Just a quick pop to in to say Hi.
I would definitely recommend the swimming (this is me bullying you Lily!) it really eases the arm and just feels good. I am not a great swimmer but it makes me feel relaxed and uses the arm without straining it.
Sorry this was just a quick note! hope you are well and be back later.
Bev x
Havent managed the swimming yet, terrified of going with false bit and what happens when water hits costume but will look at timetable after this and try and go as my achievement this week.
Decorating spare bedroom which is keeping me focus as had a wobble when couldnt sleep last night came from nowhere and wouldnt go and couldnt sleep as has had pain in shoulder blade was paranoid but I always am.
I can cry at anything, Dancing on Ice was just nice so cried and then watched secret millionaire which always makes me cry, especially working for housing and homeless hits home, soo at work this year I think we are going to be allowed to do 3 days voluntary work so really gonna think about what I can do.
Jadeās Wedding made me cry and Ive been following it but then always have followed her, it was soo sad for her sons. Something on on Thursday that she recorded so will watch that and have a good bawl.
Well off to order some bedroom furniture, why does shopping always make you feel better?
Angie, hope the plans are coming together x
Soz for delayās in writing, eye sightās crap from mets, not well basically. Please donāt think Iām not thinking of you all cause I am
Waiting for some dictation software then I can cathcu up with you all
lots of love
Angie
Hi,
Angie I am really so sorry to hear that your eyes are being affected. Is it bad? You know we can move on to phone calls any time you like if it would help ot text if that is easier and you could get someone to read messages for you. Feeling for you mate and wishing I could come round and give you a big hug and do something useful. Let us know how we can help so that we can keep in contact. Hey that big day must be approaching soon, how are the plans going?
Keep us posted how you are feeling and lean this way as heavily as you like
Love
Lily x x
Angie
Same as Lily - feeling for you and hope that your spirits are soaring with the wedding preparations and youāre way too busy to be on here anyway! Take care hun, and get that software sorted pronto! A chap at work who lost pretty much all of his eyesight a few years ago, uses it and still gets everything āreadā and done.
I had my last but one massage yesterday - another 45 mins of bliss. My back and shoulders are easing but I think thatās also down to me being under less stress. Will have to see what I do about them once these hospice ones are over with and whether I would ātrustā another therapist - I may speak to the one I have but she comes to the home rather than operates from a centre so Iām not so sure.
Lisa - hope youāre making the most of your time off and the decorating is free from chemo madness 
Calm is what we need! Must get my decoratorās cap on soon and tackle some.
Lily - hope youāre not working or stressing too much, only a week and a bit to go till the Easter hols, which I bet you need! We must get in touch about meeting up again, Iāll be working but not as much as usual so I can juggle my days. But as youāre so near to where we live even if we meet for the afternoon - do I hear cream tea? - that would be as long as last time.
Changeable day here yesterday - sunny 1st thing so went for a lovely walk, windy and a bit colder later then freezing (or it felt like it) and rain - winter was back!
Hi to everyone else and hope you are all getting on and enjoying things.
Nicky x
Thinking of you Angie and hoping you get some relief from the difficulties you are experiencing soon. love Bev x
been onāt phone to MacMillianā¦ thinnk I may be back on dexaethasone soonā¦ me, steroids and a buffet.
This could be fun.
Angie so sorry things arent good with the eye sight, are you feeling bad apart from that? However, I know with your work and hobbies its important more than ever. Hope you can find an alternative to the steroids and things pick up as you are fast approaching your beautiful wedding, but dont stress, if you need anything at all done just shout I will help if I can as Im sure you can rant to us all on here!!!
Hope everyone else okay, weather was lovely this morning then rained all afternoon. Decorating goign well, however think I bought my wallpaper and bedding chemo induced as dont go so not sure what plan of action is yet.
Trying Reki again tomorrow as Im just not sleeping at all, about 3 hours max and thatās disturbed, hope its not as wierd as last time as the room span viciously for me and the woman who carried it out so trying again aprehensively.
Love to all and hugs to Angie xx
Hi,
sorry not to be chatting more but the kids are in the last few days of being able to add to their coursework and boost their GCSE grades. I am marking it all over night so they can continue in the next lesson. About 90 pages tonight, yawn but they are so keen and pleased when I do that I canāt do any less. Yes Nicky just a few more days till Easter and 2 weeks off.
I think we should be getting on with this wedding and have a whole week of fun, so can we all do outfits asap. Must be something to make Angie laugh, so the more cheeky/stupid/funny outrageous the better. Not sure what the rest of the forum will make of it!!LOL
Happy hen week Angie
Enjoy our mania
Lily x x
Hi,
have I stunned you all into silence or are you checking out outfits for Angieās cyber hen party?
I am going to look for one and will be back
Hugs
lily x x
Yep, I guess you must have Lily!
Unusual for me but Iām logged on at this time, usually tucked up in bed with a good book but have been out for a belated birthday drink with friends.
Angie - let us know if the hen night is still on, Iāll try to sort an outfit - could be ācowā themed as thatās all Iāve been able to do so far Maybe āNurseyā from Black Adder? If you all remember the episode?
Lisa - hope you are chillinā on your week off. Maybe go for a complete contrast with the decorating but then you wouldnāt get any more sleep than you are now. 3 hours? Thatās awful! Donāt know if any pillow sprays, lavender oil etc may help to relax you?
