Hi guys, I’m the same with my 11 and 9 yrs old. they are both clingy and frankie gets especially down but tries not to show it bless her. Love the butterfly analogy She! I’m more of a crocodile coming out of an egg tho’ short tempered and very very snappy!
My dad is now out of hospital and it wasn’t a stroke but he is still very forgetful since his vertigo attack and is driving mum batty! Divine retribution for 56 yrs off being bossed by Matron if ask me LOL
Well guys I have been busy in the fone and everything is now organised for Jan 2010!!!
I’m still tired (exhausted more like)to my core and I have to say Evie and She looking after babies you really deserve a medal. At least my furry babies are so happy after their walk and breaky to collapse next to me and keep me warm and sedated with soft ears and silky heads within stroking reach.Today they stayed like that from 9.30 to 13,30 as I snored contentedly thru the ken bruce show and half of jeremy vine!
love to all you girls xxxxxxx
hello girlies
sorry some of you are having some not so good days at the moment.
i remember when i finished treatment with my first BC i went on real downward spiral it didnt help that i had started a new job and broken my leg within 3 months of finishing rads… i saw a counsellor who really helped me get back on track.
as for the worrying about secondaries for me that extra worrying was what took me back to get my mammo a month early… there was no secondaries or any cancer in the area that was sore but was found to have BC in the opposite side… so although i try to tell myself that every pain, tingle, lump, bump or sensation isnt BC its still the first thing that jumps into my mind.
the lymphoedema thing is most likley to happen around 3 years… not sure if taht because people tend to relax a bit more into their old ways of doing things like carrying heavy shopping etc but i had probs with my arms from the outset and did get thrombophlebitis from pricking my finger on a staple and cellulitis from a hang nail within the first year… even though i only had a few nodes and not a clearance… i have very mild lymphoedema in original side in my hand only but didnt stop my oncology team stabbing me in that side and making it worse.
shenagh i just wanted to tell you how sorry i was to read about your friends baby its such a sad loss for you all.
anyway i am feeling all perked up after a fabulous weekend away with my family… not laughed so much in ages and i think its really what we were all just needing as its obv been a very hard time for them too.
and i know somebody was asking about 8 chemos… i get 8 too as on same type as pixie although i get full dose on day 1 and none on day 8… although the cyclophosphamide was particularly nasty but dont have to worry about that till next time.
love to all and looking forward to seeing you in Jan… and thanks for doing all the organising rach.
Lulu xx
Yes, well done Rachel for organising Centre Parcs. OMG they are not going to know what’s hit them!!! Did you book two lodges at the end of the day - I can’t remember what final numbers were. It’s so exciting! Lulu, I’m thinking of getting the train down, what are your plans? Keep trying to FB you, but your wall doesn’t seem to like me : (
I’m seeing the oncologist tomorrow, and have arranged to meet up with three of the ladies I was in hospital in Edinburgh with, so really looking forward to seeing them all.
Pixielox, I’m glad you enjoyed your forum in Warrington. I’m already booked in for the Glasgow one in March and think it will be really good.
Love and hugs to you all
Shenagh xxx
P.S. Pauline, am loving your daughter’s beautiful tattoo - what a nice thing for her to do for you xx
Day got worse!! Evie trapped her finger in front door and i had to unlock the door again to retrive it. I think it is broken as it is enormous and bit odd shaped so ive strapped it to finger next to it! Boy did she cry. any advice nurse people?? I didnt think the gp could do much for me.
Then i moved the guinea pig run and managed to knock one of the piggies in the head as i didnt see her and whilst fumbling to make sure she was ok the others bloody escaped!!! Think ive hurt her tho and feel awful. Hope its just a bit of piggy concusion…
Just stuffed my face and feel marginaly happier!
Roll on tomorrow!
Cant be any worse surely?!?!
