Coming out the other side - one year on!

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1801

Sue, good luck for your surgery on wednesday, it has been so long for you. Hopefully it will all go straight forward. I came out after 2 days with drain in, district nurse came out to check it a couple of times and then i went back a week later for it to be emptied. Sorry to here your nails are so bad. Hang on in there, looking forward to a real good laugh at CP with all my new friends who do understand, my ‘best friend’ has been the least supportive of everyone, making hurtful comments. I began to wonder if it was me being over sensative, obviously not.

janey, your pic looks fab, you look like me now…cant wait for CP group picture, it will be amazing. Keep up the practice for CP, i will be in training over xmas

Family pic of the kids went well, despite two of them being hungover, check one of them out on my FB page

Hsf, i had SNB but not till i was under for my op. Had 4 out but it was in 1, apparently the sentinal one and no further so didn’t need full clearance just chemo and rads

caro, i can cope with debs and julie, i will just supply them with lots of wine and then hopefully they will sleep like babies. Smelly feet will be the least of our worries when 8 women in one villa have had a good feed and lots to drink … need i say more?

julie, congratulations on your last rads, you finally finished all your treatment. I know it will be scary but we are all here for you, anytime. You have my number chick

Lulu, hope your coming out the other side now

Debs, rach, mumzy, pixie, karen, dawn, rhian, gina and janice )god i hope i havn’t missed anyone) hope your all doing ok, thinking of everyone, keep going girls, we are all getting there now, luv pauline xxx

1802

good evening all

well 1 rad to go, and really sore now am seeing nurse tommorrow as my boob will keep cooking for a couple of weeks, tried to get in doctors today for another sick note and something for my painful leg, but guess what couldnt get in , rang from 8.30 til 9.00 finally got through not apps left, so just asked receptionist if she could get doc to give me a sick note, great isnt it, so will see how long i get

jayney your hair looks fab, mine is getting darker and coming abit more, will take photo when it thinkens abit, are we all going to look the same at cp, will have to have name badges

pauline thanks feel ok at min , decided to trim the house up loads for xmas,kids deserve it , will be intouch

erin you have really suffered, and it does seem to be dragging on for you, when i had my op i had codine, paracetomol and diclofenac for pain which i took for about 2 weeks, dont let them fob you off with just paracetomol, you need to be on form for cp

no what you all mean about friend or not, i went to see a so called friend, who had delight in telling me ,she was glad i had put weight back on, didnt see her again until she rang me to see if i would take her son trick or treating, which i did, havent seen her since, i certainly no who are true friends, since losing my dad i realise how important my family is and my true friends
you guys on hear have been great, couldnt have got through it all without you julie x

1803

posted on another thread but just a quick update… was seen by my onc today for post chemo review… he thinks i maybe got uti so took bloods and urine sample so should find out tomorrow if im ok or not… but on prophylactic antibiotics this week cos chemo bloods were low.

but had noticed a new wee lumpy bit above where i had tumour removed, thought i was imagining but onc could feel it and referred me to breast unit and doc there could feel it too but said its most likely just tissue from surgery in may but im getting an ultrasound on friday week so have a few days of nervousness between now and then.

still feeling crappola from that last chemo and have to up my omeprazole as have nausea and reflux… so hope that works.

back on the diazepam too to help me sleep.

julie hope you boobie is ok

erin they are a bit stingey with the old analgesia… i had co-codamol and tramadol post op and to take home and still take fairly regularly. also i think you can speak to macmillan nurses about getting a grant and also applying for ESA. im now down to half pay as been off since 14th may and apparently payroll are supposed to have been intouch about ESA but iv not heard anything or recieved paperwork about it and ssp will be stopping soon.

