Evening peeps. I have been taking Abemaciclib for about 5 months. My neutrophils are finally in range albeit only just. My husband has tested positive for Covid today and I am worried about coming down with it given that my immunity is slightly compromised. I have had 7 covid jabs to date, the latest in May but wonder if I am at risk if I do catch it? Has anyone on Abemaciclib contracted Covid and if so, how were you? I have called the chemo unit earlier but they probably won’t get back to me until tomorrow . As ever, I am paranoid about other illnesses . Thanks for “listening”. D x
Hi, I commenced Abemaciclib 10th October last year and developed covid on New Year’s Eve. I felt rough for a few days and my oncologist gave me a weeks break from Abemaciclib but I was ok. Chemo was a lot worse than covid.
Ahh, thanks for this Shade 
. I am so flippin paranoid about germs. How are you getting on with Abemaciclib? - My dose was reduced to 100mg as I had an awful upset tummy all the time - I seem to be better but still have to take Loperamide 2 or 3 times a week but it is manageable. My hair is still awful though but can’t really complain as I managed to keep 70% all through chemo using cold cap. My nails are terrible too 
Take care of yourself and enjoy the summer 
(if you are in the UK) 
elsewhere I hope 
Can you stay away from husband as much as possible?
Do you have covid test kits at home ?
You might be able to get covid antivirals if you get covid -
Ask your Chemo helpline -
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Hi Denido,
I cold capped too but did loose over 50% of hair and had a couple of bald spots. My hair has grown in, but is thinner on top and that area feels tender to touch but to look at no obvious bald patches. I’m a year on 26 July since the end of chemo. Hair is dry so I use a hair mask and wash it every 4 days and apply an Aragon hair oil (small amount) in the morning. I used to have hair that tended towards being greasy.
I am still on 150mgs. I am taking loperamide every other day, on holiday it was daily. I feel tired have some bone tenderness but bone scan and bloods are ok. I think that bone pain is caused by the letrozole. I try and keep active, walk, use my bike and do what I did pre cancer but it’s an effort at times. I find dealing with the worry of recurrence the most difficult and I know this is something I have to live with. Pre cancer I never worried about serious illness but we all are at risk of illness none of us are immune to it.
I wish you well with the rest of your treatment. I just try and take one cycle of Abemaciclib at a time. I try not to think too far ahead. If your neutrophils are above 2 you are doing really well as that is in the normal range. I think mine were about 1.6 when I had covid. Take care Shade
It’s Argan oil not Aragon.
That made me laugh - I thought you were channeling your inner Lord of the Rings 
I have same issue with hair, had slightly greasy hair before but now it’s a dry frizz and I too love a bit of Aragon - never thought I’d get away with using oil on my hair but here I am! I also worry about the recurrence on a daily basis, any little niggle sets me off but I think this is “normal”. I finished chemo a cycle early in September (I developed peripheral neuropathy which annoyingly has not gone away). Good luck with your journey too Shade, we are all strong women (most of the time) much love and positivity to you
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Hi Christine, yes, he has been banished to spar bedroom but I fear too late. But I am practicing good hand hygiene etc. Yes, my chemo nurses advised this today - hoping I don’t have to take them as it will mean stopping Abemaciclib for a week but others have done this so sure this will be fine, you take care and thank you for responding x
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I hope you don’t catch it, sleeping separately is good but also ventilation and masking.
I only caught Covid once in a school room that was supposed to be empty so thought I was safe to take my mask off and eat. I didn’t know that small groups of children were using it and closing the windows I had opened for ventilation. I continued masking after returning to work and never caught it again even with staff and pupils catching it.
I was extremely cautious masking while having chemotherapy and only stopped after having my spring booster.
I had Covid with abemo and was told to come off the abemociclib for a week by the oncology team to allow my immunity to get rid of it. Was all fine
Hy PWK, nice to “speak” and welcome to the group. Thanks for this, this makes me feel a little less nervous. How are you coping with Abem. I dropped down to 100 mg as I was getting very upset tums and this and Loperamide has helped me managed it. My hair is rubbish but small price to pay I suppose. Take care of you and thank you for taking the time to respond 
x
Am nearly a year in on abem and letrozole, dropped to 100g to try to get a little more thickness to my hair but not sure it’s made much difference. Am used to both now though, no side effects really, think it affects hair and nails but not too bad. Hang on in there .
Ahh thanks pwk. I feel we are all hanging in there 
my nails have got progressively worse but I never had good nails anyway so least of the issues. Hoping my hair will recover once I stop the abem. But like you I am on anaztrozole (same as letrozole I think) so not sure if that is also part of the problem. But all these evil little pills are “sorting” us out so we must not complain but it’s great to have others to talk too. Keep well and good luck on your journey too