Coming out the other side - one year on!

Well, bc nurse said I will need to stop taking my mini-pill (bugger it), but it can wait until I get back off hols :wink: Wonder if that’s a good idea…

Hey Sue, the wig looks fab!!! Does it look as good close up?? I’m really hating my new haircut today, which is probably not a bad thing as I won’t care when it all starts falling out!! Perhaps I should just shave it off now and get a nice wig…

Glad the seroma’s reducing Rach; it’s one thing after another isn’t it. Will be eating plenty of chilli on hols whilst we’re out west - do you mean jalapenos or guacamole?!

Hang in there Mumszy; one down, one step closer and all that!

Good luck with onc appt on Monday Pixieperhapssoontobenolox!!

Off to Gatwick soon, fly out tomorrow morning. But I will still have access to tinternet most of the time I’m away, so keep posting ladies!!! I’ll make sure I have loads of G&Ts whilst on hols; good preparation for when I start chemo (even though it’s weeks away!).

Bye for now!
Caro xx

Caro it looks pretty good. doesnt feel wiggy or plasic. my mum askd if it was real hair!! now i dont think its that close but i am pleasantly surprised and it falls really nicely.
Doesnt look wiggy- great low and high lights!
Sorry you dont like your new doo- i love my crop. I had it cropped when i was a teenager and i met my hubbie!

have great hol! V jealous!!!

xx

yeh I meant guacamole (sp?) love the stuff but soooo fattening.
I have jst set up a facebook thingy - my teenage god children have refused to contact me until I became 21st century literate - told them I was using the computer to talk to you guys but no they demanded something called SMS or MSM or such like - anyway if any of you are using face book - there is another insane newbie on there as of today.
Have a great weekend everyone, willprobably catch up later - finding this very addictive and therapeutic!
love hugs and occasional tantrums Rachel xxx

Hi, well I am a little late joining the party as I have been dianosed this week on June 17th after biopsy following routine mammogram. Consultanat away on course till Tues so can’t see anyone. Please keep asking me how long I’ve had it, how big the lump is and I have no idea. Does the sick feeling in your stomach ever go away? It’s great for the diet but not much else. Readng some postings - you all seem so brave. J.

I tried to post something earlier but it didn’t appear. I will try again, was diagnosed yesterday. It’s as if it was a bad dream and I will wake up soon :frowning:

woodlark
hi yea i know what u mean i was dx in may just started chemo really hard to deal with wats your dx ive 2 lumps cld be ibc just had first chemo and to day had a bone scan

Laura64 thank you so much for your reply. The worst thing is…and I am going to appear soooo blinking stupid. I never asked, I didn’t know what to ask, and if Im honest they could have said anything and nothing was sinking in. I live on my own and went by myself to the hospital. In a daze driving there…driving home was worse.

I will have to write stuff down from now on. I have a lump on my right breast that Ive had for two years but when I went for a mammogram they said they couldn’t find it. I was sent home with no information. It has slowly got bigger. I have to have an MRI scan on Monday to check if there is anything else lurking around. I get the results next Wed…then Im going to go on a four day holiday (just me and the dog),I can’t see me having the time of my life…first holiday since 1998.

Hi Woodlark and welcome to the BCC forums,

I am sure you will continue to recieve support from your fellow users, in addition BCC can offer you further support and information. The following link will take you to one of our publications, it is a resource pack to help you to better understand your diagnosis and treatments:

breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/82

Our helpline is on 0808 800 6000 and is open Mon-Fri 9-5 and Sat 9-2, you are welcome to call for a confidential chat with one of our helpline team for support and more information about any of our services.

Best wishes
Lucy

Thank you Lucy for the welcome…please tell me this feeling gets better…Im overwhelmed. Was not expecting this news thought it was benign lump and they would just take it away. Reading this thread has helped today. Ive spent most of the day reading bits and bobs. You ladies are an inspiration.

Hi woodlark

I think most people posting will relate to that feeling, please do ask if you want any more information or support during this difficult time.

