Darling buddies from May - moving on

Hi All, sorry its been manic and working late all over the place. Twinning again, appointment good but want me to have a dexia scan, Ive been on pills 4 years and havent had one so booking me in,glad everyone else doing okay and here’s to a better xmas for us all, Val glad you have told them and hope you are okay for xmas.

Will have to catch up now all on Sat, works Xmas party from lunch time tomorrow so you wont want to see my typing tomoz night- especially with my snowflake nails lol!!

Have a lovely weekend all xxx

Hi Buddies
Well, I have been to see the Dr and luckily got to see the one I wanted on his first day back after paternity leave - a good enough excuse I think not to have been there last week. He agreed with my view that it is a pulled tendon in my hip flexor and I am to be dosed up with ibuprofen for up to 2 weeks whilst it heals. That should mean no headches over Christmas I hope! If there is no improvement he will speak to the hospital about bringing my next scan forward and checking out any other issues. So, for now I am fine with whats happening , and in much less pain so I hope I am on the road to recovery.
Not much work this week, thank goodness, which has allowed me to just about finish Christmas shopping, except for Mum and Dad who I never have an dea of what to buy. I think it will be a voucher as they want to buy a new CD/radio, so that seems best. Also got a lot of wrapping done, which is way ahead for me. I cadged a lift off OH this morning into Reading so was able to do 2 hours shopping with no parking fiasco and no charges which just about sorted everything out. However not Christmassy at all at home, waiting until the weekend to put up lights etc but will wait until next Saturday to put the tree up as YD should be home, fingers crossed for the weather to be good. Cards written and posted, phew, just have to hand deliver the others. On top of this Ive had the plasterer in to re do the ceiling, the plumber is currently here fixing the shower and the decorators are in next week to do the repainting - I’d be a nervous wreck if I had been working more.
Carole - sorry to hear the trip was exhausting, I must say it sounded beforehand that it may be a bit difficult. I hope you havent come back too tired out and I hope not feeling any guilt about not being able to sort things - I think you’d have to be a whole government department to do that! You’ve done your bit, so well done you. Now get on and look forward to Christmas and the big family birthday :slight_smile:
Hi Lily, thanks again for your support. I hope Victor has got over the shock of buying things LOL OH gets away with everything as long as he buys my things :wink: Oh, and the drinks as Im not carrying heavy things like that. In fact last week when my leg hurt so much i just had to lie back (no, don’t go there!) and tell him all the jobs I needed him to do.
Lisa - enjoy the party, Im sure you wil :wink: We’ll hear very quietly from you in due course, when the keyboard is nice and quiet and in focus. I dont have an office party - it would be a strange one if i did! Must organise my own one in that case LOL.
Val - keep well, look after yourself and hope the current chemo SEs are short lived. Sending you gentle hugs.
Have a good weekend all.
Nicky xx

Grrrrrr, I made a long post this afternoon and lost it!!! So here goes again, trying to remember what I wrote before.

Lily I am pleased your Onc apt went well and your tumour markers are fab – mine haven’t ever been lower than 20 since 2008 – you’ll surely feel relieved that they will still look after you if you still need it, better than just closing the file down on you. So sorry to hear about your Mum who is also having problems with her health, they do make us worry don’t they.

Nicky, am glad for you too that your appointment eased your worries, good old Ibuprofen always works wonders. Hope you can take things easy and relax a bit now, when does your work stop for the holidays? I’ve PMd you about a possible date for a meet up in Portsmouth if you can fit it in, we can have a chat and a coffee? Well done for the OH Christmas cadging.

Lisa well don’t overdo it on the drinkipoos LOL but seriously when your headache has passed let us know how it went. Are you working right up to Christmas?

Val, as always thinking of you and offering kind hugs. I was really shocked to see your post about Geewhiz, I used to talk to her a bit in her early days as we both lived in Oman for a while.

