D Day tomorrow - What questions should I ask?

Denie Congratulations on your results - such good news for you.

Dyzee am sorry you have been dx with bc, but good luck with your op on 8 November. Let us know how you are.

Take care
Love
Dawn
xx

Denise - good to hear your news, I’m so pleased for you ! x

Dyzee, sorry to hear your news wasn’t so good and that you have now had to join our exclusive club, but you sound positive and that’s great. Remember, we’re all here for you if you need any support, advice, want to have a rant (which you’re entitled to !), or even a laugh.

Good luck with your treatment, and please let us know how you are getting on.

Lots of love

Julie xxx

Hi Dyzee,

I’ve only just caught up with this thread so apologies for not getting in touch sooner! I’m so sorry to hear you’ve had to join us but I wanted to ‘welcome’ you to this most awesome site. I have found it to be a godsend since I was diagnosed in March. I was 34 when diagnosed, I had a right mastectomy and total axillary clearance a week after diagnosis. My tumour was grade 3 and I had lymph nodes involved. I started chemo in May and finished 3 weeks ago (hurrah!!). Starting Tamoxifen on Thurs and rads next mon. After that its years worth of Herceptin for me! Phew!!

To be honest I knew v.little about bc prior to diagnosis and it has been a very steep learning curve for me and those closest to me! At first it all seemed incredibly surreal, and it still does sometimes!! I found the first couple of weeks to be the toughest; telling people, preparing for surgery, the fear of the unkown and what laid ahead of me. As soon as I had had my op I felt much more positive about things.

I wish you well for your forthcoming op on the 8th, I will be thinking of you. Just shout if you need any help or advice, we’re all in the same boat and would be only too happy to help you. I would defo order the ‘exercises after breast surgery’ booklet from this site. I took it into hosp with me and the exercises really aided my recovery.

Take care, wishing you all the very best as you start out on this journey,

Kelly
-x-

Hi Dawn, Julie and Kelly

Thank you so much for your kind words of support. I am sure you all know exactly how I am feeling at the moment.
I am lucky in lots of ways. I have support from my OH, my daughter and friends and a good sense of humour!!
I cannot tell you how much I appreciate each of you taking the time to leave messages and providing me with an insight of
your individual journey’s.
I will probably bombard you all with questions for the forseeable future and be a complete pain!!!

Once again, Thank you.

Hugs,
Dyzee. x

Bombard away Dyzee!!!

Any time, and I promise we won’t think you’re a complete pain!!

Take care,

Kelly
-x-

Hi Dyzee

I agree with Kelly - bombard us with anything - we don’t mind !!

And by the way, good to hear you have a sense of humour - it’s certainly helped me get through the last few months !

Much love and a huuuuuuuuuuuuuuuuuge hug

Julie xxx

Hi Dyzee

So you did decide to join us, I’m sorry to hear that but at the same time it’s nice to meet you. I hope your operation goes well next week, I guess you will find out what else they are going to throw at you after it?

Anyway I agree with Kelly & Julie - keep that humour and positivity going and you will find the rollercoaster a little easier to ride.

Lynn x

Hi Julie, Kelly and Lynn,

Thank you again!

Yes, I did decide to join the club! It is very exclusive and only the best people are allowed in!!!
I got a letter re my pre assessment today. So that’s the next step - bring it on!

Please keep in touch.

Hugs,
Dyzee x.

Dyzee

I think that is the best attitude ‘bring it on’. I was diagonosed with low grade and small, after a bit of a debacle I had a lumpectomy and some lymph nodes removed. They were clear and they got the lump out. I am on Tamoxifen and so far so good and tomorrow I meet my oncologist to discuss radiotherapy. I have recovered well and feel great. I know it is easy for me to say that, if it had spread it would have been a different story. But I am all too aware I have had breast cancer and that is a life changing event. It has made me reflect on things and appreciate everything I have. You just never know what is waiting round that corner and I am damned if I am going to let it spoil my life. So I hope you will have an easy journey like myself. My good wishes for your operation and full recovery.

