I am on tamoxifen for 5 years. Like you, when it was first prescribed I was worried as there seems to be so many posts about awful side effects and so I thought for sure it would be horrible. Please remember that not everyone experiences these, Iāve been on tamoxifen for 1.5 years and have no issues at all. x
2 Likes
This is very reassuringā¦ thankyou 
xxx
2 Likes
How do you feel now youāve got more info? Hope youāre feeling abit more reassured. It really is an awful time waiting, we all completely understand your worries!
I felt the same when they mentioned some of the therapies messing with fertility, I have 2 beautiful daughters and tbh am very happy with 2 but it was still very upsetting to think that choice could be taken away from me (as grateful as I am with my 2 itās still a kick in the teeth isnāt it).
Iāve read lots of different opinions on tamoxifen but have seen alot of people who arenāt really that affected by it. Iāve read it really helps to stay healthy and active on it to reduce symptoms too! Xx
2 Likes
Bless you, your story sounds so similar to mine. Indent in right boob, everything pointing to cancer. The worst part is waiting on the results.
I managed to get my head around mastectomy of right boob, so was floored when I was told I had cancer in left as well. Right is ILC and left IDC. Go figure.
3 weeks ago I had bilateral mastectomies. Recovering well. Waiting on Oncotype DX results to find out if chemo is required. Sentinel nodes were removed and clear.
It feels like a slap in the face, but youāre in good hands. My surgeon has been wonderful tbh. I cannot fault her or her care.
Youāve got this, weāre right beside you. 
xx
Sorry to hear about your dad. Itās so bloody tough. Youāre going through a lot of emotions at the moment. MacMillan are brilliant and when youāre ready can offer therapy.
2 Likes
Hi sweetie just read your post, my heart goes out to you for what you have dealt with so far with family, a break up and teens, wow you are amazing.
Just want to say firstly I have just completed my cancer chemo journey, started May and last session was today. Been a little rough but support and information from this forum really helps, family and friends will eventually accept and work with you, I guess loved ones want to remain positive for you so will look at different scenarios rather than fear the worst for you at the moment, my eldest daughter did!
Youāve been so brave so far to get all the necessary check ups and as much as it is frightening and challenging, the family will find the strength to help You this time. I too kept strong for my girls but they dealt with it as long as I was open and honest with the treatment and side effects,
If you have to go down the treatment route, you will be amazed where your strength comes from and by the sounds of it you are a strong lady who wont let it get the better of you. I am so pleased you have found this site, you will get comfort and reassurance from some of the most finest strong ladies on here.
Love and best wishes to you on your new journey, 
keep going sweetheart
2 Likes
Exactly why we are all here. You can be your honest self and share your darkest thoughts with no judgement. You are bound to feel overwhelmed with all that has happened to you but YOU will manage this. There is no choice. We (women) spend our whole loves wearing idifferent masks for different people/circumstances. Its Ok to be scared. We hear you. xx
2 Likes
Hi ive been through all what your saying and luckily ive come through the other side after having 10mm lump in my left breast which was only found through having my mammogram . Theres nothing right or wrong with what people say , i just think they dont really know what to say , all positive talk is good , it dosent stop you worrying though . Try to stay posotive , its hard i know but chatying is good . I called Mcmillan and chatted with a lovely lady . Give it a go . Good luck 
Hi there,
Iām sorry youāre having to go through all of this. It is challenging, especially when youāve had/have lots of other things going on as well.
Iāve been diagnosed with Grade 2 IDC last year, luckily relatively small tumor and no spread, so only needed Lunpectomy, sentinel lymph node removal and radiotherapy & hormone treatment for 5 years.
I can give you some info about my experience with Tamoxifen. Like you, I was really worried about taking Tamoxifen, I had heard and read all these horror stories and about women stopping the treatment because the side effects were so bad. Iāve been on it now since the beginning of the year (with a 2 month break due to some other, unrelated surgery). Apart from having to be careful not to get constipated, Iām doing really well and donāt seem to have any noticeable side effects.
From my own experience, I would say, try not to worry too much about the things that have not happened yet, as you/your body might react very differently to the next person. Easier said than done, I know! 
Iām generally a massive worrier and the first thing I did as soon as I was diagnosed, was looking at wigs online!
Try to take it one step at a time, talk to friends and family, go out/have fun/laugh as much as you can, thatās what got me through. And do ask for help if you need it. People often donāt know what to say or do, but they want to help. Make sure you make the most of it.
Wishing you all the very best and as positive an outcome as possible.
Lots of love xx
2 Likes
Hi, so sorry you are on this roller coaster. Itās such a lot to deal with. This is a good place to come to talk to people who really do understand. I wish I could send my arms to you for a big hug but Iām afraid it will have to be contained in this message. You are not alone with this.
1 Like