I had my usual “hole” viewing today, it seems now the doctor has had enough (hey what about me?) and has decided it is time to call in the bacteriologists as he thinks that it might be a “chronic” infection. I asked about the difference between this and an ordinary infection and he said it is a deeper infection which is causing the inflammation and hot area around the hole. He has suggested an operation to take away all the nasty burnt skin and all the lumps and bumps in the area and to try and close the hole but he won’t operate until he knows what/if there is an infection and whether antibiotics will work. I’ve googled chronic infection although can’t seem to find much information other than it can be linked to cancer/radiotherapy and causes tiredness, general malaise and inflammation as well as pain – all of which I have. The tiredness is unbearable and I am not sleeping very well which doesn’t help, my legs just won’t stop jiggling at night. Anyway enough about me and my ailments.

We went to YD’s parents evening last night and was pleased that all the teachers are happy with her, they said she is a joy to have in their classes, so obviously we have a different child at school lol. What we did find out that is disappointing is that if she takes her degree in France to become a teacher here, she has to go where she is put so could end up in one of schools in the middle of Paris (for an instance) where there are a lot of problem children. I don’t mean that to sound bad but once in that school it could be 10 years or more before she is able to apply for a position of her choice. She also has to take dual nationality to do the degree, which isn’t a bad thing I know and could have some benefits but it has thrown the spanner in the works job wise for her. So in the New Year guess who will be googling to find out if a French degree is equivalent to a teaching degree in the UK, so that she might be able to choose where to go and work. I think it is supposed to be a democratic society and yes the freedom of choice of where she works in a school is not allowed! Hmmmm, rant over, we have plenty of time to gather information.

On that note I will close, but not before wishing you all a good weekend.
Love Carole xx

hi, Lisa yes we twin again but not the nails, sound wonderful! I am surprised it is your first dexa scan as I thought they had to have a base level so they knew if it was changing. If it does you get tablets and friends of mine say it works really well for them and bones improving a lot. No needles :slight_smile: but more x rays :frowning: . Nick that sounds like a perfect response from the doc and also means someone else is monitoring it to give you another viewpoint on how it is progressing over that time, hopefully you will be able to leapfrog by the end as it will be so much improved! Hope the workmen are all doing their thing and not causing more angst, you don’t need it. Get that tree up this weekend and get the tunes on. I love singing along on the car radio and usually have to sit in my car to hear the end of each one. Victor did manage the pressies but forgot the urgent order of bread, saying it was just too much aaaah! Naughty laughs from your post but will not say a word he he! Carole what a long post :slight_smile: so even more annoying when it disappears into internet mist! Thank you for your good wishes, I felt very fortunate and wished they could just find better drugs for everyone, one day I hope. I didn’t like the sound of what the doc said about the hole especially another op, oh no poor you. So I will try to put a positive slant on this and say well if it means it is healed and you feel well and get rid of a clealry persistent bacteria, then it will be worth it in the long run. I do wish things would be sorted for you and give you some space from medical treatments. I also wish you luck in finding a better solution for Yd’s career plans, keep us posted. Val how are you doing buddy? I know the taxanes are gold standard and tough on bc but can be tough on people too so I hope very much it is bearable for you as it would be really good if you could manage a run of it. Love Lily x

Hi buddies
Lily, I forgot to say well done with the appointment, nice to get it out of the way and to know you can be monitored for longer if you want. As to tumour markers I think I’ve said before that you can’t necessarily compare numbers so, Carole, it doesn’t mean yours are higher as such, the base line might have been higher to begin with. It’s something about the way the actual hospital measure them in the first instance, there was a great description a long while ago on here which explained it all.
Carole, sorry that the hole isn’t getting any better and about time it was investigated further. I hope that it can be sorted soon and the general fatigue etc that you are having also improves at the same time, it does sound like there’s a link there. Sorry to hear about problems that may surround YD’s career choice but, as you say, you have time to explore the possibilities and at least you’ve been told sooner rather than later so can spend time checking things out thoroughly. Good on her for such a positive report though, she’s had a tough time of it recently as you mentioned a while back. Btw, I don’t know it your PM was done at the same time that your post was lost but I’ve not received anything yet. Will keep an eye out and get back to you once I’ve got it.
I am working early next week but then not again until after Christmas. The nature of the job means there are no tribunals on public holidays but there can be in the days in between Christmas and New Year so I may get some then, but I’ve now learnt I can say my availability so can say that I can’t work on those days.
Have a good weekend, not so chilly as earlier this week and I can even see blue sky at the moment! Just as well as we want to hang the lights up outside today.
Nicky x

Evening ladies, well we’ve had a quiet weekend, Mr P has been trying to finish off plasterboarding our upstairs rooms and we’re both so pleased it is all done now, still need to do a lot of decorating but that can be done as and when, no rush. Just beginning to pack for our 2 week trip to UK.