Madeline

Hi Madeline,

I hope all goes well for you tomorrow.
I think our initial diagnosis sounds very similar. You are darn right you never know what is around the corner it does put a lot of things into perspective dosen’t it? When the consultant told me I had BC, I said "OK let’s get this show on the road, what’s next and when are you going to do it? I asked loads of questions, but can’t remember anything now. The BC nurse was concerned because “I wasn’t having a normal reaction”!!! What’s normal when you are being told you have BC?
Anway, like you I am not going to let it spoil my life and I take on board a lot of courage from ladies like you.
Will you let me know how you get on tomorrow please.

Dyzee. x

Hi Dyzee

Back from appintment which went very well. Confirmed that lump was 4mm stage 1 oestrogen receptive. I am to have a ct scan on Monday followed at a later date yet to be confirmed by 3 weeks radiotherapy. What did surprise me is that theycannot say yet if I am HER2 receptive as the cancer they took out is growing in lab. When they get results soon they will tell me and if it is positive I will have Herceptin. I pressed him about what else would happen and he said that if you have Herceptin you have chemo but he did not reallywant to discuss that now as we dont know. he did assure me that when they know more they will talk to me. He explained that I would have a super dose of radiotheray to the cancer area and a lesser dose to surrounding areas but not under the arm.

In all I feel very comfortable with the team. So thats me how are you?

Look forward to your news

Madeline

Hi Madeline,

Well it sounds like you got clarity on most things. Let’s hope your results bring good news. If you have confidence in your medical team it does make a difference.
We have to take comfort where we can!!!

I received another letter today confirming my op. 11.30 on the 8th November with another booklet to read, I seem to be building a small library of these things now, but they are informative. I must admit it is scary, but on the positive side, the sooner this thing is out of my body- the better.

I am sooooo pleased I have my job, it is such a fantastic distraction, the team I work with are mad and we have had a good laugh today.

How’s this for spooky!

I work for a company that employ just over 3000 people across three sites. Our department has hundreds of people in it. In my team there are 14 people. My friend/colleague and I share an office, there’s are just the two of us in there, we sit opposite each other, partners in crime!
We have both been diagnosed with breast cancer within 5 months of each other!
Hmmmmmmmmmm!

Anyway, that’s my news for today, shall we catch up tomorrow?

Love and Hugs,
Dyzee x.

Hi Dyzee

I am not feeling that great today cos I went out last night and had too much wine! I dont seem to be able to take it like I used to. Anyway, whilst I was in the pub I spotted my radiologist whoi found the cancer and was very clever in finding it again for the surgeon. I said hello which I now regret! The wine took over. And shock horror he went outside and sat wiht his friend and then smoked. I could not believe that someone who deals with cancer every day smokes. So that is my rant!

How are you? It is very strange to have a colleague with the smae diagnosis but on the other had I am sure it is quite comforting, you can support each other. I dont know anyone with BC although as someone has said before I am sick of hearing somebody knows someone whos had the same and they are fine now! Unfortunately I dont know anyone, so this is groung breaking stuff for me.

Anyway I think Imight go and take a couple of paracetamol now for my head!

Speak soon

Madeline

Hey Madeline,

How’s your head? Sounds like you really went for it! You have got to let your hair down and have fun. Some of my friends were round on Tuesday night. We had take away and Margarita’s (obscene amounts). Ended up playing tennis and boxing on my daughter’s nintendo Wii, I could barely move for the next two days!

It is strange the two of us having BC. People at work cannot believe it. We are supporting each, but it can be scary seeing what is to come.

My hubbie works abroad and is due home today. He was away when I was diagnosed so I can’t wait to see him.

Speak soon, take care.

Hugs,
Dyzee.

Hi Dyzee

I bet you are looking forward to your husband coming home. He will no doubt be your rock. Try not to worry too much, your friend is different from you, so you might not follow the same path. Take it a step at a time. It really is not so bad when you get more information and the treatment starts. I think the waiting for everything is the worst thing. When you read some stories I just feel lucky really even though I have got this but it could be so much worse. Have a lovely weekend.

Speak soon

Love Madeline

Hi Madeline,

Yes, you are right. I think once I get the surgery over with, the results and a plan, I will know where I am going.
I also feel lucky, when I see what some of the other ladies are, or have gone through, it makes me feel very humble.
They are so brave and have such courage.

Hubby is home, so I am chuffed. It makes a big difference.

Hope you have a good weekend. Not to much wine!!!

Hugs,
Dyzee. x