jayney you look great… think julie is right with the whole name badge thing maybe wee need our name printed on those CP t shirts too LOL

love to all

1804

morning my little chums of chubbiness
Oh bigglies and sue-erin I am so sorry for how crapola you both feel. It will get better!
My nails are starting to grow back and are less painful now just 6 weeks post dose.
Sue re the analgesia ‘pain is what the patient say it is’ they have to morally and ethically ensure you are well analgesed! use a pain scale yourself tell them its 5, or 8 or 3 you may even be surprised by how little pain you are in!
Hsf - I had no need for SNB it was quite clear from the ultra sound that the cancer had spread well into my lymph nodes and that they were affected. The post op histology confirmed we did the right thing when more than 50% were confirmed as cancerous. then again I had two large tumours and a pepper shot of high grade insitu cancer throughout the breast - sadly it could have been picked up 2 yrs earlier when I has a CT for a lung a problem and they noted enlarged lymphnodes then but failed to check it all out and i was so relieved to have my chest sorted that i also failed to follow it up.
Again girls thank you for your support with gabs - she came home sobbing again - this is getting ridiculous - my girl is being picked on by the girl and her mum that have accused her to begin with (does that make sense?) I told her to be strong Xmas break is only 18 days away and she can then chill out for 3 weeks! We are in regular and supportive contact with the head teacher btw.
traking mum out for more Xmas shopping to day - this time bridge end retail park! ( I know all the hot spots lol) we are going after my rads! Skin still good so far!
Biggles I have pmd you!
So fellow BBFMC members - live long and prosper or blow it all and have fun xxxxxx

1805

Good morning ladies

Reading the posts just goes to show how the treatment varies around the country.

I had my axillary lymph node clearance yesterday (level 1) as a micro tumour showed up in my SNB.

I was told while in hospital yesterday that the Isle of Wight has the fastest times for BC treatment. That certainly seemed to be the case when I went from the Dr to Triple test in 5 days and surgery in about 15 days from diagnosis.

I have a drain in and got up early because the District Nurse is coming today so I thought I had better raise my lazy body. I am wishing I had stayed in bed!

At least I managed to make it home yesterday unlike my first op when I was really poorly. The aneasthetist gave me an added extra with the GA and that did the trick at keeping sickness at bay till 6am this morning when it caught up with me.

Hubby lit an open fire for me before going to work this morning as it’s so cold. We do have heating but it doesn’t seem to keep up in the very cold weather.

FEET UP TIME!!

Love to you all Vicky xx

1806

Good morning Everyone,
Erin good luck for tomorrow, like Lulu I had tramadol and still take it so if you are in pain let them know! I had patient controlled analgesia (PCA) of Morphine and can heartily recommend it, if its sore theres no need for you to suffer.
It seems really strange that some of you have finished when I havent even started my rads yet, Im well fed up that I have to go for treatment both Xmas Eve and New Years Eve. I only finish on the7th Jan so will still be cooking at CP–what a bu**er!! Spose no swimming for me.
Mind you I dont think hangovers and swimming go too well together! I think we will all look as though we’ve been to the same hairdressers at CP, it will be lovely to not look odd, we will match, everyone else will look “odd”!!
I’m cleaning the house today and doing bed sheets and towels, ironing etc… boring but I’ve realised that the house really needs it and I hate it when its a mess! John is probably the messiest person Ive ever known, so as he’s at work today, its the ideal time to get on with it!
Have a lovely day everyone names are too many for my lingering chemo brain,
love n hugs
xxmumszyxx

1807

Sue (Erin) good luck for tomorrow, thinkin of you! Take the meds as Rach says. Can you not get a DN in to sort things??? Sorry the nails are so bad and painful. Sorry you are still feelin crappola Lulu, UTI on top and a scan to come. Big hugz (()) Let us know how you get on. Thinkin of you.
Well done to all of you finishing rads - I feel so far behind! Hope your rads are going ok Pauline and yes, perhaps name badges would be a good idea for our CP soiree! Julie - hope nurses have tended to sore boobie and it’s eased a bit. Enjoy your xmas shopping Rach and hope the rads are going well.
May have to get some sleepin pills - just so tearful since last chemo and I think I would feel better if I could sleep. Had to go back to bed yesterday afternoon. Getting sick of the sweats now! My nail beds are really painful, so I may be following you Sue! Vicky rest up by that fire.
Have just made my xmas pud, so that has cheered me up a bit and have opened first door on advent calendar! YAY!
Have a good day all and hi to everyone!
xx

1808

helloe ladies!
Weve been a right old sick house! Girls had hand foot and mouth and the baby was just terrible!Covered in painful sores- awful in her mouth- with a 39+ temp. Been out of the house today for the first time since thursday!
Ive been a miserable bugger lately. Sparked by my end of radio consultants appointment when rather than look at the positives of finishing he started going on about ovarian cancer and told me if the cancer returns it will be secondary so terminal…he needs to get some people skills! Its made me take a step back and realise things for me are better than others but my age dominates it all.
Erin (sue) your poor fingers. sound terrible. mine are simply ridged and i feel lucky. good luck for your op too.
Rach your poor daughter. Cancer has made me very intolerant of stupid people moaning and bitching when they have no idea how precious life really is!