Nicky I didn’t get around to sending a PM but, I’m intending to be in Portsmouth next Saturday if that is any good for you? Maybe an afternoon cuppa and chat? If that day isn’t any good for you I understand, and can possibly do a day after Christmas between New Year?

Lily yes you are right, if another op means the final ending of this damn HOLE and inflammation then that is all well and good, I’m just fed up of it.

Val and Lisa thinking of you and hope you have all had a good weekend, love Carole xx

Hi, yup as Nicky says it doesn’t do to compare. Having said that, I always do so I am not the best one myself. The onc gave up trying to tell me that tumour markers are not reliable particularly at lower levels because I still asked every time and most likely always will. After all despite saying I shouldn’t think about them, there he is writing it on my bloods form for my next visist to him in a year. So how does that follow?I think it is different policies for different areas and also to qualify for their awards like centre of excellence, although that can only apply to one area like research. Anyway thank you for your good wishes. Well we are into the last week of school which is always manic but also such a very happy time to spend with lots of excited students. I have packed my Christmas cd, christmas dvds and ordered fun sheets for those that prefer to colour or make things. I have chocolates tree decorations for bingo prizes, a small pack of sweets for every student and a bigger treat for my lovely tutor group (my other family). Plus thank you presents for my brave under-paid teaching assistants. So that is my first load of wrapping and buying completed and makes me feel better that I have at least started the massive wrapping marathon. carole I am working on Victor to decorate our bedroom over the holiday, any good ideas as you have been decorating queen of our post lately. I am wondering about green silks and not a bright green but a very intense green pattern on the wallpaper, if you get my meaning. That sort of grey/green shade. I hope you have a lovely trip over here and spend some happy days with the family. Nicky good timing to have some work days but also enough time to enjoy and organise christmas stuff. Val hope the T is being kind or easing x. Lily x

Hi All, Im around just tired after partying and getting tree up, will post and reply tomorrow before i commence the warpping of gifts lol !! xxx

Hi, Carole I am afraid there is bad news, Dipstick (Chris) has passed away recently. There is a message in ‘in memory’ section from her daughter. I think you will all remember her posting on here occasionally. Carole and i posted on another thread with her and bahons for some years. What a terrible shame, I had not realised she was so ill. Lily x

Well I arrived in Hampshire ok after a long day of travelling on Tuesday - it hasn’t stopped raining since I arrived and 2 minutes along the road from ED has had some flood warnings and some homes evacuated as a river was rising, the roads have been flooded.
Thanks for posting about Chris Lily, how sad I am that another of our group has passed away and I was only thinking of her recently and you are correct, her dog was called Lottie. Too sad to say much more.
xx

Hi All
Sorry Ive been missing - that’s sad about dipstick, i can remember her posts.
Hope everyone is okay. Lily, ive been making nomination bracelets and they do a lot of medical alert charms bit like your keyrings its a great idea.
Well I need to go back through posts so will try tomorrow once work finished - Im not even going out on mad friday Im soooo tired. Hope everyone’s ready for xmas, its scary how fast it comes around…

