(How long am I allowed to keep posting on the Recently diagnosed board?)
I finally got copies of my path reports and other documentation. And I was surprised to find on both the biopsy and the path report from the surgery that I have had two tumours, one of which was DCIS and one was IDC. I was initially told that I had IDC sized at 27mm, but the path report says there was IDC of 21mm plus DCIS of 15mm. It also shows two separate bits removed at the actual surgery, but the surgeon only ever spoke about the one, downgrading the size to me. I did wonder how the US could show it as 27-30mm, and yet the path report said 21mm.
Can you understand my concern? I STILL have the infection which is preventing me from having radiation. I now only have a 3 week window, and it seems unlikely to heal in that time. They took a swab this week, and there is still Staph inside, and it’s still 4cms deep (from 7.5), and so I am back on antibiotics. When I questioned the surgeon (again) about the handling of the wound he asked me aggressively if I had a medical degree. He has said he wants me to have a second opinion regarding the actual wound, from the plastic surgoens, but now I’m thinking I should have a second opinion from someone with BC experience. The whole picture, that is, not onc or surgery.
I’m not feeling great today, having had my poor wounded breast pushed and pulled yesterday, resulting in constant pain, and a Pico dressing that buzzed all night, keeping me awake.
Hi Pecan, I’m not sure I can help you with this, but wanted to acknowledge your post and your concerns. A lot of ladies have posted that the actual measured tumours were different from the US prediction, so I wouldn’t be too concerned about that, especially if you have clear margins. As my tumour was ductal, and I don’t have medical knowledge, I can’t help you re DCS and IDC, but I’m sure the nurses on here could if you post on their help line. You can also phone the help line if you are anxious. I’m sorry ( and amazed) that you have been spoken to so unkindly. I wish you had the people who’ve helped me along my journey. Kind, caring and respectful . I think a change of consultant is needed, after all you need confidence in your medical team. Was your BC nurse there to support you?
With regards to the radiotherapy, it is a belts and braces approach to make sure it doesn’t return. So, you will get it when your body is ready. Both my wounds unraveled ( breast and arm pit) so it was a while until they healed. The radiotherapy will undo the surgeons work if they are not healed sufficiently.
Your multi disciplinary medical team are all BC specialists , from the nurses, plastic surgeons, oncologists, radiographers and they should be ensuring a successful outcome for you. It’s your right to have a second opinion, and it’s your body, but I’m a little confused as to your last sentence. Are you saying you are being treated by non- specialists? I know the Pico lines only need a nurse to deal with that aspect . Hoping you get some better answers, and good luck. X