Hey everyone, hope all as well as can be… just wanted to ask a few questions. I have the palb2 gene and I’ve been researching chemo regimes based on my histology on ChatGPT. It’s said I can avoid anthracycline (EC etc) chemo and go with taxane and platinum based chemo. All very technical but basically the side effects aren’t as bad. I haven’t seen my oncologist yet, I have my first consultation on Tuesday. I’m thinking of sending an email ahead of it to ask these questions. Has anyone been able to negotiate their treatment plan? I have no idea how it works… I’m stressing!!!
Hello @jnra
I can’t comment on your chemo choices, as I’ve managed to dodge it. I’m posting, because you say you been using ChatGPT. I’m an advocate for the internet but cautious about where the information is fed from.
ChatGPT is a clever way of searching the internet and interpreting it into a readable format. Just be careful what you read. It doesn’t normally give its sources, and I know from past experience (some course work) that sometimes the information doesn’t always make sense or accurate. And when I have questioned GPT about results, it simply says “my mistake” and try’s again.
It’s good that you intend to make a list and consult your medical professionals before making any decisions. I certainly questioned my treatment plan. No harm taking an interest in your own treatment and wanting to make sure it’s right for you. Hope all work out for you x
I sort of negotiated mine
I was “recommended” 8 cycles (EC x 4 + Taxane x 4) and after some research I asked if TC x 4 would work too
My oncologist agreed so I did this regime
I was particularly worried about the cardio toxicity of the 8 cycles as I need Letrozole too
So defo ask your oncologist what regimes are possible and make a decision from there
Xx
Great @idcand49 good to know there’s scope for discussions. I had such a bad experience with my surgeon I wasn’t sure. @sal1 yes totally agree about ChatGPT i definitely wouldn’t take its word over the oncologist but it’s been really helpful in allowing me understand my diagnosis which is something the surgeon just didn’t have time to do… at my last appointment he was practically shouting at me so good to finally get over oncology 
fingers crossed they listen
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