I was diagnosed with breast cancer a few weeks ago and at my biopsy result appointment i could have sworn they said it was ER+ve as could my mum who was with me. However since that my breast cancer nurse has said it was ER0 and my copy of the letter to the GP arrived yesterday and it says -ve. I havent really had chance for a proper chat with my nurse as yet as they had an opening for surgery for lumpectomy and SNB on 7th so ive had the surgery now. I am going for a wound check tomorrow with the results appointment on the 22nd when i should get pr, her2 and the results from the lump and nodes . What difference is this likely to make to my treatment options and prognosis?
Edit i was also told its grade 3 but dont know about stage as yet
It can make a pretty substantial difference in treatment depending on the type of breast cancer. Some have immunotherapies, some don’t. Some require extensive chemo and others don’t. Once you know for sure what you have though all the treatment options will be given to you.
Don’t worry too much, it’s probs cos the test for the HER receptors takes a while and sometimes it doesn’t come back either definitely negative or positive- there are 4 levels ranging from negative to borderline to positive so maybe this is where the confusion comes from (just dug all my paperwork out from when I was at your stage)!! That’s what was explained to me last year. It’s so hard at the beginning waiting to find out all the details but you’ll get there.
Hope this helps, keep asking any queries that u have on this forum. I have found it SO SO helpful. Otherwise u will feel alone even if u have a good support network xx
They will not know for sure what your diagnosis is until they’ve had your lump under the microscope. In my experience, the initial diagnosis was partially wrong and now I know that this is quite common. When you hear the histology you will know what you are dealing with and what the plan is. The waiting is so stressful and it’s very hard not to worry but worth reminding yourself that worrying won’t change anything. I wish you all the best.