Hi,
Sorry, long post, but please bear with me:heart:
I know there are already a few threads on the cold cap, but they all seem to be focused on the end results, and what I need to hear, is how it went during treatment. I am cold capping, am now on week 2 after FEC 2. First cycle was a breeze hair wise, I hardly lost any, and I was feeling quietly smug. Then cycle 2 and all hell broke loose.
I’ve been losing my hair like mad. Not just a few strands, but handful of it, I am constantly covered in hair, the top and side of my scalp are already obviously showing. Objectively, I still have most of my hair (I cover the thin spots with caboki, so I’d say I lost about 30%), but I am freaking out that it’s only FEC 2, and there are 4 more (1 FEC, 3 Tax) to go. The way it’s going, I am going to lose everything.
Washing hair day is traumatic, and I always cry when I do. My scalp is also sore, I can see crusty bits, I think I got frost bite on my last cycle. Chemo hasn’t been easy so far (think any side effect, I’ve had it), and I don’t want to give up on the cold cap, and can handle the suffering if it keeps my hair, but will it???
I just need to hear from other ladies who went through the cold cap : do you also lose so much hair every day, even if you’re not touching it? How do you wash your hair, as I find it hard to get my hair clean when I just pat the shampoo in? Do you do 1 or 2 shampoo when you wash (in 1 go I mean)? Did you have a worst cycle where you lost more hair, or was it pretty much the same throughout? And how did you deal with stress, as I am 100% sure it doesn’t help with the hair loss, as I always lost more hair when I was stressed before.
Any advice, experience, or a truthful “well, it means you will need a wig at some point” welcome. I wish I could stay indoors, sleep, and not see anybody until the end of treatment…