Hello all
This is my first post, although I have been reading DCIS posts for the past couple of months.
I was diagnosed with intermediate and high grade DCIS in June and had a lumpectomy 2 weeks ago. My results were good, clean margins and no invasive cells. I may now not need radiotherapy, but I will not know for sure until I see the oncologist. The care I have received has been excellent and I initially felt great after surgery, just sore of course. I think adrenaline kept me going. I have been very fortunate to have been screened at such an early stage of DCIS. It is my second brush with carcinoma in situ, albeit in a different part of my body.
My concern, and which the care team had no control over, was how my body would respond to surgery and to the stress, as I was already chronically ill. I am a chronic daily migraineur of hemiplegic, vestibular and basilar variants and have secondary fibromyalgia.
It seemed business as usual for me until around day 10 post surgery and now I have crashed and flared with migraine, fibro pain and fatigue. The lumpectomy is healing well and is no more uncomfortable than I had expected. I just feel so unwell.
I wondered if there is anyone on here who started from a similar position to me with disabling fibro and migraine before a DCIS diagnosis and surgery? I had already had my life changed by these two previous illnesses and am often debilitated and lose mobility. How did you respond and cope after surgery? Did you give in to the flare and rest, or fight it till you crashed? Of course everyone is different.
Thanks for reading.