Catch up with you all tomoz xxxx

Hi All
Carole, I am assuming you have internet and just to say I didnt get in touch today as too much on, and your story of the floods near your daughter’s is a bit worrying! I saw the local news last night and didnt realise how bad it is at the bottom of Hampshire, luckily we’re at the top and have so far avoided the worst of them. Will be in touch again though to see if we can arrange to meet up. Have a lovely Christmas with the family and let’s hope the rain clears up - at least it’s been brighter today.
Well, a busy time chasing decorators, car bodyshops and plumbers. However eventually all is back in order with my little car finally coming home for Christmas today. They’ve had it 3 and a half weeks! The repair is fine but I’m not impressed with marks on the seats and on the (white!) lining on my sunroof. So, a full valet is now needed that they will be paying for, grrrrrrrrrr. Shower is back on, YD’s room is painted (just as well, she’s back tonight), ceiling in study is done and all the books, bookcases and junk from the study is now out of the lounge and back where it belongs - although a lot neater and several books lighter. Didn’t really need a major sort out this close to Christmas but hey ho, OH is happy! We have family arriving tomorrow evening to stay and if they are lucky they will get fed in between the 2 Strictly programmes LOL After that a big family lunch on Sunday, luckily none of us is cooking, we’re going out to a restaurant, just as well as there will be 16 of us. Then a quieter couple of days with just us 4 for Christmas Day but visiting relatives in the morning and friends over in the evening, phew.
Hope all of your plans are going well, buddies, and you are all looking forward to the start of the festive season.
Nicky xx

This is my last contact until after Christmas so just wishing all my dear Buddies a very Merry Christmas with you and your loved ones. Have a great time ane enjoy all those treasured times with family and friends.

Love Carole xx

Hi, just in case anyone else is dashing off early, can I wish you all a peaceful and happy Christmas with your families. Some nice pressies would be very welcome too :wink: I have started some wrapping this evening but so much to do that it will be a 3 day job I am sure. No volunteers to help and Victor says he can only put wrapped parcels into bags to go to their respective homes as he is worn out from wrapping my pressies - sounds hopeful. I did wake up this morning see a large box outside my door with my name on and said i hope its not a microwave. It looks that sort of size :frowning: Oh well I am sure I will be pleased whatever it is!!! It has been a tirind day after a last minute dash into town to buy a few left over presents and after that a manic food shop at the supermarket. At least that is done so just the last minute perishables to get before Tuesday and that can be at the farm shop rather than a fight down the supermarket aisles. My mum has had a power cut all day, which is a nightmare for everyone with their Christmas food in the fridges and freezers, possibly getting ruined. We were out to dinner tonight so she was sheltering at my brothers as she had no light, heat, way to cook or any phone. The dinner was fab and I ate a ton. I am in a strange situation with my diet club that if I lose another half a pound or more, I will fall too low below my target weight and have to start paying again or have a week to put on weight to get back into my target. How crazy is that? So I had 3 courses tonight and feel stuffed! Will finish here and get back to the wrapping. Nick, very glad to hear your home is safe and that things are getting sorted out, annoying about the car though. Carole I hope the water does not cause problems for your daughter either. Lisa I agree Christmas zoomed up this year, hope you get everything done. Val hope you are able to enjoy Christmas with the family and that it does not turn out to be a chemo yuk day. Love Lily xxxxx

Hi All
Carole’s enjoying herself according to f.book. God how manic is it you would think the shops were shut for weeks not two days lol!
The mamoth wrapping for 32 people has just finished, at last and had a late night out but was good fun. Well normally Im delivering all xmas eve night then still doing wrapping but everything is wrapped adn deliveries tomorrow then going to make some cakes for xmas day, we are all going to my sister in laws mothers which we are not really looking forward to but hey ho…
Got letter about my bone scan on 17th Jan, Lily yes they should have done one but never did, I also asked about possiblity of staying on meds more than the 5 years and they hadnt heard of it - we dont see onc etc. Im already on bone meds, put me on they due to having ovaries out and early menopause so hoping they dont try and stop it.

Well will pop back on tomorrow, hope you are all well and ready for xmas, you never know we might eventually meet up in 2013 - mind you wouldnt believe how many things I have planned already - it’s not only my 5 year mark but my big birthday so planning to have a blast all year!!!

night all , happy xmas eve my darling buddies xxx

How odd to see Lisa’s post at the top of the Latest Posts page this morning when I checked in! Normally there’s loads of other posts before I get to this one, everyone must be busy then.
Hope all the wrapping has been done now by Lisa and Lily, with all my waiting around over the past week or so for plumbers etc I managed to get all mine done ahead of time this year, feeling rather smug as I normally end up doing it all at the last minute.
We had a busy day yesterday and also the evening before with one of my brothers and his family staying over. We all enjoyed watching the Strictly final (they’d been told they had to watch it!) and I’m glad Louis won but think Nimble Kimble was the best dancer overall.
A quieter day today, thank goodness, just have to see my brother and family off later this morning and then buy some last minute veg from the small M&S we have nearby, will definitely not be going to any big supermarkets, I’ve heard they’ve been horrendously busy, as Lisa says, it’s only for 2 days holiday, not 2 weeks!
So, I’ll sign off and wish all my buddies a happy Christmas and enjoy it wherever you are and whoever you are with.
Nicky x

