Just a quickie as i’m so fed up so hopefully post more tomorrow.
I’m meant to start chemo tommorrow so what happens to me today? I woke up and my b****y boob is rock hard. I have a b****y infection 6 weeks post op from lumpectomy and 3 from lymph node removal. Surgeon is puzzelled as to why this has now happened…me too.stuck a hugh needle into boob and sucked some lovely yellow stuff out. so no chemo for at least 10-14 days, FECCED off.
God all i seem to be at the moment is doom and gloom
Gina, poor you, have you got loads antibiotics? look at it this way if youd had chemo today and woken up tomorrow with boob infection you would have been in hosp again coz it would really have hi you hard, so try and think positively, (I know thats very difficult) My chemo was delayed 7 weeks because of my seroma, which strangely they are not interested in now although its huge at times!
Horrid going into hospital for bloods today, loads of people walking around with masks on, swine flu has struck…
i feel down and knackered today, should be changing my bed for my man but feel so tired think Ill go and have a kip and do it after, im not expecting him till 9pm ish.
xx
Gina, thats a bit of a blow, hope infection clears up soon!
Had 2nd fec yesterday, feel very grotty today, queasy and yukky!
Hair nearly gone so going to finish the deed later! At least I’ll stop leaving a trail around the house!
So sorry Gina you have an infection - what a bu**ger - I hope it clears up soon. Rest up and drink lots (water!!).
Well girls, the deed has been done. Was hoping to hold on to the locks until 2nd Fec - but not to be. Had shower this morning and washed hair and rinsed it and my body was covered in wet hair, it was gross. Big bald patch at the front and really thin around the sides, so it had to go! So it’s off, So now it’s been shaved off and I just have some stubbly bits to contend with which is so much better. Went out last night and it was falling in my food! yuk!! I feel relieved it’s gone. Worn wig today, although I think I had it a bit tight! Had ring round my forehead when I took it off! Took dog for a walk in a scarf - very brave! Feel better about it already - strange. It was a very emmotional morning, but feel now I have got over another hurdle!
Couldn’t have done it without you guys - thanks for all your support.
Got my days mixed up yesterday, meant to say hope chemo goes well for you all ladies tomorrow! See chemo brain has struck and its already killed off the one good brain cell I had! My 2nd chemo is Monday so know I will have a ropey few days next week and may not be messaging.
Evie - hope you are feelin a little better.
Don’t know about anyone else, but I’m worried sick about getting swine flu being on chemo - anyone had any advice from their ONCs???
Mumzy - gonna see if I can find one of those wig bands - they sound v comfy!
Off up North to spend some time with Mum, so may be absent for a while. Keep those peckers up and thanks for all your support this week!
Love Jayney x x x x
Hi Guys
OMG gina - what a blo*dy bummer! How bloo*y shi*ty - I’m getting realy gud at swearing cos of this damn BC and the blo*dy ramifications that go with it, insurance, life style, hair, children, love life, menopause, sex, intimacy, body image and now bloo*y treatment - oh I’ve just thrown my toys out of the pram!
I start chemo tomorrow collected my blood results and my heamoglobin has gone up from 9 to 12.6 - bloody hell I wasn’t 12.6 when I was well! so tomorrow is chemo day!
My darling girls are in Monaco with their grandparents in 32 degrees of heat and loving every minute - I am so jealous as that was our holiday! I cried after I left them for so many reasons.
Fab man is soooooo good - I would have divorced me by now!
Just as an aside - went out for supper with old friends last night both are GP’s - both said to me ‘so whens the op rachel?’ I cud have kissed my little silcone nipple but that would have to go on some porno site don’t you think!
Oh and the gas man has now handed me a legal action for PTSD - LMAO
r xxxxx
Gosh, Jayney, how on earth did you get your dog to wear a scarf…? (OK, stoooopid joke!)
I’ve been pretty much ignoring the Swine Flu thing up to now, but it is beginning to spread quite fast. I’m just taking a little more care, not going anywhere crowded. I’m fortunate in that there’s only me’n’him, and he’s retired so doesn’t need to go out much either. They’re supposed to be making Tamiflu available early next month, and I expect we’ll be in the category to get it. Wonder if the site admin know anything more yet…?
i asked my onc and was told we wouldnt get it as tamiflu only prevents it if you keep on taking it so a course one week wont stop you getting it the next week and i dont think they have enough stock to give continuously to all high risk groups… i was told if i got it they would treat it but not otherwise.
was gonna ask gp about flu vacc but think they dont usually become available until about sept anyway.
good to hear you hb is good rachel… im neutropaenic but guess everybody is during their middle week but only had bloods checked to see if it was safe to go to T in the park… so now im relegated to stay at home and be germfree and check my temp regularly oh well theres always next year.
jayney i think im gonna get my dad or sis to give me a GI jane at the weekend… getting quite tight head and already losing my pubes… nobody told me they would be first to go!!! LOL
Jayney…u have a fab positive attitude and i’ll be trying to take a leaf out of your book when things start going astray for me (namely the hair and the mind!) Day 6 and i feel pretty normal except a dodgy mouth and the fact that i’m actually sleeping at least 8 hrs a nite for the first time since march…so thats a bonus i wasn’t expecting!!
Sorry about T in the park lulu, maybe u should go to a playground with a cup of tea and mp3 player so u can still say u did T in the Park!..i now know wot nuetrowotsits are by the way, thanks to your friend on facebook.
Rachel…good luck with the first treatment today…i am quite sure something funny will happen (or at least u’ll make it funny), so even tho u wont be looking forward to it, i cant wait to hear about your antics after!!!
