things people have said on here… just don’t read the thread called legs, no actually perhaps you all should
Spent my day rushing around yesterday so no chance to post on here, oh and started my pickled onions. We all love them and I’ve done them since leaving home (when my Mum used to do them) oh so many years ago.
I am due back to work as a continuous ‘thing’ now and hope I’m able to. After my last (final) chemo I thought I’d bounce back and be at work 10 days after as I had been between treatments but as you can see from Angie and my posts it has been a long haul. What with puffy hand (still, and no wedding ring boo hoo), antibiotics, icky stomach, numerous hospital visits including plastic surgeon it’s all been too much. Things should calm down now with a blood test every 4 weeks to make sure everything is OK for my bone strengtheners the following week. So 2 visits in a month won’t be too bad will it? I’m waiting for the hot flushes to set in so can’t say I’m looking forward to that. The old hair is definitely growing but is made of nothing that I can remember seeing before other than on an Action Man doll! So still covering up and wigging it like Lisa. Have yet to be caught in a downpour but I can imagine it wouldn’t soak up much! What with hardly any eyebrows there must have been nothing to stem the flow! I suffered yesterday with very drippy eyes (as Lily describes) when I went for a walk early in the day across our nearby common. I think all the dog walkers must have thought I was very upset as the tears were streaming down! They always wonder where my dog is anyway (I don’t have one) as do their dogs who look at me very suspiciously.
Trying to remember all the comments to reply to!
Lily - the cheesecake on the tummy bit is not a ritual of Basingstoke, as far as I know! I just thought I’d cut out the middle man as that’s here it will end up! As with Lisa I think the diet must begin! I had been OK for most of the treatments but by the end of it I have put on some weight so hence the walking and will be trying to be good with the food bit but I’m not going to beat myself up about it! Loved the stories about the rain. Sounds so much like home to me! Typical men, worried about a ‘little’ bit of rain! I hope you daughter finds hospital not as worrying as she thinks. My eldest wanted to come for at least one session and I think it helped her realise it’s not scary at all. Sorry about her pooch, it’s so sad when you lose a pet and I don’t know what’s worse, having to have them put down or they die of other causes. I know, I’ve been there - very sad and I had to get my ‘grief’ homeopathic remedies in!
Lisa - hope rads are going well, not too tired or sore. Hopefully you’re well on your way with them now, can’t remember how many you had overall but take it easy and look after yourself.
Angie - hope you are getting stronger all the time. I wonder if while going through chemo we make ourselves ‘strong’ and when it’s all over we collapse and can’t handle it? Or maybe it’s all the poison our bodies have been hit with?! After your comment about water retention I do think there’s something in that. Apart from my puffy hand (at least 2lbs!) my ankles have lovely marks left on them after taking my walking socks off, which I def didn’t used to get. Also I’m very achey but I also think it’s due to tension as well as the drugs. My shoulders are killing me so I may have to seek out some reflexology or something to help. Having had a CT scan I know there’s nothing sinister so I hope you can be re assured as well. Hope rads planning goes OK and you deal with the rads well. Maybe you’ll get to meet Lisa up there after all?
Bev - good luck this week. No 5 should be OK - I hope anyway. Do the usual and look after yourself and wallow in self pity like I used to do! Only one more after this one so there is an end to all of this rubbbish.
Lorraine - hope you are well and not having too many side effects from Tamoxifen, they may take a while to kick in if they are going to.
Julia, Kirsty and anyone else `I’ve not mentioned, hope all is well with you.
Take care all
Lily loved the story really made me laugh. Sorry if I concerned you that the hair would fall out yet again no I meant mine hasn’t began to grow back and so lumped that with all the things that could occur with radiotherapy and tamoxifen and was just picturing what a stunning figure I would be! aghhhhhhh!
Not looking forward to tomorrow but another one over with the Onc did suggest reducing the dosage for the last two but I was too worried that it may not be that effective and after having got this far just felt I should stick with it.
Oh I think my bloods being o.k. must be down to the daily chicken stock soup!! and taking spa iron supplement each day in a drink.
Well the weather reflects my mood, enough said. Nicky I reckon it is all just taking longer to leave the body this time, there is no way I’d have a dose today although OH did suggest that maybe the steroids mask any remaining side effects from the last round, reckon he’s onto something there as I feel about 30 years older today and everythings clicking and creaking. Woke up at 4am with twinges and couldn’t get conmfy and back to sleep for an hour which hasn’t helped my *perky* mood. I am feeling positive though. Positive those vampires aren’t coming anywhere near me for a while
Hope being back at work full time doesn’t knock you sideways too much. I found when I did a full on push the old grey cells (brain not skin I paid for it the following day like a really bad bout of PMT so if you do pull any long sessions make sure you have food that the old neuts like to pick you back up… speaking of which. I’m making soup .I evidently need it.
Nicky… just hit me like a brick… chemo is over and I can use homeopathy without fear of upsetting the onc now…
aching all over, mad moods, runny nose. It’s gelsemiumthat’s needed I’m certain of it: Fluey like symptoms from the mini materia medica:
“The remedy is known as the ‘glass coffin’ because although there is complete physical prostration, it is coupled with mental alertness, patient trembles, has aching muscles and heaviness, especially of the head and eyes”.
BINGO. I can barely keep my head up it feels so heavy and my eye lids are totally puffy and I did say I was lying awake last night while my body winged at me. Gelsemium and soup I say.
I’m so glad I can go back to my trusted helios kit. For 10 years I’ve used nothing but it (and contraceptive pills) and then wham, January came and that all changed.
Do you still use the remedies while of the bisphosphonates or do they frown upon that?