S
S
Hey Girlies
Well the 69 chemo bus stopped at my stop! Pains started last Thursday night and still got them now. I AM NOT IMPRESSED! Now day 9. Taking the paracetemol religiously and only today felt well enough to get back on the laptop! Managed to see Coldplay (who were awesome) but was well and truly drugged (wasn’t gonna miss that). I think I am turning a corner, but hey I’ve never had aches and pains like it. Horrid nerve pains, that twinge and muscles that spasm! Mouth a tongue absolutely disgusting, can’t taste anything other than horlicks! Anyway, tomorrow is another day. Can I really take another 3 of these??? Sorry I am moaning, but finding this a bit tough.
Pix - I am thinking of going to the younger womans forum in Birmingham in October and maybe hooking up with Gina. Sounds like it is worthwhile. So looking forward to CentreParcs - am hoping will be well enough to come after my surgery (no date for that yet), but am keeping everything crossed. Keep everything crossed for me girlies.
Keep on chugging girls.
Thinking of all of you on swamp juice this week.
love to you all
Jayney
xxx
Hi Jayney,
Sorry to hear your suffering like this. Have you seen the ‘Top tips’ thread in the Undergoing treatment - Chemo thread? If not here’s the link you might find some of the tips helpful.
breastcancercare.org.uk/forum/top-tips-to-help-get-you-through-chemotherapy-t19110.html
Take care,
Jo, Facilitator
Hello ladies, just bobbed in to say hope everyone is doing OK (or as OK as you can be with BC) and to update after my last two cons appointments. I was given the choice of chemo, and declined, as statistically I didn’t think it was worth it…no nodes affected, the cancer was found to be multi-focal after Mx but was still under 2cm (just!) and instead I’ve gone onto Tamoxifen for 5 years and Zolodex for 2. I’m so glad I could choose not to have chemo as my mum’s about to undergo her fourth cycle, and I think one of us having it in the family is enough :-S. No side effects from the Toxic Phlegm yet but it’s still early days so I’m not going to get complacent. Been to get my falsie today and now need to go on an underwear shopping spree to accommodate it (shame.) I feel like I’ve had a lucky escape but at the same time I’m always going to have that feeling at the back of my mind ‘what if it comes back in the other breast?’…have been advised to ask for referral for MRI when I next see the onc in 3 months. Also having a referral for genetic testing.
I’ve got myself a cat (male, Persian, 6 years old, rescue, tendency to want to have conversations at 4am) and met someone brilliant and now we’re engaged! Bonkers…but now I’ve had BC I have a tendency not to mess about, and when you find a good bloke who doesn’t care that you’re uniboobed, prone to emotional outbursts and might not be able to have children you’ve just got to grab it (him) while it’s hot.
I’m still going to read as much of the thread as possible to keep up with how you’re all doing…want to try and attend a younger women’s forum as well…
Keep on keeping on!
Much love to you all
Kerry xxx
shenagh i have just received a pack in for the glasgow young womans forum which im a bout to send back… would be great to see you then.
i was also thinking of getting the train down to nottingham but not sure which route it goes.
hope you have a nice time with the WGH girls tomorrow and hope all goes well with your onc.
sue sorry to hear your day has gone from bad to worse… hope Evies finger is gonna be ok… they dont do much for broken fingers and toes just as you have done strap it to the one next to it as a splint… as long as its not looking all deformed as it might need pinned if its very damaged.
and also hope that your gps are ok after their great escape and bumped bonces.
jayney sorry to hear you have been feeling so poop… would just say with regards to regular paras its maybe worthwhile getting a different analgesic from your GP as the paras could hide a fever as it brings your temp down… just if your feeling really crap its maybe something underlying. i take tramadol some of the time and para or co-codies some of the time so that if i do get a temp the tramadol wont mask it.
kerry i can understand your concerns as my BC did come back in the other side… well not exactly came back as i got a brand spanking shiny new super dooper one in my other breast… i should be getting a blood pack out soon for my genetic blood testing although under the genetic risk assessment tool im only a moderate risk but as i had blood testing in a research trial they have agree to do some up to date testing… glad your lovelife is looking up.
Lulu x
What’s this “private party” at Centre Parcs then? Sounds a bit exclusive - sorry, don’t mean to sound resentful, but could do with a break myself.Never mind, s’pose I can arrange my own!
Hope today is a better one for all.