Big Pixie hugs to all,
xx
~Ah jayney sorry about the hair. it will come to us all. i am no better really but no worse! Fatigue comes in a wave and i have to lay down! Got cold too as has girls and hubbie so we were all up last night. someone up there hates us!
Good luck Rachel I was totally bricking myself in the “chemo lounge” but felt better once it all started.
Lulu bugger about T in park. I prob should avoid baby groups too but i dont want to stay in with a bored 2yr old and a destructive 11 mth old so am braving it- prob why i have a cold! Doh.
Pixie glad you ok. Gives me hope i only feel so crap because of the cold and not the chemo. was worried i was having a 6/7 day crash!
hollymeg- great photo!
Thanks for all your kind messages they have really helped me.
I’m not feeling so grumpy today about infection and trying to look more on the positive side that i have a few weeks to do normal thinks just wish hubby would get better, it’s been 2 weeks since his op and can’t believe that something that should have madehim better has made him look like he did when he was in HDU…sigh.
So glad that most of you ladies having chemo arn’t feeling too bad, i really hope this continues for you all.
Rachel, good luck for today. Like pixie said look forward to hearing about it. and i notice you now use LMAO alot…lol
Jayney hope you have a good time up north.
Mumszy, never congratulated you about your new house when do you move?
Lulu sorry that you not well enough to go at the weekend
Hollymeg, love the photo -you look good too!!!
To Everyone else, Evie,susanne,debs, Caro (where are you)hope you all ok xxx
Hey girlies - my goodness my eyes are going crossed reading all of these posts.
Rach - you crack me up as usual. Poor gasman! He won’t forget you in a hurry.
Gina - so sorry about infection. Hope it clears up really fast.
Mumszy - sounds like idyllic surroundings with your bloke. Lovely! Pauline- great to read your posts and so glad you are coping so well with the wig.
SHE sorry you are away as I would have toasted your brain to get info on the rads.
Jayney - hope you are feeling good. loved the bit about the dog - susanne that gave me a lovely picture. What kind of pooch do you have Jayney? I have 3 at the moment. Big furry useless shepherd, a collie cross and an old heinz 57. I also have a blooming cat around my neck as I am typing this. Velcro cat, wherever I am he insists on being. To cap it all I have the smelliest breathed cat in the universe at my side. His breath is so rancid its like being in a bathful of rotting fish lol. I have had him at the vet numerous times but he hasn’t really many teeth left to extract so have to live with the pong.
Got back from mine break with hubby yesterday to find there was prescription lying for me for tamox - started last night and immediately mind went into overdrive. Thought my lips were tingling and was imagining I was going to have blooming anaphylactic shock!!! Jeez. Lu can you tell me what SE’s you have had from Tam (if any)?
I watched the Dawn Porter prog and plan to watch the second. Don’t know if its a good thing or not. What definitely wasn’t good was the other thing i watched called “Teenagers fighting Cancer”. Those poor kids.
Have appointment to discuss rads next Tuesday. Never heard of “simulator” before - last time I was on a simulator it was the Simpsons ride at universal studios and I LOVED it. Before any idea of this c**p illness entered my thinking. Don’t suppose this simulator will be quite as much fun!
Hi to everyone I missed out. Thinking of you all.
alex
x
hi Alex glad you had a good break, you only have to be off here for a few days and it takes ages to catch doesn’t it, so much to share with everyone. I didn’t realise you had tamoxefen before rads i thought it was the next step after chemo and then rads, interesting! Anyone else having tamoxefen then rads?
hello my wonderful soul mates!
As usual you lift my spirits amd make feel almost human! Sorry to say nothing exciting about chemo today, but I do have that beautiful shiraz rose wee! Perhaps i could bottle it!!! It will still be 90% proof from the white wine I had last night.
On a steroid high at the moment so I feel a bit wooly and not quite with it - fab Man says he can’t tell the difference…
Kids foned and are off the Italy to the huge market in Ventimillia, hope they go hand bag shopping for me!
My romanic break in hereford is only a week away now yippeee - I have been to anne summers and bought the peep hole bra (I have a nipple and I intend to use it!)and hope to have my free brazilian/hollywood by then LMAO(I love this short hand stuff my kids may even think I’m cool - NOT!) Knowing my luck i will still be a full forest (including the grey) with a Yule brynner hair cut!
Went to Claires for the girls and they sell them most lovely soft pure cotton scarves for about 6 quid - I stocked up on loads of really bright colours.
Pauline you look wonderful - from the girl who couldn’t face the hair loss to the prety and proud lady in the foto - you go girl!
Pixie keep strong you never know losing the loxs may open another window of opportunities to be marvellously different and totally unique as you already are!
Lulu - bless you I’d go with pixies idea of the MP3 and a cuppa!
Alexa, mumszy, caro,jayney, shazza (sorry if I missed anyone) - your all great!
Re vaccinations - the chemo wipes out any immunity as you know including your acquired immunity so all the imms and vaccs that you have had over the years is lost - i normal booste patients post chemo with Flu (only available from spet 09) pneumo, hib, Dip Tetanus Polio, and MMR if thought necessary. But it has to be post chemo and with normal bone marrow function.
Oh and pauline yes I’m to have tam and rads but I’m not sure in which order.
Gina, get well soon hope my potty mouth made it all better!
love to all going for a nap now
R xxxxxx
ahhh…that explains why i feel ‘normal’ again now i’ve stopped the steroids! I thought the woolleyness was down to the chemo at first, so thanks for enlightening me rachel. Glad your ok.
xx
oh well theres always next year.