Anyway , gotta do some online xmas shopping while kids are asleep
Lots love to everyone on the thread

S
XX

1809

Sue - too bloody rite girlie chick - I agree !
I’m so intolerenty but as dawn says it maybe due to the tamoxifen - just home from shopping and had mum in stitches as my face got redder and redder and redder, I had car windows down, A/C on freezing and its only 2.5 degree out. Five mins later it happened again and in about 20 mins i had had 3 R.E. (RADIANT EPISODES) each one worse than the first. Mum being old time matron had no sympathy and just kept laffing - charming!
Builders nearly done but the snagging is dragging on and on - I want my house back.
Off to make two types of rocky road for gabbys 10th birthday - so she can take them to school and share with everyone including the trouble maker (LOL she will make a song and dance of it too knowing gabs). If anyone likes rocky road I can make boot ful for CP?
love to you all my chicks
btw Vikky get well from the op and sue-erin good luck darling one xxxxxx

1810

lulu, what is UTI ? sorry am i being thick? also lulu julie M and me rang and sorted our own ESA out. All we had to do was ring the job center and fill in a form over the phone, took about 30 mins and then it done, just had to send in some forms of ID in. work said that it was my responsibility not theres.

Rach, rocky road??? need a sample me thinks

Sue evie, sorry to hear you have poorly little ones, hope they are better soon.

sue erin, good luck for tomorrow

Well just a short one tonight, tied from rads today. seen doctor, going on tamoxifen in 2 weeks and being refered for a oopherectomy as i have ovarian cancer in family too.

Luv to you all including those i havn’t mentioned, pauline xxx

1811

Hi everyone

I just wondered if any of you have just watched Lipstick on Sky True Movies. It’s a film about a girl in her twenties who gets BC and it was so good, based on a true story. She has a MX and chemo, and then goes on to have two babies.

I’m still in tears after watching it cos I could identify with everything she was saying. Poor John had to leave at 9.30 to go to work and I think he felt awful leaving me.

I think what stuck most in my mind was that she referred to angels she met along the way (people who helped her, eg a taxi driver who it turned out had had testicular cancer years ago but was fine now, and a bald drag queen) It just made me think that all you guys are my angels, helping me through the past six months, and the future surgery likely to come.

Lots of love

Shenagh xx

1812

what do you call a short clairevoyant who escaped from prison?
A small medium at large!!!

Sorry - thats one of my sons!

Just popping on to say hope everyone is keeping well - good luck erin for tomorrow. Lulu - hope you are feeling better soon and fingers crossed for your scan.xx
Caro are u still getting breathlessness? I’m quite bad with it at the mo, i only noticed because at 1am last nite one of my smoke alarm batteries started to go - i took the battery out of the one near my bedroom and got back in bed and 2 mins later BEEP…so i went downstairs and took the one out of the landing and went back to bed then…BLEEP…so i went downstairs and took the one out of the kitchen - this one has 3 batteries in it and i only took one out and went back to bed…then whaddya know…BLEEP so i went back down to take out the remaining batteries and at this point it was ME doing the BLEEPING!!! Why do batteries in smoke alarms only go in the middle of the night?
nothing else much to report…i’m a bit bored…did you guess???
Nite all.
xx

1813

Pixie that made me laugh images of you in jimjams removing batteries!!!

Sue i had hand foot and mouth once caught it of a child at school very unpleasant i had terrible mouth ulcers hope they get better soon.

Jayney your hair is fab mine is getting longer but so grey it doesnt show up!!!

Erin hope all goes well tomorrow

She film sounds good will remember it when i want a good cry!

