Hi girls can u try a stronger painkiller? I use codeine which helps - regarding the driving Vicky it usually takes me a week before I feel safe to drive after my docetaxol feel so spaced and hungover xx take care and rest up!!!
I don’t know. If it doesn’t settle down by the morning I will probably call the unit to ask what to do. The info they have given me about docetaxol in particular has been a little limited compared to the fec. Most of my info got off here and mc millian.
Oh dear Vicky and Tina, you are both having a bit of a time of it…T is for tough, for sure! I hope those aches and pains will ease soon, I think I’d read somewhere it should ease after about 4 or 5 days. I was told they would be given co codamol to take, did they give you anything to take? I have arthritis in one wrist and when it flares up, I have a prescription of Naproxen to takes which really helps and the Onc has said I can take it when having T if I need it.
Hope you both have a better night.
Amanda x
Morning all.
Still nothing from Nadz. Where are you Nadz? Are you ok?
The injections are from day 2-11 that I have. Accofil 30mu 0.5ml (filgrastim).
The unit didn’t give me any strong painkillers either. Told paracetamol and ibroprofen. That’s about all they said and any problems ring in.
I had a really crappie night last night. Went to bed with a hot water bottle on my knees after paracetamol and ibroprofen not doing a lot. Woke up like I had jumped in a swimming pool with my clothes on again.
Didn’t sleep much after that due to the aches and hot flushes.
No steroids from today so hoping soon that the effects from them will go.
My sense of taste is screwed. Eating a cheese ham and pickle sandwich yesterday with fresh bread from the bakery should have been lovely. Was more like chomping on cardboard. Eating with no taste is not nice. Can taste stronger things but can’t eat them right now due to getting indigestion on plainer things anyway. Cardboard for every meal it is then. Also finding mouth very dry with this as was fec. Throat is sore but doesn’t help that I have some tonsil stones at the moment.
Can’t wait for the last two to be over with.
Roll on end of April and feeling better hopefully xxx
Think I need to take my CBD oil. Forgot it as was feeling dodgy but it may help with my bone aches. Will let you know ladies. Xxx
They wanted to put me on 4x 4mg tablets twice a day from day before until 2 or 3 days after, can’t remember which now. I saw onc and told him how bad the effects were on fec dose which is less than half (as 2mg x4 once a day) and he put me on a 16mg iv straight before the t and then 2 x2mg tablets once a day for 3 days after. Still had bad effects from them but not as much as I would have if I hadn’t have got him to change it I don’t think.
Cardboard lunch… ergh! Hate it. No nothing in particular to avoid I don’t think but hot and spicy could have a bad effect with acid in the stomach and indigestion. Thats why I am avoiding it at the sec because of indigestion on bland cardboard tasting things anyway.
Have you seen my cbd oil thread? I have posted a new one with a lot of info this morning to try and raise awareness. Mediator Anna is interested for discussions to start and people’s opinions. Me too. I am hoping that it will help people be more informed about it. The cbd seems to have helped a little with the bone aches but only took one drop. Going to up the dose and see if that helps.
The onc said it is ok for me to take it while on chemo as he and pharmacy don’t have any information to suggest it isn’t a good idea or that it would interact.
Hoping people read it!
Hugs Vicky xxx
Just spoke to the unit. They said I am doing all I can for the pain. Heat pads are good they said. It should wear off in a couple of days or I can call gp see of they can prescribe some stronger painkillers. They said as we know that the side effects accumulate.
Think might just up the cbd first as it took the edge off a bit after taking it this morning and hot water bottles.
She asked about how everything else was, hair too and she says I am doing well. Ha ha that’s a joke! Don’t feel it! Got very teary this morning over say yes to the dress. That’s not me! Just started crying and longing to go dress shopping myslef. Feels like a long way off still. ?
Sometimes feel like throwing in the towel.
I am never this up and down with emotions. Hate what this so called medication (I call it poison) is doing to me!
And breathe. Sorry had to rant ladies. You know what it’s like.
