Marina not silly in my case nope they are still growing Im 6 weeks in and have had to cut them a few times x they can start to get damaged on certain regimes mainly the tax ones some people reccomend painting them dark (though thatd hide any infections under them too) some say hand cream and nail hardner but its just a lottery what if anything works but im going hand cream , cuticle oil daily tea tree massage into cuticles and OPI nail envy.
Jen
Val I am right with you in the picc line. I was scared as hell of that and felt faint/sick from the anxiety but it took away the anxiety of more needles yesterday with my 1st FEC.
Thank you all for thinking of me. The actual treatment yesterday wasn’t too bad. Cold cap I tolerated quite well. It’s different to Tandys one. Mine are like cold packs brought out from the freezer and changed every 30-40minutes.
I felt dizzy after the C part and treatment over. Bit strange maybe but there you go. Felt tired too but hadn’t slept well the night before from worrying either. I felt like that for about no more than 2 hours after. Went to bed when I got home for a sleep and then woke up and was sick 4 times in the space of 5 hours. Managed to sleep sort of last night but kept waking up with an incredibly dry mouth. Feel a little better this morning. Taken my 3 different tablets and my fiance Leo has done my injection. Thats going to be a learning curve. It hurt a bit but he did his best. He’s never had to do anything like that before and with my needle phobia it can’t be easy for him. My eldest has made me tea and toast and brought upto me in bed this morning. Feel bit better for that too. Got a muzzy head. Wondering how long that will last and which of the concoction of drugs is causing it. Got metallic tase too. How long does that last for.
If my hair was to start going when you think it would be? Thanks bibi I will check out trendco. And yes you are right wedding in 2017. We thought that way it will give us chance to save, me a chance to get over this and if my hair goes it might be long enough for extensions. Just hope if it does go I can get it back to this length. It is almost at my waist.
Your support is so much appreciated ladies. One piece of advice I was given my an elderly gentleman who has been going to the unit for 3 years was take multivitamins and it helps you keep your nails nice. His haven’t turned brown or fallen out so guess it must work!
Oh yeah sorry muzzy head. Happy birthday Val xx
Well done Tina & Red Robin - first one over & done with. RR most of our hair started to fall day 16-21. Don’t panic that your cold capping isn’t working, you will lose a bit anyway. FECT is hard on the hair & most will lose at least 20%, but just keep in your head that we have over 100,000 hairs & so a couple of hundred here & there won’t look any different to other people. Good luck to you both & drink a lot of fluids if you can. xx
Yes Tina 3 fec and 3 t. We’ll just have to deal with whatever comes along. I am totally terrified. Can’t seem to colour match with my hair so far so going to try the other place, trendco in Hove see if they can do any better. I couldn’t go bald and proud either. Its not a vain thing. I just don’t want everyone going look there is a chemo patient so don’t want to scare my boys or the kids I work with. Them especially as my two know it’s a possibility but the kids at school don’t need to know. I have no idea how to private message so will probably stick to the thread. How old are you? I’m 35 as of last week.
Thanks Bibi hoping it doesn’t happen but know the reality might be different. I have very thick hair so if its only 20% i could cope with that. Have to keep the fingers and everything else crossed. Except not the legs, nurses keep telling me off for that! Xx
Sorry ladies forgot nails. Keep them really moisturised, get them wet as infrequently & for as short a time as possible & only file in one direction. I have been a bit OCD nails, because I feel queasy about the effects of chemo & done them 3-4 times a day. Best is onicolife drops (but expensive c.£15 for small bottle) other stuff my nurse recommended is horses hoof (cheaper c. £6 for big pot & v.good) or dada oil (4.50 tiny bottle). If you are going onto tax after, then they say keep as short as you can stand to avoid knocking them. I’m in cycle 6 of 7 & so far so good, they look & feel completely normal, but you can get a delayed reaction, so keep up the regime after chemo finishes. They can discolour & become loose at the top. The discolouration is allegedly due to reaction with light (I read on line but none of the nurses have heard of this), hence recommendation to cover with dark nail polish/cotton gloves. I guess it’s like the hair, depends how much it bothers you as to what you’re prepared to do. x
Hi ladies re nails - it’s the taxol app that makes them dry and brittle and a darker polish protects from UVA as the taxol reacts to it ( apparently!) be careful with the multi vitamins tho I was told not to take any vitamin supplements as they can react with other stuff might be worth asking your oncologist xxx
have a good weekend ladies xxx
lesley x
HAPPY BIRTHDAY VAL. Hope you are having a fabulous day.
