HI I am having a rough time with my CMF chemo, IV day1 and pills for 14 days then IV day 8, IV 1 not to bad just exhausted and nauseaus, Two days after 2nd IV , Ihave vomiting and diarrhoea for 3 days , this time the 3rd day was hell, bot on Loo and head in sink for hours, could not even keep water down . Two days later I am so exhausted I could cry, I take ondansetron and imodium during this phase but nothing sems to alleviate symptoms. I was told this was supposed to be easier than EPI, but so far it’s been nearly as bad. Anyone out there who suffers the same or had something off there ONC to ease the symptoms. I see him before next cycle so any help would be much appreciated Love to all Bobbie
Hi Bobbie
Please call our helpline nurses for some advice about the symptoms you are experiencing on CMF, it opens in the morning at 9am on 0808 800 6000 or of course call your oncology unit if you remain concerned.
Best wishes
Lucy
Hi Corsa
Just thought I would let you know that you are not alone - I too have been having a bit of a rough time with CMF - to be honest I didn’t want to say anything on here as everyone seems so positive about this regime.
I first had chemo last year 3xEC then 3Xtax the tax was awful - but I did it. This time I’ve had a recurrence and a new lump (mastectomy) on the other side, they decided I needed a different type of chemo… I was told it would probably be easier.
CMF seems to make me totally panicky most of the time (that I’m taking the tablets) - I’ve got some mild anti-depressants which seem to help with that - but it is a horrible feeling - I can cope with the physical side effects (trots one minute - complete opposite the next!) but this is messing with my head and I don’t like it.
My hair is also thinning which can happen when the body has already had chemo - I’d only just got used to my new hair - oh well - it will grow again.
I’ve had 2 complete cycles of CMF so far with 4 to go - roll on August - that’s all I can say!
Love and Hugs
Wendy xoxox
Hi
I won’t be on CMF for a while as only starting epi when had a port put in. This is really scary stuff to read but I do hope you feel much better soon, both of you. Please let me know how you get on.
Hugs
Lily x
Hi Corsa
I dont usually post on here which in a way is selfish of me want to forget it all, i had chemo in 2006.
Sailed through epirubicen and was told by folk CMF is easier still but BLIMEY it wasn’t. I think you body is exhausted by the time you do the second regime. We are all different.
I had 2 lots of your regime just felt it went on for ever witht the day 1 and day 8 IV and 14day tabs. I swapped for last 2 cycles to it all IV i couldnt tolerate the tablets my stomach was just awful and mouth ulcers.The thing i foudn was during epi i took the anti sickness and steriods religiously but didnt think i would need them during CMF. Once i started taking them regularily it helped.
Immodium i dont think wil help too much. Ask yoru chemo nurses and the onc
It will soon be the end of chemo keep that in mind.
Thinking of you
Rxx
Hi - I finished my chemo October 2007 - like you had Epi - CMF and yes - the CMF was much worse for me. I was given antinausea drugs and antiacids. Also was advised to eat bananas, they help with the runny guts. I took them as smoothies with ground almonds, apple juice and a few strawbs. It helped, apparently it is the pottasium. The only thing I can add is that it does end and sort of fades into a horrible dream and yes - I have a full head of soft curly hair!!!
Good luck, hold on in there - Swanie
Hi all Thanks for getting back to me. Funny enough I had horrendous panic attacks with EPI (Wendy. Was told Cmf would be easier its not its just different symptoms , just all so sh88ty . Anyone got any cure for piles ???Prep H not working soooooo painful. Yes your right Liverbird stomach pains are excrutiating with cyclo tabs will ask about all IV.Hi LIly try not to be scared sweetheart we are all different , some sail through it others do’nt and whatever happens as bad as it is… it is gonna give us a few more years and kick this sh88ty illness into touch. Yes Swanie my hair is growing back to wil soon have to treat moustache and grannies whiskers at this rate.
My fondest love and lots of ((((((hugs)))))) to you all Bobbie… by the way just heard Trish Goddard has had 2nd op to remove lymph nodes But she is not gonna let all this make her feel ill, all I can say is you may have to give in Trish… like us . Best of luck if you read this Trish and hope you will get through without to many probs.