Take care
Lucy

Welcome to the club none of us wanted to join, Woodlark. We’ve all been in that place you’re in - the shock and disbeleif, the feeling that it shouldn’t be happening. It does get better - sort of. The waiting is tough, but once you are clear about what your diagnosis is, and get started on your treatment, you can feel as if you’re fighting back.

I think we’d all say it isn’t “bravery” - we get through this because we have to, and though we sometimes rant and rave about it (and this is a good place to do that) you find after a while that you can’t be like that all the time. You have to try to go on being “you” - doing the things you enjoy (mine is DVDs of musicals and old war films - Sing the Bismark is on tonight, whooooeeeee!!!)

hi woodlark, laura and aphros,
Just wanted to let you know you are not on your own woodlark. I did the same when diagnosed in April…i waited 2 hrs to see the specialist for results all the while expecting it to be nothing so when he told me it was cancerous i just said “so i’ve got cancer then?” He then told me i had 2 options a lumpectomy or masectomy and to go away and think about it…then i left, it took about 2 mins! Thats all i knew for the first few days until i got an app to see the breastcare nurse and did a little research on this website. I spent about 3 hrs in the first couple of weeks talking to my BC nurse…asking really stupid questions like “can i still do press-ups?” and “can i not get a tatoo on this arm then?”. But these were the things i personally needed to know and i was able to have a laugh and a cry with her about it.
Things are still just sinking in even now and i’m constantly asking questions (as the girls on this thread are aware!!) but it never matters how silly they seem someone always listens!
take care
xx

Hi Aphros, welcome to you too

Please check out the post I have put up for Woodlark, you may find the information helpful too, please do let us know if there is anything else we can do.

Take care
Lucy

Welcome Woodlark, Aphros, to our crazy gang. Its horrid and a real shock as we all know too well, but eventually so much is going on and happening that the enormity of diagnosis slips into the back of your mind. you are not alone we are all in similar boats so just rant, rave, ask for advice etc you’ll get it all here. I think that the worst aspect to come to terms with is to accept that the hospital holds the reins so you just have to do what you are advised. remember that it is all to move out the uninvited lodger and remove any housemates he might have sneaked in, so it is YOU who are in control here and fighting back!!!
Laura, Pixielox, susanne hope you are all doing ok and have a great weekend
Rachel, I can just imagine you going for your wig appointment… nightmare!! Why dont you have a blue one? take a qick vodka and lime with you…Haha
Caro, have a fabulous holiday you lucky thing! Ive just booked 3 nights in Ludlow (doesnt really compare)to go flat hunting with my man, hope I feel well enough to drive, if not it’ll be the train i guess but Ill be halfway through the cycle so should be better I hope.
Evie, (Sue?)ive got exactly the same wig as you but mine is blonde!! Haha not only chemo sisters but also twin haircuts!! Thats how Ive got my hair now, when i lost my long locks last weds(boohoo) i cant work out how to upload my picture but my son keeps promising to do it for me so i’ll try maybe on sunday when Ive got family gathering.
Benjamin Button was very strange…very long… dont really rate it much!
Thank goodness the sickness seems to be just queasyness at the moment, Dr gave me Domperidone supps and they seem to have done the trick!!!
Have a good evening all, love n hugs xx

Thank you all for the warm welcome, it means a lot x

Welcome new ladies to a great group all dealt the same duff hand!

We are all on the way or have started chemo.

Weve all been there at initial diagnosis and the rollercoaster that follows. It is rubbish but it gets clearer the more info you get and the plan gets in place. Waiting is the worst and it feels better once things eventually start happening. Get as much support from those around you as possible- it really helps.

have good weekend
S

Hello everyone

I have previously posted on a couple of other threads, but was getting confused trying to keep up and remember everyone. So, thanks to those who suggested I join this discussion.

I’m 38, with a 10 month old baby boy. Was diagnosed with invasive breast cancer on 28th May (four weeks after going back to work after maternity leave!). Had WLE on 1st June, then saw consultant again on 10th June, who told me that I would definitely need radiotherapy, probably chemo, and maybe hormone treatment. She arranged for 6 lymph nodes to be removed on 12th June.