Bloody he;ll I’ve justposted and it disappeared andf iwas on my way to bed too!
precis :
Erin i’ve pm youd and I can only apologise you were left out of the loop cos ididn’t realise you were not on my contact list so sorry honey
Jayney - hate tax, hate it, hate it, hate it! I am boggin just like my dressing gown.
Kerry - go girl !!!
Evie - such a pooey time! talk about bad days . re little evie if the finger is very deformed go to A&E for Xray. Also following tests, is the finger warm?, is the nail bed pink. if you pinch the nail bed gently for 4 secs does the bed re pink up with in 4 secs - if not see dr. Also avoid brufen for about 4 days post injury just stick to paracet if you can.
re the guinae pigs - I’ve dropped a hamster from a gr8 height and it was Ok hope the gps are recovering and just hve a ild headache by now
right off to nap - must be dressed by 2 pm have macmillan coming round xxxx R xxxx wots th odd that I’m still in my mars bar ( work rest and play boggin dressing gown)
Rach thumb is pink and blood supply seems fine. Think she is ;lucky as it was the tip and above the knuckle…was hideous nevrtheless as we have a very heavy wood front door…ouch. GPig is not happy. think i must have banged her back end too. God knows how as she is now installed in the dining room an a lovely box full of food. A Gpigs dream so i hope she heals up…pets.
Today seems ok so far. Kids at grandmas anf i am veggie and gonna watch twilight aghain for the third time!!
Chemo five tomorrow and i am being reviewed because of sores all over my foot. They gave it a special term- TTE!!!- and said i needed to see dr…i thought it was nasty athletes foot!!"i reakon it is but hey who am i to argue.
Jayney am so sorry you feelin so rubbish. Agree with lulu perhpas a different pain relief is neeede. co cody is good but can constipate you so not ideal if chemo has already done that for you.
What is this younger womens forum business?
Did want to come to centre parcs…darn baby! You ladies will have to have a drinkie for me!
P:ixie number 5 on friday? Good luvck
love to all
S
XXXXXXXXXXXXxx
Hi all
Sue - Hope Evie’s thumb ok, poor little chicken, made me cringe just thinking about it. Sorry I did laff about the Gpig, but he/she is on the mend! You really did have a bad day! Hope today is better and you are vegging out. Hope they sort your foot out. No 5 tomorrow, you are nearly there girl!!! There is a younger womans forum in Birmingham on 16th and 17th October - you have to register for a pack, but it’s all free of charge. Am hoping to hook up with Gina as it would be nice to see a friendly face. Pix said the one she went too was good so am looking forward to it. Can you make it??? Anyone else going along???
I HATE TAX TOO! District Nurse has just called and she is well nice, has kept me a sane last few months and she says “Jayne you are doing marvellously, in fact you seem to be sailing through” WHAT!!! I feel and look like absolute cr*p! By the way, anyone else had an outbreak of spots on TAX??? I don’t get spots (cos I am too old) but had some horrid ones, so picture this:- baby bird hair, thin eyebrows, extra love handles (no make that rolls of fat), bingo wings and a zitty chin! Not pretty!
Lulu - funny you should say that re paracetemol as I have been religiously taking my temp before taking them and it is usually below 37. District Nurse says take max of 8 in 24 hours and if they don’t help I can get something stronger. Co-cods - have some of these but loathed to take them because of the constipation! I have enough problems with the underpant region at the moment (do you want to start me off talking about pooh again???) Will see how I go - am hoping the pains will start to subside a bit and won’t need them.
Kerry - congratulations! Go girl!
Caro - are you ok, not heard from you in a while
Mumzy- are you snuggled up with fab man??? You’re quiet too
Hi everyone else.
