I’m new to the DCIS thing, having only been told I have IDC. Both high grade. I’m starting to wonder if there’s something else there, too, and it seems lots of DCIS victims (?) have mastectomies, whereas I was only offered WLE. Does anyone have an opinion to offer?
Cathy
Hi there Pecan,
I have stage 2 invasive cancer which was removed and they found DCIS also. I have been offered breast conserving surgery or mastectomy. I will definitly have the mastectomy as the cancer will be gone and i will not require radiotherapy following it.
Hope you are ok. I would ask your DR for further advice, options.
x
Hi ladies, my understanding of dcis, it is ductal carcinoma that is still in the same place it was created, idc is invasive ductal carcinoma that has moved from duct and now growing in breast tissue. Im no expert i had idc my mother had dcis, my breast nurse tried to explain my diagnoses, hope this helps or someone may correct me if im wrong.
Happy weekend ladies
Debbie x
I think it’s relatively common for there to be an area of DCIS around the invasive cancer .I had both but just had lumpectomy ,as long as you have clear margins it’s not necessary to have mastectomy.You could ask this question in the ask the nurses section Pecan ?
Thank you all ladies for your replies ?
What is wle? I have both dcis and idc grade 3 stage II with no lymph involvement. Er/pr negative and praying for Her2 positive results so I’m not triple negative. I have been offered either lumpectomy or mastectomy but that is down the road as I am at the very beginning and having my port introduced in 4 days.
Thank you Cathy. Right now I am just terrified of everything. Still don’t have the HER2 result. Praying hard it’s positive otherwise I will be 3xnegative. Port is being inserted the day after tomorrow. Everything is so scary! I have been as healthy as a horse. Last surgery was 54 years ago when I had tonsils out at 5 years old. I feel like I’m being a big baby but I have never been more scared in my life.
Happy anniversary pecan! I appreciate your kind words more than you know. My port goes in tomorrow (scary) — my last surgery was a tonsillectomy 54 years ago. I hope that once I know what to expect from chemo and see that it’s working, and somehow by the grace of our loving God I get used to having no hair I might be a bit calmer. Not knowing is the worst. I get you 100% about finding yourself happy or laughing for a moment and feeling traitorous and awful for allowing yourself to forget for the moment. It is a feeling very much like laughing at a funeral. Are you having radiation? I have been told by both my oncologist and surgeon that it is because of the IDC in my dcis/idc diagnosis that is high grade that I have to have chemo and probably radiation post surgery. Have you had a second opinion? Hugs to you and I hope you enjoy your special day with your hubby!!!
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I originally was sent to hosp with a cyst then while there they found DCIS. I’ve had a WLE last Monday and waiting on results. I’ve had so many try to tell me that I don’t have cancer. So many on here have had mastectomies for it not being so
Angela xx
Hi Dizzybee,
Thank you for replying. I actually tried to liken DCIS to pre cancerous cells before I had it explained to me. It was my boss who did this and she has behaved like it’s nothing even carrying out my mid year review the day I finished before surgery. Ill get over it though, though that’s why I’m off until after I get my results. She also tried to tell me I shouldn’t be telling anyone it’s none of their business and I didn’t deal with my child correctly.
I’ve been ok so far but think I had a reality kick yest so decided to register on here. It helps to read other stories and you’ve been through a lot 
I’m being positive but realistic and haven’t ruled out that they might not have got it all and might need to go back in.
I hope your next op goes well and a big hug back at ya
Angela xx
Hi All,
Got to agree - it is cancer. I am in the unenviable position of just having had a diagnosis of DCIS on the right hand side. This is 10 years after having had a grade 2 invasive cancer with lymph node involvement on the left hand side! I had the works: chemo, radiotherapy, mastectomy, ANC and Herceptin and hormone therapy. In fact, I am still taking hormone therapy although if my DCIS is hormone receptive then I will no doubt have to change that!
Fortunately my staging scans (to check whether my original cancer had also spread) were all clear so my DCIS is the only thing I have to deal with! (unless they find anything else when they operate!)
As I did not have recon on the left hand side, I am going for another mastectomy as that way I will achieve symmetry! 
When I tell people they keep saying that it is good news! I know they mean well and certainly in relation to what I have already been through then maybe it is - but to get it twice and to have two mastectomies hardly seems like good news! In fact to have one mastectomy is definitely NOT good news!
Love and support to all! xxx
Hugs to you both Dizzybee and PollyM xx
You two have both been through so much, I don’t really don’t know what to say but I’m human enough to know when ya don’t ya don’t spurt out some crap for the sake of saying it. I’ll be thinking of you both on the 17th, I got a call to go this Wednesday for an app so assume this is for pathology results after
I’m glad I joined this site but still working out how to use it or get notifications
Angela xx
13 weeks since my surgery, and next week I get to find out about the radiation schedule.
Hi.
I posted the other day on newly diagnosed.was recommended to come here as I got my diagnosis today.
High grade dcis.having a masectomy .
I would be grateful if any off you having this diagnosis or similar going through this could post your story experience .
As I said on other post. Finding this place has been godsend helping me to face that appointment today and knowing when I got results that speaking to people who have had same diagnosis as me or same cancer will help me greatly at this time.
Thank you
Lucia
Thank you so much for your good luck, got my results today, 16mm high grade DCIS removed. Margins were clear so was told I’d be sent an appointment for oncology to have radiotherapy. Came home and letter for hospital was here so appointment is this Friday. I’ve also been referred to genetics because of family history and me apparently being so young (41).
I’m so pleased but my head has been melted today, think he reality of it all kinda just kicked in.
Angela xx
That is great ANgela.
X
Thank you all.
I’m not sure where you all are, I’m in Northern Ireland can honestly say I’ve been well looked after. I had my first app on the 21 Sep then biopsies 28th Sep then results and told DCIS on 11 Oct and surgery on 30th. It’s all been very quick. Yeah he seemed to have had to wait a lot longer.
Lucia, like D I will not forget the results and being told but I had a feeling it wasn’t going to be clear for some reason so I was slightly prepared. Like D I’d ask why a mastectomy and not a WLE to see first.
Angela xx
Dizzy and Angela.
Yes I have to have masectomy as there are two Areasin breast and small A cup.
Plus it is high grade. Wish has really concerned me.
Yeah I am finding it difficult to cope now. I prepared myself mentally for masectomy but high grade D IS has threw me to high anxiety state again.
What a nightmare we are all in at times.
I to am in northern ireland Angela.
I have one week to decide option reconstruction . Either implant or go flat.
Using other skin not an option.
Lucia
I think it’s really common for DCIS to be high grade, it’s still much better to be high grade DCIS than low grade invasive.
I still think it’s hard to get your head round needing extensive surgery to remove it at the same time as being told how lucky you are, this is the one to get etc.