Vicky xxx
Hi Tina.
It wasn’t a link but a thread I started.
Here is a link to it. Hope it works
forum.breastcancercare.org.uk/t5/Chemotherapy-monthly-threads/CBD-oil-to-help-with-cancer/m-p/998798
I am hoping people will find it informative.
Gillian I hope the aches stop soon. Feel worse evening and night. Haven’t managed a walk yet either Tina.
Don’t seem to have had anything with nails as yet.
Got onc appointment on Thursday morning to discuss side effects after this cycle, the genetic results and if they recommend rads or not. Hoping not. Can’t see why I would need it as already had surgery.
Really hooe Nadz is ok. Last post I can find from her is 12th. She’s been a long time quiet.
Hugs xx
I’m doing pretty well thanks Gillian, in my nice last week before the next cycle! No real side effects and still have quite a lot of wispy this hair, haven’t lost any in handfuls since FEC 1, I expect it’s still shedding, but not in any great amounts (I don’t cold cap BTW)
I have had a recurrence of the ‘cellulitis’ that delayed FEC 3 for a week, so I called the GP’s and got another prescription of the antibiotics I had last time, so I hope the chemo unit will be happy with that and I will be able to have the T next Wed. I will let them know tomorrow when I go for a PICC line flush and redressing. I worked out that if I am lucky enough to have no delays, I have 49 days until the last one!
Hope you will get over some of this tiresome and nasty SE’s soon Tina!
Amanda x
hi all i am looking in to seeing someone to talk things threw. have my 4th fec tomorrow afternoon.feeling mixed up as it should be my first lot of t but inst going to happen now. just have to trust my ongloy iand hope that 6 fec will do what it is ment to do … good luck all hope you feel better as the days go on.
Oh dear Tina, not a good evening for you, and a poor nurse makes an unpleasant situation even worse! What chemo does to our poor veins wasn’t very high on list of ‘thing that are pants about chemo’ when we started out, and then suddenly they become star players!
I had (and now have again) a small lump with red and warm areas around it which chemo nurse and GP thought might be cellulitis and had and are having again weeks course of an antibiotic Clarithromycin, 500mg tablets. It is all connected with the chemo damage as far as I’m concerned. Although the PICC is a bit of a nuisance, there is no more struggling to get a cannula in or blood out from now on!
Keep an eye on the lump to see if it responds to the antibiotics. It will be interesting to see what you Onc nurse makes of it tomorrow.
Love and hugs to everyone else,
Amanda x
Hi all. Have my first T today at 10. I will update myself by reading through later, but I hope everyone’s ok? Gillian amanda,Tina,Vicky and Fred? I hope you aren’t feeling too down Tina this time round, and that Vickys party went well.
I’m sorry I haven’t been on, my dad died suddenly last week and I had to return home to sort out the funeral. The grief caused my Se’s to return and I’ve also got a cold now from the travel etc. I’m only just back and now have to get on with this 2nd part for fec-t. I’ve only had 2hours sleep and dreading the cold cap.im also down for a heart sonogram straight after chemo, and because of how long my palpitations have been lasting in last cycle will needing ecg prior today’s chemo.
My hair has thinned alot now. I’d say I’ve lost 60% if not more. It’s all about comb overs and being thankful for hats. Will have to get some beanies now,don’t want a wig as I couldnt find any that suited me.
Wish me luck xx
Omg Nadz. That’s awful. Sending you massive hugs xxxx
Yes the party went well thank you.
Feeling rubbish as have a cold. Went to see onc yesterday, told him I can just about manage the se’s, aches just wearing off, then last night stomach got worse. Now lucky if I make it to the toilet when my stomach cramps. Felt like contractions and pushing a baby out last night even though by that time my bowels were empty. Sorry about that. It is bad though. Can’t seem to get a line to speak to a nurse at the unit either today. So strange. Water and bed for me it is then. My temp is back to ok after being slightly on the high side of normal on Wednesday and cold came out yesterday after saw onc.