Well I saw onc and she reassured me on lots of things including leg pain and next appt is June! now that is scary!

love to all members of the BBFM club Debs xxxx

1814

pauline UTI is a urinary tract infection but feeling better today and doc called tonight to say it was fine… think its just an SE of the chemo i always seem to get symptoms in middle week… also on ABs so maybe has helped fend it off. thanks for the info re the ESA… will give the dss a call tomorrow… payroll are sending out an ssp1 1st class.

also feeling a bit better about lumpy bit now i know i have the scan appt.

pixie was lolling at your joke… and your BEEPing antics in the middle of the night.

awww shenagh that was so sweet your all my wee angels too xxxx

rockyroad sounds yummy rach… think i wouldnt mind a wee sample too

sue-evie sorry your girlies have been sick chicks hope you managed to escape the lergy and your little ones are recovering well… as for your cons telling you if your cancer comes back it would only returns as secondaries is a load of rot… lots of people get recurrence which isnt secondaries even when they are young… i think maybe he means there is a higher risk of mets than in older women but that doesnt mean you would get a recurrence or that you will get mets either… you really have drawn the short straw with your consultants hunny.

sue-erin fingers crossed for tomorrow.

jayney sorry your feeling crap i think you and i have certainly had some extra strong potion for that last chemo… i still cant sleep during the night and feel knackered during the day… i have some diazepam which i take occassionally so i get a decent sleep every now and then but its random times like 3am to 11am.

lissie my rads are from 10th dec to 20th jan which goes right through CP weekend but was hoping i could still go in the spa… but will ask them next week when i have my simulator as need to cancel one of my rads on the mon too cos wont be back in time… naughty me!

debs you must feel like your getting somewhere if you dont need to see onc for 6 months… my onc has discharged me till next year too… although now seeing radiologist and then back to see BS in spring.

love and hugs to all of you lovely ladies xxxxxxxxxx

1815

lulu - i’ve been having wee problems too on the cmf, but just sort of ignored it and it seems to ease after a bit which is probably why i forget to mention it when i see my onc.
I have difficulty with the sleep thing too - i just dont ever seem to feel tired but then i’m not exactly bounding with energy either. Its a bit of a viscious circle - i’m resting as instructed but then not doing anything means i’m not worn out at the end of the day! Just cant seem to get a healthy balance!!
xx

1816

Morning! 3 am and the gr8 thing about insomnia is the fact that the asda on line shopping opened its bookings for delivery on 23rd dec - ha got a slot and that has never happened before!
So hopefully no queues in the supermarket let them do it all…
Pixie your do make me laff, the weeing prob comes from the cyclophosphomide, I’d mention it, it may just be an infection or an SE
She you soft girl - xxxxx to you my angel xxxx
Made huge amounts of chocolatey stuff today - made grown up rocky road with dark choc and rum, spiced cran berries and ginger biccies - will hace sample tomorrow - let you knoe if it works
Sue-evie thepoor little mites - as if they aven’t been through enough already - Oy Vay!
Mumszy - i went swimming after rads - not sure if i shud have but skin holding up fine at the mo and I only have 5 sessions left
I’m bot ignoring the rest of you BBFMC member sbut i suddenly have th eurge to sleep and that doesn’t happen often at 3 am so I’m gonna act on it
BTW how is janice?
love and hugs nanoo nanoo xxxx
p.s. I’. playing spot the sci fi prog extra helpings of RR at CP if you can name that prog xxx

