Good news no nausea or sickness, but joint pain is awful, cant sleep and have difficulty walking, plus muscle weakness. Phoned helpline yesterday And told to go to A&E , bloods showed increased inflammatory markers sent home and told to take ibuprofen. Which only rakes edge of pain. Not sure bow long this will last? Do you just have to put up and shut up with SEs? Also pain seems worse after daily injections (got 10 days of injections) any hints and tips??? Also using hotwater bottle and heat pad. Xx
Hi Sib,
I had my first tax, carboplantin and herceptin on Friday.
I have the filgrastim injections to do too which my onc says cause the worst bone pain. I was given gabapentin for the pain. Haven’t needed it yet but was given some home. Maybe you can ask for some.
I have read a bath with Epsom salts may be helpful for pain too.
I am so tired but last night I just couldn’t sleep at all.
I hope you get some relief soon. Like you I have no nausea yet. Wondering if it’s the calm before the storm.
Keep in touch
X
Thanks happygolucky, was given gabape ntin which im raking twice aday, also having epsom salt baths but only helps when in bath. Csnt believe fatigue today, firstday since chemo started ive nit managed to get out for a walk. Hoping it doesnt last. Hope all goes well for you. X
Hello ladies
So last night and this morning I had nausea and some sickness. Seems to be under control again now. I feel pretty awful though. Achy and so weak.
I wish I could get a proper sleep but it’s not happening.
I think my tastebuds are going a little off too and i Have very little appetite although when I do eat it seems to ease the nausea.
It always feels worse in the middle of the night or the early hours of the morning. I feel so weak within myself as I am just day 5 from first TCH. I fear the side effects will get worse.
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How we doing?
Today I started with the bone pain in my sternum and lower back from the Gtsf injections. Oh my if I had known the bone pains i felt last week were actually my good days i would have made more of an effort.
I have taken the gabapentin but waiting on it kicking in.
I have a small ulcer on my mouth, my hair is shedding and the skin on my fingers is splitting. I have vague pins and needles in my hands and feet. The nausea seems to have subsided though.
I get very tired and I was actually out of breath like I had ran a marathon last night after grating cheese.
X
Thank you Blueash.
You really are like my guardian angel. You have helped me out so many times on my journey already.
I actually don’t know where I would be without the forums so thank you to everyone who comments.
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