Hi Cat
Thanks, good to hear that the antibiotics will clear it up, it’s not painful but just unpleasant as you say. We are lucky with the snow, It is quite beautiful here now I’m looking out my bedroom window and the fields across from us look lovely. Sun has come out now so slow will disappear fast. I must say that this forum, is really helping me cope so good to get support and advise from other women who have been there done it and have the tee shirts.
Thanks again. Anne x
No worries, Anne. I feel the same way. There are a couple of threads about ladies recently starting FEC, some following up with Tax, and it makes a huge difference to be able to share your thoughts, feelings, and side effects. Post away, it’s a lifeline for me!
I will do Cat, I am lucky that my family and friends are very supportive but only someone who has gone through it can really understand what it is like. Feeling better now I have had a moan and plan to spend the day watching DVD’s and hopefully getting brought cups of tea by my youngest. x
I am definitely moving in with you - no one brings me cups of tea. I still seem to be waiting hand and foot on my OH who seems to think he should get a lie in and coffee in bed all the time, lazy so-and-so! Enjoy your day!
Oh dear poor you. My hubbie struggled at first with what is happening but is great now. I think it is sometimes easier for them to stay in denial than face up to the fact that we need support wish I could give you some advise on how to change him. By the way I am going to have to show my ignorance and ask what OH stands for? I have tried to work it out but don’t have a clue. Old Hubbie?
OH is other half, but old hubbie sounds pretty good. Mine is 35, and would probably have 50 fits if I called him old. He does tend to ignore what’s going on, thinks that if I carry on as normal then life is sweet and nothing scary’s happening at all. He’s taken the week off because it’s half term but so far he’s spent the entire time in his office leaving me and our nearly three-year-old son to get on with life. C’est la vie, I guess…
Other half - of course - think I have chemo head before I even start chemo. Sounds like if you do everything as usual as you say your OH just carries on as usual. Lucky you having a nearly three year old son but lots of hard work, particularly if your OH is not doing his share. I have three daughters all grown up but two still at home… I had a real rant at them last week as they were just carrying on as usual with mum picking up after them but they seem to have got the message now. Perhaps you should have a rant at your OH.
If I rant any more, I think I may spontaneously combust from frustration!
Hi Janet
I am a little way further through the treatment than you so thought I would share some thoughts with you. I have had 3 x FEC and have just started 3x Tax. I found the FEC pretty horrible but found the anti sickness that they prescribed for me really helped, its called Emend and it might help you through the next one. On another positive note my hair was pretty good, it has survived pretty much up til now, well to be fair I have probably lost over 50% but have had enough to do a bit of a sweep over on top to cover the bald bits!! If you’re into headscarfs I have just found a really good website called scarf studio, fairly cheap ones that fit really nicely (I never thought I would ever say that!). Anyway I’m now on to Taxotere and had my first treatment yesterday and have found that much better than FEC so far so hopefully it will be the same for you.
Take Care, Be Strong and we will all get through this.
Lyndsey
X
Hi everyone,
Feel as if am getting through my bulldozer day(s!!). Started to feel going downhill on Sunday morning, took to my bed and snuggled up warm. OH had made a lovely dinner and Father in law here too so got up and really enjoyed my Sunday dinner. Some friends called by and we had a lovely afternoon. Sunday night took to my bed early and slept. Got up Monday morning thinking “well if that was my bulldozer day, I can cope!” Caught up with some TV and come the afternoon hit the wall again! Off to bed again and not good this time, took an anti-sickness pill and slept. I’d got an appointment to pick up my wig for Tuesday afternoon, and was really thinking oh can’t do this, will have to cancel! But had to make an effort so off to pick up wiggy, 50 mile round trip. Got home and started feeling more “normal” and have been feeling better and better. One thing I will say is that when I was feeling bad had to have something to eat and it did work! (unless it was the steroids screaming for food!). so listen to your tummies ladies! So one down, two more to go, if I can get through this everyone else can. Oh and by the way the wig is looking good too, my two boys were quite impressed and that really IS something.
Regards to everyone,
Jan
X
Hi janjam,
Glad to hear you’re feeling better. I agree with listening to your body - if you need to rest then rest and if you need to eat, eat. The first few days after my first kimo I couldn’t stop eating ( due to steroids i think ) appetite back to normal after about 7 - 10 days.
Good that wiggy is fine - have you a name for it? I know some of the girls on the other threads name theirs.