Take care all, Iāve been busy at work this week, oh, and the ultrasound! Yikes. Everything seems good though, no changes but I would have liked a bit of shrinkage but itās a bit difficult to judge with the scar tissue. Not leaping up and down atm, will wait for the CT scan next week and results the week after before that happens.
Nicky x
Nicky good luck with ultrasound.
Yes Lily, I change my photo frequently but dont want to be the first to put mine up, is it tomorrow then and I will look for something?!?!
Not chilling at all but got so much hosuework done and had a major clear out (some of which was hard as Im a horder) as decided it was time to let go of some things and take down some photos and things and try and move on a bit. Up to date on paperwork, cant be bothered after work so sorted it all out and nearly up to date. Well having a large wine now and gonna chill, achieved something today, might sound minor but I went swimming and felt fantastic, nearly cried, love my swimming but hated the idea, and it wasnt fab and looked crap but I know I will never drown with the blasted swimform falsie - so hopefully going tomorrow and friday however got an early start tomorrow, argos delivering my bedroom furniture flat packs, love em, me and brother having a go but can deliver from 7am so better be ready as me in p.jās aint a pretty site.
Well had reki today, no freaky incidents like last time but a constant buzz and she said a lot of heat and stuff from my head (I could have told her that!!) yawned for england eversince so off for a wine for a double whammy and a bit of tv for hour.
Night all - Angie hope you up to hen night and how riskee are we being as I have an active mind and dont want to show self up!!! xxx
Hi,
Lisa you show yourself up good and proper we all need a good giggle. Then after you appear in your racey number we will all come in ballgowns.LOL. Only joking! Have a good week and hope the Argos guy is worth getting up that early for!Swimming sounded fab. I am going to do it one of these days.
Nicky evrything seems good is a great result and as you say the scar tissue makes accuracy a bit tricky. Hope the CT scan results will make you feel a bit more settled and reassured. Hate bā¦y results and tests. Keeping everything crosse still for you so we can celebrate with a cake when I see you.
Lorraine are you ok, I am in turmoil with no-one to talk about food. I am going out to dinner tomorrow though.
AngieI wasnāt sure what you meant about going back on dex. Are you worried that they are coming back and going to cause you problems? I really really hope you can get a bit of a break to have some fun and the run up to the wedding. What are you wearing for the cyber hen party? I think we should put up dodgy clothes for a few days and then move on to wedding cakes, in case we scare the other natives.
Hugs to everyone here and those I didnāt mention specifically, sorry buddies
Love
Lily x x x x x x x x x x x
Hi,
ok it was my idea so I will make a fool of myself first.
Hope you like my cyber hen party costume Angie. I am a bumble bee!!
Please someone else post theirs quick before I lose my nerve
Hugs
Lily x x
Well, Iām ready - and Iām looking HOT if I say so myself!
Nicky x
Happy hen day and night Angie, wish you all the best in the world!
Im an angel as you already know of course!!! Had a few problems with some ideas as my laptop is works and has certain restrictions on it!!!
Hee Hee, people will think we have gone mad.
Champers, strawberries & meringues, chocolate, nuts ā oh the list is endless - see you later xx
hi everyone
love the costumes, i thought we may need some entertainment, so i did think of getting us a stripogram, but thought youd all get to excited, so i thought a clown would give us a laugh instead.
lily 2000
can imagine your getting really tired with all the extra work, make sure you balance it with plenty of rest. take care x
nicky 08
hope test results come back ok, anxious time for you, im sure. i had results from smear test, and the letter said "we are pleased to tell you, you do not have cancer. if only!
lisaf
you busy bee as well, i know what you been about making bad purchases during chemo time, i did plenty of them. dont set yourself too many jobs at once, and whats happened to the potential man friend!
been dentist today for 2 fillings and scrape, he said id got a problem with gums and showed me how to brush teeth properly. 2 more fillings next week, i hate dentists but glad to sort these things out.
angie hope you ok, cant wait to see your costume!
take care everyonex
so much to say but still waiting for strengh so excuse bad typing please.
So went to newcastle today, got a second opinon and found out a LOT about the parp trialsā¦ all 3 of them! Iām not a cadidate right now, but now coud soon to be histiry and we wenāt be talking trial anymore. So I may end up on Carboplatin and PARP but thereās no rush to burn my way through all the chemo regimes yet.
So this is the cape you can see, itās my wedding outfit really.
itās all getting a little tight time wise now too. Gulp.
But weāre really looking firward ti getting to findhorn and seeing this healer too. The teroids have got me eating again too. Buffet bonanza.
Lisaā¦ try Rscue Night for the sleep. you just put a couple of drops in your water and sip when you wake. then try counting to 20, bet you donāt make 10.
Looking gorgeous Angie. Iām celebrating your hen night here with a glass (or 2) of red wine and sitting in my pirates outfit, cutlass at the ready Joking around with my clown, fairy and bee friends. Thinking of you and hope you are building up strength for the BIG DAY - wow, so exciting. Hope you are not being bogged down with any of the arrangements and you are getting, or asking, for all the help you need. Hic, cheers honey, take care.
Hi to all the other fancy dressers, youāre looking great! Great party, shame Angie hogged the buffet.
Take care all, watch the hangovers in the morning
Hic
Nicky xx