Hope you’ve all had a good start to the week. Saw my onc today. Been off Letrozole for over a week due to severe bladder inflammation. Although that has calmed down a bit I’ve still got aches and pains. I was interested to hear from him that it can take a month for all SEs of the meds to stop (it says 4 days online). Thought I’d share that with you in case anyone else is coming off the meds. I’m going back on them in a month apparently. Also have to have pelvic scan as have had pelvic bone pain and bladder still a bit sore. ?
Hi Aura. They told me they take x-Rays weekly to make sure they are hitting the right spot, eg breast sometimes shrinks.
Hi Julie I don’t have review til 4th Sept then one at the end.Not having good few days,put mother in law in care home on Sat,in bed with vertigo most of day Sunday, have just taken mother in laws elderly dog to be put to sleep,next radiotherapy !!! Yes it is definitely all about the fun at the moment!!!Hopefully we will meet up tomorrow Julie unless more disasters befall me!! Thanks all for your feedback re going back to work ,it has made me think maybe I am being a bit ambitious .
Oh Jill u have had it all these last few days . It’s bad enough having to cope with all that’s going on when your fit and healthy . But to have that and all this treatment as well . Take care just message me tomorrow to let me know xx
Got to get better now eh???
Also thanks mf now I know what X-rays are for . Hope your SE s settle down soon and good luck with scan x
Poor you, Jill. That’s a lot to deal with.
16 down 9 to go. Had a big of a wobble today, I think Mondays are the hardest for me. Sat in the waiting room and it took all my strength not to sit and cry. When I went in, I told the Rad man that my boob was really sore and to be gentle, then the other man pressed down on my ribs…twice!!! Honestly, they have no idea how painful that is. It just all feels never ending at the moment, cried all the way home. Hard to drive when you’re crying. I’ve manned up now but I think it will be a long week.
Aura-I had x rays every day for the first week and now every Monday to ensure they are in the right place, they overlay them with the CT scan.
Jill1998-your stress level must be at max! Big hug and hope nothing else happens x
Maria_B-how does it feel to have finished?
Sat waiting now,love all the waiting around!!!NP I think everyone has their emotional moments,you must be knackered but you have less ahead than behind now.I can cry at the drop of a hat.I cried in the waiting room at my planning appointment very embarrassing !!! I’m going to try and day dream about lying on a beach somewhere tropical…
Hi Blondie122
I had my opp in April and still not been back to work yet No way am I fit for work I need to be on top form im dealing with peoples meds etc…im not one to swing the leg im never off work its killing me not to be able to work but im not gonna make that mistake of going back and being ill and have to have more time off im listening to my body…ive sorted hot sweats out today only 2 decaff coffees early thos morning and water all day seems to be working but ive still had the most violent headache takeb two pain killers for it this afternoon and now shifted it …feeling loads better now not taking the tablets just waiting for appointment for injection for frozen shoulder now that will be two things ive sussed and can tick off my list …as for the acupuncture not sure it worked for me really with hot flushes ive sussed out its coffee what gives me them so decaff and less coffees through the day…my bladder feels better not running to loo all day stabbing pains have nearly stopped just a slight one maybe every few days …so yes ladies im feeling like im on thee up daily I will suss this thing out and hopefully I will get back to work soon i feel like ive lost 6months of this year I want to try put it all behind me and forget I ever had the bleeding thing …dont get me wrong I do have down days but trying to fight it and not let it get hold of me …our bodies have been through hell of a lot physicaly and mentally and will take a while to try and get back to normal it certainly has changed me in lots of ways but just now want my happy energetic self to come bouncing back…x
christine x
Well done Maria in finishing and sheena only 2 to go bet your glad that’s all over with . Day 3 and to night my boob feels like it’s on fire ?been slapping on the cream .
Hey my spelling has improved too ;0)
Christine x
Maria ,well done for getting to end of marathon ,Bradley is rubbish at ironing but he has other talents…
Nearly there Sheena…
Blondie I think we all feel pretty similar, we were talking on another thread of hiring a Winnebago getting handsome man to drive us all together to appointments so we could give each other support , only people going through it really understand .I find the cancer centre the saddest place and being confronted by the fact you have cancer every day a v depressing experience…Blondie ,do you want be to send Poldark or Gary Barlow over to take you tomorrow?We have been using their services a lot .
What is Bradley???He was only voted the most handsome actor in the world …Bradley Cooper he was in “The Hangover”…but do have other handsome men in the books. …
I will send him to collect you for your appointment ,you sound like you need cheering up.I will want him back though…
I’m not there til 5.45 so if he could get back by then , oh and if he could put a casserole or something in oven for tea…
Yes Blondie good point 're severity. It’s overload all this isn’t it. From the oestrogen blockers, radiation poisoning, ct scans and mammograms to the bone building drugs they want me to take I’m expecting to combust at any point now! Lol so yes going to give them a go. If I start sounding insane call an ambulance for me! 
x
Morning CassieB
thanks for the reply yes your right about cutting caffeine out that has given me a vile headache maybe I should have alternated the decaff and normal coffee I was warned it would give me a bad head…plus the weather has been humid and sticky even my sis said she has had bad head and been sweating more …I got my daughter a new bed on friday and I was building it and was dripping wet felt shocking did feel like an hormonal sweat ive never sweat that bad even after an hours zumba class…but the weather was so close im just gonna get into drinking lots of water its also good for the skin but then again winter is around the corner so I will be wanting hot drinks …my sleeping pattern hasnt changed look at me its 2.30am wide awake but thats due to my hubby getting up for work at 2am …im usually having hot choc now but even given that up…x
christine x