Confused

good evening ladies,

Am I just missing something or being kept in the dark???

There are a few threads i have read where ladies seem to have a lot of information on their following treatment without having their MX.

I am due to have my MX and full node clearance on the 9th December but further treatment will depend on tests and will need to wait a further 7-10 days…I am grade 2 invasive ductal and bi-opsies show lymph nodes are affected also

Am sat here with a furrowed brow please try and enlighten me, or am I just reading too much into this

thanks

Julie x x

Hi,
I think that mainly it is the way different hospitals or even different Drs work. They will have some idea of the likely treatment from what they already know but won’t decide on the exact trearment till they have all the info in front of them. If you want to know I think it a reasonable question to ask your team, just ask what is the likely treatment plan. From what you have already said I wouldn’t be surprized if you were to be offered both chemo and radiotherapy, BUT I’M NOT A DR! Other treatments like hormones will depend upon your hormone status and other things like HER status etc. As I say, they make the decision based on the full information but they might be able to give an idea of likely possibilities if you ask them.
Good luck, Julie x

Thanks julie,

Got a meeting with my BCN on Monday so will ask a few questions then

julie x

I also think that some people don’t like to be overwhelmed so they don’t want to overload you with info and jargon and terrifying words like chemo at the start! I wanted information and had to push for it - and also wanted to know what to expect.

What other info are you after? Have you met with your oncologist yet? They will be the one to talk to re treatment.

I hope it all goes well.

make sure you get Breast care nurse assigned to you (and one your happy with, there are 2 at my breast clinic and i preferred one over the other). anyway she has been very helpful and supportive for me over this last week or so with any questions or concerns i have. i have also rang this website helpline a couple of times and they are good. i spoke to a nurse on helpline one of the times and she was really helpful and knowledgeable , plus they are good to listen to you if you are feeling low. i was apprehensive about ringing up thinking it was i wasn’t coping well, but realised that was daft and just rang up and it has helped. people on this forum are caring and helpful too. take care xx

thanks for all your responses x x

I have not met with my Oncologist yet as the team are saying further treatment will depend on test results once my nodes and MX are complete. I will be speaking to my BCN on monday for what we have decided is my new boobie day (looking at my prosthesis)

Am sure whatever is decided will be the right decision…

Just frustrating when you have had your diagnosis and am still unclear on the treatment…oh well trying to staying positive and know the support on here will be invaluable

take care all x x

Julie x

Afternoon,

just a quick update …

had a lovely meeting with my BCN this afternoon and clarified my confusion…

thanks for all your suggestions

J x