Hi Im back again, incase I dont get on later, hope everyone is ready for the big day, I’ve chillin now which has never been known at this point, even made some cakes… have a fab day all tomorrow and here’s to a very healthy and happy new year xxx
Happy Crimbo xxx

Hi, well finished the last sack about half an hour ago, so no early finish for me, same as usual. I might have been a bit earlier but I was babysitting baby and the '2 hours max mum’went a lot longer than planned and you cannot do anything with him here apart from smile and play. He gets up to things in a minute if you get distracted and as he is just starting to cruise round the furniture very dangerous. We did visit Tesco this morning and managed to arrive at a quiet time and filled up and left with far too much. So after that, we had another fight to close the fridge and freezer. Well at least the turkey crown is out now, making a bit more room. ED made lots of dairy free cakes for herself and YD to eat as always so sad when they see all the lovely things that they cannot have. I buy everything I can find that is dairy free and this year managed to get cute little bags of white (non milk) chocolate mice, chos santas on sticks and choc fudge so they will be thrilled with them. The rest of us will eat anything including theirs if left out! I refused to cook today so it was chinese take away with minimal washing up and mess :). Then wrapping all evening. Lisa good for you, being organised and hope the celebrations are better than expected. Tell me pigeon fancier will not be there!!! It sounds like a lot of things going on next year for you. I heard the travel advert tune tonight and that started me thinking about where we might go this year. We have been invited to Florida but not sure if I can face the flight and expensive if we then decide to do Disney as well, just not sure yet. I will keep you posted how my local friends are treated but they had been told previously that anyone with node involvement and young would go beyond 5 years. Might be worth googling the research on it and presenting it to them. Or if they have actually not heard of it then why not ask to see someone else, get a second opinion at a bigger hospital. Anyway you have plenty of time to think about it. Have a lovely 2 days x. Nicky how lovely to have the family to stay for a few days. Hope the 2 most importants will be back for xmas x. Carole glad to hear you are having a good time over here and happy christmas x. Val also thinking of you having a lovle yvisit from your families x. Anyone else reading, happy christmas and I hope you are able to enjoy some good time with the important people in your life love Lily x

Merry xmas everyone, hope you have all had a lovely time and are stuffed and relaxed. Im chilling tonight in my kitty onesie with wine and nibbles, I look like im in a baby grow lol but no-one can see me… Xmas tea was nice and ive been truly spoilt rotten but more importantly ive spoilt others rotten, especially my mam and dad so hopefully a good year.

Thanks for info Lily, that’s what I seen but they said defo not so will be looking into it, infact I might ask at newcie when Im back up in April…

Well Carole’s having fun on the boat, seen some nice pics!!

Enjoy all xxx

Hi ladies
Hope you all had a lovely time with family and friends :slight_smile:
I was completely exhausted yesterday and even had to go to bed for a sleep which is unheard of for me and I’ve only done this whilst pregnant or on chemo - luckily neither are applicable!
However we had a great time with family on Sunday and a quieter day on Christmas Day but still lots going on. I’ve told OH to remind me next year not to offer to do too much as I get so tired these days and can overdo it without realising. Both D’s are at home, YD with no studying to do for the first Christmas since GCSE’s and ED working hard on her dissertation. However they have enjoyed, as we have/are each others company as they dont get to see each other so often, in fact less than we do as at least we’ve been out to visit YD.
OH off work today but back tomorrow, as I might be as I’ve said I’m available if needed, so we’ll make the most of it. Yd off to visit lots of uni friends at one of their houses today and then seeing other UK friends over the next few days so that will be the last we see of her for a while :frowning:
Enjoy your time off work and spending it with family xxxx