Marina xx
Today on day 8 after chemo I braved the shops. Felt nauseous but meds sorted that out. Feel as if I have someone elses body. Have always been such a naturally healthy person and now feel as though I am 101 yrs old. Totally exhausted!
How you doing Tina?
Marina xx
Hello marina , Tina , Val , Anne and all the other ladies
I’m glad to read you are doing ok. Tomorrow I’m off to hospital to have sentinel node biopsy , not looking forward to bring out to sleep .
Everything else is good just get tired easy .
Xx
Hey everyone
Hope your all doing ok. Massive day for me today, decided about a week ago that I would shave my hair off before it starts to fall out, and today I did it! Raised nearly £1200 in the process for cancer research. It was a very emotional process and I shed quite a few tears but I’m so glad I did it. It was the one thing out of the whole cancer process that I found the hardest to deal with. I didn’t want to try the cold cap as I just thought what with everything else I’m having done I didn’t want to add anymore uncomfortable procedures, especially if it doesn’t work!
Hope you have all had a good weekend.
Laura x x
Hi ladies, I am day 20 now and have lost almost all of my hair, was a shock whenit started on Wednesday but almost used to it already. Well done Laura inraising money for cancer research. Off for bloods tmw and second FEC on Tuesday. Xxx
Good luck Lynn
Sorry predictive text.
Good luck Lynne xx
Hi gfinch. Did you use cold cap at all? Xx
OMG Laura that is amazing!!! Well done you, how brave and might I say what a good cause!!!
Gillian you are like our leader, keeping us informed as you go along. My hair is just going to make it for
Xmas, I’m dreading it as even having this very short cut is difficult. I was pretty sure I didn’t want a wig but now getting cold feet. I’ve got a little hair on my chin that my tweezers just can’t find and I bet it’s the last bl**dy one to fall out!!
Hi Lynne
I wanted to be the one to decide when I lost my hair, I couldn’t stand the thought of waking up one day and finding it on the pillow! It was the last thing I could take control of whilst going through all this.
Hope your first chemo goes well, will be thinking of you x x
Hope all goes well tomorrow Gillian. Am dreading going in for my second.
Will be thinking of you.
How are the more recent chemo ladies doing. All gone a bit quiet. We are here for you …
Marina xx
Good luck to everyone starting tomorrow! I haven’t been around in a while but have caught up and am very pleased to see that this definitely the best place to go for support and moral. My Chemo had been delayed until 24th due to ivf, which sadly only produced 2 eggs…only 1 fertilised, so that was last week’s bad news. Today my portacath placement got cancelled due to staff illness. They were going to delay chemo further until I told them I’m already a month n half behind so will be trying for a vein, despite how wrecked they are. Feel like everything that can go wrong is happening to me. I am struggling but mainly because it’s the lack of control I have over anything. Each week some other bad news hits us and I’m just getting sick of being knocked back so often. This is probably the remnants of the hormones talking. But man…I need a break. Anyway, once again, thanks to you all who keep updating on their progress, it really helps
Hi Nadz I have bad veins but not offered a port and they actually managed a vein pretty quickly, I was amazed. So don’t worry about that as I’ m sure you’ll be fine. Also where I am there is a waiting list for chemo so I waited 7 weeks between my op and starting chemo. And months to have my op. They say it doesn’t grow as quickly as we think. I know the waiting is the hardest.
Good luck all of you tommorrow, I will be thinking of you xxxxx