Have a good day
Love
Jayney
xxx
Sorry for the long post and Lulu - love the hat!
x
erin your one of our gang now so youd most definitely be welcome at centre parcs in jan.
jayney thanks for that LOL.
your DN is right the max for paras or co-codies is 8 per day but you can take laxatives too… doesnt seem to matter what i take or dont take in the underpants department i could build houses with what i pass… although wouldnt fancy living in the house at Poo corner LOL.
sue here is the link to the young womens forum… a young woman is apparently somebody 45 and under…
breastcancercare.org.uk/server/show/nav.514
these are the dates and cities as maybe some of the others would be interested too…
16–17 Oct 2009
Younger women’s forum Birmingham
6–7 Nov 2009
Younger women’s forum Maidstone, Kent
26–27 Feb 2010
Younger women’s forum Bristol
19–20 Mar 2010
Younger women’s forum Glasgow
Love Lulu x
hello everyone,
Well, chemo numba 5 hit me really hard, Been very sick and tired. The worst thing is that my left hip is killing me each night. Ive got old lady hips and im well fed up about it, as well as scared stiff that its secondaries…
As for s*x, well I know Im in a new situation and also that we are both far too old for it… but Ive never had such a good s*x life as im having now!!! John is being so good about all my aches and pains but its still very very good!!
Im up for centre parcs too, so long as not too pricey!! Will probably be a retired lady by then!!
Oh well, back to the sofa,
xxmumszyxx
hi there everyone, sue, made me cringe about your daughters finger, hope she is ok now.
Mumszy, glad to hear your s*x life is good, will help you get through this rough time. Hope you can make center parks, looks like we are in for a great time, you will have to prize yourself away from your man for a couple of days, do you think you will be able to cope?
TAX… my first one was hirendous, aches and pains and numb fingers and toes so i had mine reduced to 80% for no5 and i must say it was a lot better, not much aches and pains and no pins and needles. OC suggested it to me, i didnt have to ask.
Rach, hope your leaving that goppin dressing gown at home in jan!!!
Hope everyone else is doing ok, take care luv Pauline xxx
Hi girls
what about an old wifie forum then lulu? for us geriatric over 50’s lol - oh lord I remember being too young for club 18 to 30!!! I would have loved centerparcs but have to take specific hols - I do expect a blow by blow account of the exploits though! Who’s all going? Will you all be finished your nasty swamping by that time? what a great way to mark the end of it.
I am getting a massage tomorrow free from ‘circle of comfort’ - do you all know about it? Maybe its not available everywhere but basically you can get free massage/reflexology. My back’s always stiff so looking forward to it. Doing yoga stretches as well in the hope that it will get better.
hope you all having a good day. poor little evie -hope her finger is all better.
Mumszy you go girl! you do have a fab man and am glad you are enjoying it.
alex
xxxx
Evening everyone
Thanks Rachel - have sent you a message, hope you’ve still got room for me, you’re not leaving me out! At least the taste buds should be back to normal by Jan! Thi sglass of Merlot that I’m drinking could be anything, but I don’t care.
Alex - I’ll join you at the “old wifie” forum, mind you at 54 I try not to think of myself as “old”. Used to look pretty good for my age until this…
Evie - hope your daughter’s finger is ok - did you get it looked at? Sorry but I had to laugh at your guinea pig antics. My kids used to have hamsters, but we kept having disasters with them… the first one nipped under the dishwasher and when I opened the d/w door to see where it had gone, it stuck it’s head out (crunch). The next one fell down the gap under the bath (ex-husband had been doing some repairs), spent the night with small daughter calling “Smudge, Smudge” into the gloom - never found it. Next one got killed by the cat within minutes of arriving at the house, and then - the final one got… cancer in its leg and had to be put down! We gave up after that.
I hat Tax too - week 3 and I’ve usually picked up a bit but feeling sooo tired and emotional too. Plus have sore hands and feet from Xeloda. All these drugs - boo! Night all.
xx
Thumbgate settling! Had to argue with her tonight as to which thumb needed strapping at bed time! Jeez did she scream at me!!
Piggie looks ok- demanding food but still hobbling. Feel so guilty!
Chemo 5 tomorrow so have eaten multi pack of doritos, dairy milk and a packet of wheat crunchies to help me feel better and i do.marjinally. will be glad when all this is over.
Take care ladies
S
Hi,
Just newly diagnosed. Had my first op in August where one Lymph node was positive. Had a second to remove the nymph nodes early September which all came back clear. Starting on Tec and Fec next Wednesday (day after my birthday) for 6 cycles.
Any helpful advice or tips to get me through???