Caz x
Hi Caz.
At the moment it is called just " wiggy".
There was an old guy who lived down the road from us, and he had the most awfull wig and rode a moped. Everybody called him Wiggy.
Unfortunatly he died a couple of years ago.
But the name stuck.
Janjam
Hi Janjam
I started off with Domperidon where I still felt really sick, but after a couple of days they switched me to Ondasteron (nto sure spelling is exactly right) which worked perfectly, never felt sick again once. As others have said, you should always ring the bc nurse if you are having trouble, they have lots of alternatives.
Sarah
Hi Sarah
They put me on Ondasteron but was v sick now on Domperidon and am fine, strange how we are all different! Feeling better today, am even thinking of going food shopping with the boys so MUST be feeling better. Must wrap up warm tho, we had a very sharp frost last night - even lit the log burner this morning, lovely and warm here now!!
Regards,
Jan
Hi Jan, I found Ondansetron was vile and made me feel much worse, too, so will be asking for an alternative as well. Glad you’re feeling better today.
Cat
Hi Jan
Like you I have started on Fec which will be followed by Taxotere. On the first one I was very sick and spent two days in hospital but they have now managed to get it under control.I am due my third treatment on 5/11. I take lorazepam the night before and morning of the chemo, they then put up a syringe driver with cyclazine and hyponoval with oral meds as well. I am a sicky type anyway but I hope it will get better. My hair has only thinned slightly and each morning I check my head before I open my eyes just in case. My wig is always at the ready and I got so paranoid about thinking people might stare at me I made my hubby take me out wearing it to see if people were looking at my hair.
Hope you continue to feel better
Tina
Hello everyone,
Am feeling good, have had a good couple of days and hoping am as “normal” as is possible. Just wanted to let you all know that OH asked me the other night what did I want for my birthday present? (birthday is next week) I didn’t know, but I did say I could do with some men style pyjamas. He went ont’internet and found La Senza website-I’d never been into one of their shops never mind their website. He bought two (bogof) they arrived this morning and I am SOOOOOOO pleased, they are lovely and cosy types with lovely jackets. £25.00 for 2 thought this was brill. This Christmas think everyone will be having pyjamas for their presents!! Thought I would impart this little bit of news to you but am probably preaching to the converted. Think their offer finishes before very long so get OH’s credit cards out NOW!!!
Regards
Jan.
Hi Jan. Been away for the last week, so just wanted to see how you were coping…and you seem fine, which is great news!
PJ’s sound lovely…I love being indoors in jimjams and FEC gives us the best excuse to keep them on all day! I too slept at odd times for the first week after my injections…so I am banking on doing the same after the 2nd one.
I was also interested to read that tax wasn’t the nightmare I had been lead to believe (I thnk it was LYNDS). I’d be interested to hear how you get on with this, as I am starting tax in December…just before crimbo!
Anyway, please to see you are doing well.
Hi Pheebster
I had ac+t for the first three chemos but they didnt shrink tumour so then I was put on tax. I will be having my 3rd this thurs of 4. I must admit I was pretty nervous of going on tax but actually prefer it to ac!!! For about the 1st week I feel yucky, slightly queezy (never sick), food tastes orrible, white tongue developed from day 4 (thrush) soon sorted with oral meds, hands and fingers began to get sore bits and then peeled, nails now a slightly pale orange colour but not painful, feet ok, lost eyelashes and some eye brow (some hanging in there!) and eyes a bit watery. Other than these relatively ‘mild’ s/es (compared to others) I seem to recover faster than on ac. Good luck with yours,
best wishes to all
Chris x
Hey everyone,
Hope you are all well. Had to spend a lot of time in hospital over the weekend as my white blood cells were down. Had a jab in the tummy and am back on course for my 2nd Chemo on Thursday. Thought I was doing really well with my hair, holding on pretty good, but Saturday it started coming out in handfuls, so time to get the shaver out, my friend who is a hairdresser had lent me hers. So it has gone and boy isn’t it cold without it? Searching for hats to keep my head warm,especially at night! Hoping to get some cooking done these next few days before Thurs to keep us all going when not feeling too good. Heard that Bio-oil is good on your bald head, relieves itching so will be trying that and also encourages re-growth. Also going to paint my nails, heard that that helps them from damage, will have to choose a nice colour! Clear is no good!!
Regards to you all
Jan