The 3 weeks since I was diagnosed have been an absolute rollercoaster, and if I’m honest I really don’t think it has all sunk in yet. I’m so lucky to have supportive family and friends around, and I hope I will make new friends on here - I am so sorry that we are all having to deal with this nasty, cruel disease : (

I made an appointment with my hairdresser to have my long hair cut off next Wednesday (in preparation for the chemo). While I was waiting to see the oncologist for the final results on Wednesday (17th), I was approached by the lady at our hospital who deals with wigs, and she was so lovely. She had a good look at my own hair, and promised to order something suitable for me.

Finally (after an hour delay) hubby and I went in to see oncologist, who was lovely. She gave us the fantastic news that the cancer hasn’t spread to my lymph nodes and that the tumour removed had clear margins. She is still waiting for my HER results which will take another 2/3 weeks, but she said she is happy to arrange my treatment plan on the basis that I WONT need chemo!!! So, I am booked in to start radiotherapy on 20th July (unless the HER results come back different to what she’s expecting, but cross that bridge when we come to it) Local hospital doesn’t do radiotherapy, so I will have to spend Monday-Friday for four weeks at the Western General in Edinburgh (two hours from home). Parents live in Spain but they are going to come home and stay here so they can help out with the baby while I’m away. She’s also suggested 2 or 5 years of Tamoxifen as my ER level was 3/8 which isn’t that high, but she thinks the drugs may help lessen my chance of the cancer returning.

Sorry, this is turning into a novel, but it’s actually helping me get things clear in my head by putting them down here.

Evie, I LOVE your new wig - it looks absolutely fantastic! I have decided to still get my hair cut next week (despite having spent 60 quid on it two days before I was DX) I think a new style will signify what I am going through - don’t know if that makes sense.

To all those new ladies who have just been diagnosed in the past couple of days - hang in there!! I think I spent the first week in a total daze and didn’t sleep at all, which doesn’t help. As someone else has said, once you have a treatment plan, and know what you’re dealing with, you can understand what’s happening a bit more. Also, I went to the publications site on here, and ordered a lot of booklets and a resource pack. They arrived within a couple of days and have been an amazing help.

So, thanks for having me, and I look forward to making some new friends, and hope we can all support each other.

She xx

Hi woodlark, laura, aphos and she

its horrible when you are just diagnosed because you are bombarded with info you dont understand and in that state of total disbelief that is is actually happening to YOU!.. this only happens to other people.

i have just been diagnosed for the second time with a new primary and sadly it isnt any easier second time around.

this is a great site for information and all the lovely ladies here will help support you.

caro hope you love your holiday and get used to your new hair-do.

sue your wig is lovely, im hopng to go for my wigging sometime next week.

mumzy although some people dont lose their hair i have been told that 100% of people having epirubicin (the ‘E’ of FEC) unless you use the cold cap and thats not 100% effective either.

Lulu xx

Hey ladies!
Rachel- hope you are havign a good weekend! My wig is now in the hallway on its stand freaking out my kids and my husband. I feel quite fondlty towards her!! Ha!

She- you are lucky not to have chemo. I have good margins and clear lymph yet i am having 8 cycles! My consultant is obviously very different tio yours. I am er positive 6 out of 8 so perhaps thats makes a difference? who knows.

Lulu- Go get your wig! its quite amusing and i tried on a number including an old ladies one which proved very amusing to me and my mate! The lady seemed amused by us! God got to have some fun while we can.

Pixilox hope the weather has improved and you feel bit brighter- its bloody miserable in norfolk!

Mumszy- hows the side effects going? any better?

Caro- now in US? or nearly there i guess!

Everyone else- have lovely weekend wherever possible!

S

Evie, bit better today, achey legs bit queasy and nasty taste but 100% better than yesterday!!
have a nice sturday and thanks for your good wishes, it does help soooo much! xx