Coming off Zoledronic Acid after 5 years ?

I have extensive bone mets and been having zoledronic acid every three weeks, but now I’m starting to get lower jaw problems so my oncologist has taken me off zoledronic.  I’m trying to find out is this means the bad nine pain will come back.  Has anyone been on zoledronic and then come off?  Did your bone pain return?

 

Thanks for any feedback

Liz

Hi Liz_nz

Sorry that you haven’t had a reply yet.  There is a very active Bone mets thread which you may find helpful and who are very friendly and welcoming, :).  This is in the Living with secondary breast cancer section of the Forum.

Best wishes
Anna
Digital Community Officer