1817

Hi

I’m not here much but am Mother of 4 bed at CP so thougt I would share yesterday with you…
Went for hysteroscopy yesterday under local anaestethic (cant spell) - Hurt like hell when consultant put te speculum in - agghh. he got nurse to turn screen so I could see - happily watching the camera zooming up and down my cervix after he gave me a local - suddenly AAAAAAAAAGGGGGGGGGGGGGGGGHHHHHHHHHHHHH NOOOOOOOOOOOOOOOOO
camera whooshed through to uterus with hot water - if my legs were not strapped into the padded stirrups I would have kicked all their bloody heads in -----------it was absolute agony - i ad thsi procedure 12 years ago and i was fine- i screamed and sobbed and crued - he quckly removed the tube - and called for an anaethasist to come through - the nurse holding my hand was in shock as were the rest of them - they blamed the CHEMO - the anae was lovely and shove d gas and air on me - and stred finding a vein for the canula - I was laughing - was so strange scos they let me wear a cardigan in the teatre as it was soooo coooold and now they were trying to sort me out with monitors etc - the laughing gas worked and i was gigling in agony - then i was lucid again - oh no I ought she hasn’t put me out - but she said its ok I was just getting oxygen now- soon sleeping thank god - waking up and drifting - bad period pain and not had one for nearly 3 years. Got back to the room and rang my Don to come and get me - he nearly went to two wrong hospitals cos line was breaking up - but turned up 15 min later.

Lunch arrived - soup - sandwich and fruit salad - cappcino - yum yum ate the lot and another sandwich - two pacets of biscuits and two more cappucinos - tank you BMI (private).

Mr Dildo the consultant came rushing in to see if i was ok - think e’s worried I am going to sue…why didn;t the local work???
They blame chemo for everything - anyhow polyps are ok - biopsy taken but he said i will be ok to have tamoxifen.

I just cant have a normal cycle of chemo with good days/weeks I have a trauma everytime - pain killers holding back the pain. Sorry to be explicit but please don’t have anything else done while you have chemo - I am bit stupid - thought I would save time off work after etc - what a twit!!!
I have been up AAAALLLL night - know what you mean Pixie tired but not exhausted etc etc this is crazy - got to see both oncs at 9am and 9.15 so better get ready now xxxxxxxxxxxxxhugsxxxxxx

1818

OMG LYN! you poor lamb - loved the description of the close up of your foof! At least you didn’t have any hairs to get in the way or get caught in the hinge of the speculum !
I cannot believe that I got a delivery slot for my asda shop on the 23rd - whoop whoop no more fighting over that jar of cranberry sauce
Off for rads now - then doing a bit of retail therapy for gabbys birthday - she wants a new DG! Just like her mum bless!
I will also be buying a pot grown xmas tree for outside, somemore outside lights and a new sofa
love my darlings mwah mwah xxxx

1819

Hellooooo all you Angels - She , i too will be taking a look at that film, though i think i need to 1. find my halo, 2, polish it up a bit, 3. try and find a way of stopping it sitting on an angle ha ha

well i am back from gods chosen land ha ha

Well Rach you are offically Mrs Christmas. Did you have that fab frost and whiteness on Tuesday morning? I went to the christmas fair at Buith…too many people but did get a few odds and sods
Biggles - how did the bone scan go?
Caro - that so called ‘friend’ needs a punch …see told you my halo slips
Erin - thinking of you today and your surgery, having the reduction at the same time is a good move, wish i had done the same, my reduction side is taking so much longer to heal etc must be because of the hammering chemo, rad did to my bod
Jayney - you hair looks fab, the sweat do get better i promise, mine haven’t stopped but its now only one/twice a day not once twice an hour
Evie - hope your little ones are better, you still amaze me , when i am feeling a bit sorry for myself i can at least close the door and hide away, you are my insiration, as all you girls with babes are truly
Gemjunkie, i had polyps removed mid chemo, and my consultant insisted on me having a general…thank god i can’t believe you went through all that OMG
Pixie…yes batteries fail at teh most inapropriate time always gaurenteed :wink:
Lulu hope you feeling better, watch out for thrush ontop of it all as a result of the AB
And big hugs for the rest of the Angels out there

A little story to bring a smile i hope…I have been selling stuff on ebay to bring in some cash…had an old ( very old and worn) pair of Ugg boots the real thigs its just the were totally falling apart but put them on anyhow and was totally honest in saying the condition…got a message from a buyer saying could they be collected if bought, i said no because i didnt want the hassle and said i only posted items…got a message back saying thats a shame, HE would have liked to buy them along with any ‘old slippers’ i had…how wierd !!! there are some crazy people out there :slight_smile:

xxxxxx love and hug to all those i haven’t mentioned Rhian xxxxx

1820

Rach; nanoo nanoo is from Mork & Mindy!!! I was first so I’d better get the extra helpings of rocky road!!!