Hi everyone,very new to this but decided i def needed some support,because life has been very alarming for the last FOUR months……here goes….had routine mammogram on 4th dec,called back and had biopsy was told it was dcis,biopsy caused a haematoma and this meant that 2 mri’s could not be read properly,underwent wire guided op on 31st jan got an infection,antibiotics for 5 weeks…new surgery for clearance 1st march,lymph nodes clear but more dcis and evasive cells so told need mc and then maybe chemo!!! date given but consultant changed, because of breach dates!!! new consultant seen on 24th march all change surgery canx!!! wanted all results and then after mdt meeting I’m now due to see oncologist 7th march because they need me to have chemo first + herceptyn. I’m so so confused, how can things change from one consultant to the next(both in same team) and feel no further forward 4 months later!!! usually I’m very upbeat and too chererful(I’ve been told) but I’m feeling pretty down at moment…have 3 great kids of 24,19 and 12 so am trying real hard to be positive for them and my fantastic hubby.
Hi
I was dx officially on the 7th Dec. I say officially because on the 16th Nov, when I had mammogram and Ultra-sound I’d guessed it was bad news and pushed them into telling me what they knew so far.
I then had 2 weeks of scans and after a couple of false starts(Dec 20th and then Jan 5th) due to an allergic reation to Doxcetactol, I began chemo on the 12th Jan. I asked to have chemo prior to mastectomy because I though i would cope better.
At the time my Consultant said that they had a certain time scale to get things moving otherwise they wouldn’t get paid but equally not to worry as she felt that she had plenty of time to decide on the best treatment (3-6 months).
You seem to have been passed about a bit too much and been given different messages. I would make another appointment with your Consultant in order to clarify the reasons behind the thinking and to confirm exactly what they know. The Consultant and the Onc should meet up to discuss the best approach together, ask if this has happened.
I think what you learn as you go through this is that you need to stay on the ball, none of the professionals forget, slip up, misunderstand, etc on purpose but it does happen.
It’s time to stop going for ‘The Most patient Patient’ award and start making a bit of a fuss.
Best of Luck.
x