My eldest today ,he’s 11 now, said this morning when will this all be over? I just want you better now. Lile in a few days. Know what he means.
Thinking of you Nadz xxxxx
Hugs all xxxx
Gosh everyone, I’m so sorry I had you all worried! But I’m also very touched as well.
I’m sorry to see you have all been suffering,Fred and Vicky I’m devastating at both your news, but you are both strong women xx
Tina! You wee dear, wish you weren’t having so many difficulties and that I could physically offer support!
Gillian you are like the person to follow since you’re so ahead, helps us prepare, even though imjustcqtching up now. Can’t believe you got it in your foot though!! My veins are wrecked, my arms looks like a heroine addicts, all the veins are purple red in colour, I have actual skin discolouration all over the arm that looks like ive cutting myself and you can see every single puncture mark since day one! Got my needle in side of my wrist again which was sore but a relief, no feet for me!
My nails split with last chemo, my big toe nails have been tender with purple moons.
Today I feel brighter, normally after fec I was in constant nausea mode, but Im ok so far. Even going to have something to eat!
Wasn’t like this earlier though was gagging the whole way through T, even before it too. Think it was due to the increased dose of steroids.
I didn’t go through with Cold cap. I’m wearing hats all the time now to hide the baldness so the nurse agreed Bo point in continuing with something that really stresses me out when not happy with result.
Amanda I hope they don’t delay you further!49 days till the end, awesome!
Hi Nadz,
So sorry to hear about your loss, it’s hard to take with everything else else that is going on. You seemed to have coped reasonably well but I guess it’s a matter of having to. I had a similar thing when my Mum dies suddenly and unexpectedly 5 days before my first operation, it all felt a bit surreal and I did feel a bit persecuted! I think it must be a relief to have stopped cold capping, disappointing that it didn’t work better though. I have a selection of headwear from Anna Bandana, they deliver quickly and have some very reasonably priced staff and loads to choose from, too.
It is so hard on your veins, they hate chemo as much as we do I think! I had to have a PICC line but at least I don’t have to worry about the struggle to get a cannula in!
I hope you well start feeling better soon Vicky, those cramps sound horrible! Hopefully it will settle but don’t suffer for too long, there is probably something they can prescribe to help ease it.
Love and hugs to everyone,
Amanda x
Feeling better as of yesterday.
I had called the unit on Friday and their response was, well you haven’t got a temperature so keep an eye on it and call back in 4 hours. If no more trips to the loo or only one then it will be settling itself. If not we’ll check bloods. When tried to call back couldn’t get anyone again. Left a message but nobody called me back. Good job it wasn’t urgent.
Stomach sorted itself with a very bland diet. Managed to have a cup pf tea today without it making it bad again.
Has anyone else been having tingly feelings in hands and feet? Mine more so hands. It has been bothering me. Also seem to have strange almost blistery, red and patch just below my ankles. Is that a side effect too?
On a happy note I managed to make it out to an appointment with Leo yesterday to look at a wedding venue. It is lovely! Going to book it up for next year in April! Bought some bits to make invitations with today too. Wedding is starting to feel real now. ?
Hugs to you all xxxx
Typo. Should be blistery, red and dry patches.
Yeah Gillian and Vicky… Only slight tingly hands but my lips felt tingly and numb at times, as if I’d put some set of plumping stuff on!? Also terrible gurgly, twingy stomach, sore throat for day and earache!! Feet ok at mo!?
What’s this hell we are going through?!! Please let it be over soon! Xxx
Yes Gillian! My throat was so sore I thought I was coming down with tonsillitis. I was prone to it a lot in the past. It also ached my ear too. My cheeks have also felt tingly actually but only slightly. My hands are incredibly so.
I seriously don’t like the effects of the t. So far finding t harder. Want the dose to be lowered. Don’t think I can handle it this bad again.
Xxx
34 days until the last one Tina. Then it’s just recovery before the chemo is done. Xx