Evening everyone…I’m home now from hospital. Heart rate still hovering around 97 but better than 140 yesterday and BP back to normal. They were happy I was out of the danger period and I feel I will get more rest if not much sleep thanks to sleep thieving steroids! Happy bunny. Need to write a rota out of all the meds, there are so many. My poor tummy isn’t going to know which part of my body it’s sending help to - I know omeprazole will help for tummy issues. Still eating my food ok on day 2, last time day 3 was the very worst but I think if anything it will be day 4 because of increased steroids. A couple of my friends took this really hard and it’s sad reassuring them I am absolutely fine, really I am. I just need to rest up for the next few days. Love to you all, hope your side effects are being kind. Xxx
Glad that you are back home, rest up now and let others take care of you x
Has any one found that their hair has gone very dry and has a brittle texture
Am on day 12 of 1st treatment
My hair went dry and brittle about same time and started coming out two days later. By day 20 to little to save and had to brave the shave.
I have a question for ladies that do GCSF injections.
I know you advise to take Clarityn for bone pain but I have been put on Piriton until my chest pain has gone following my anaphylaxis yesterday. Should I not take it now?? Are they much the same thing? Xxx
Am dreading it when it does happen
Going on the 2nd to look at wigs
Mamadeacs glad you are home. Phone thecrapid response and check with them before you pop a Claritin with you having the piriton, always best to check with the experts at hospital, they know what you can take with what safely. Camilla, have you spoken to them about alternatives to ibruprofen? I know on the t some of us are having a loratadine a day and Epsom salt baths. But again always better to just check what’s safe to take for you. ???
shi xx
Hi Camilla. I’m not Her2+ but there are some on the Oct thread that are if you have any questions feel free to pop over. I’m just taking paracetamol as advised by my onc. I wasn’t sure about taking it too often as I didn’t want it to mask any sign of infection but he has told me to take it. With T I’ve found less of the fuzzy dizzy head Feeling, no nausea, still got crappy mouth and cant taste much. Got the achey bruised feeling and painful bones which could be the injections. My eyebrows and lashes have thinned quite a bit but my head hair is growing back which has given me a boost. I also get a couple of slightly down days after coming off the steroids. Last cycle I found my good days on T better than the good days on FEC. I also find my hands and feet get quite warm especially at night so often take a little walk round the tiled bathroom floor to cool down. Epsom salts in bath is good for muscle aches but watch you don’t get hands and feet too warm.
Currently feeling like I’ve gone a few rounds with Mike Tyson so a chill out day on the sofa for me.
Hope all you lovely ladies are having a good day.
Cassie x
Happy New year ladies ???
I hope 2018 is kind to all of us with minimal S/E
Xx
Hiii all…my second chemo fec is on 2nd …ER positive and HER positive invasive ductal carcinoma grade2 …I had my hair for 2 weeks it was almost gone by now .my kids were shocked and were asking me mom wher’s Ur long hair .I just need to confirm does it grows back ?..making me sick i was waiting when I will be back to form ?.. anyways I wish all the lovely ladies a wonderful and joyful new year❤???
Haopy New Year to all you lovely ladies and here’s to the year we all kick cancer’s butt!!
I had my 2 EC cycle on Friday and its safe to say that it wasn’t a pleasant experience this time around. Had 3 different canulas attempted as 1st one the student nurse couldnt fit, the 2nd one the E part of the drug caused burning sensation half way up my arm so was removed, 3rd cannulation the last of the E caused redness around the cannula site and burning again up my arm so they had to stop for 20 minutes as vein irritated. All the meds were pushed through far too quickly in mine and hubbys opinion as the unit seemed short staffed with nurses all over the place. When it came to the C part it was pushed through in less than 10 minutes. As a result of it all I ended up with burning sensation and tingling arms and hands for the rwst of the day until late evening.
My heart rate was also 20-25 bpm faster than normal and did not calm down until yesterday afternoon when it came back to my usual 70bpm. I think it was a result of the chemo drugs and steriods shoved in far too quickly.
The steriods have also affected me more this time around so will discuss with my chemo assessment nurse before the next cycle along with Friday’s poor experience and care at the Day Unit. Was a very unpleasant experience this cycle time and am so glad that wasnt my 1st cycle experience otherwise I wouldnt have been keen on showing up for my 2nd cycle.
Apologies to moan as I know others on here have had a far worse experience!
Take care.
Jo x
I feel for you Jo…I had a similar experience myself on Friday with my 2nd FEC. One vein popped on the E part, took a while coaching a 2nd vein then had anaphylactic reaction to the C part and never got the F. Couple of days in hospital. Yesterday no energy at all. Big hugs to you, hope side effects are easing and recovering is swift. It feels like such a slog.
Love Nikki xx
Sorry to hear about your bad experience on Friday foo Mamadeacs ? Sounds like you’ve had a far worse experience than me but hopefully your cycle 3 will be much better. Sending a big ((hug)) to you too and hope that you start to feel better over the next few days. We are a 1/3 of the way through this journey and we CAN do this with the love and support of family, friends and other ladies on this forum 
Jo xx
Yes we can Jo…hadn’t thought of being a 1/3rd through, next one will be 1/2 and then it starts sounding more manageable. Take care xxx
Happy new year to everyone. Hoping we all find the strength to go through what we have to to beat this thing that had changed our lives.
Sorry to read about the difficulties with administration into veins. Sounds very painful. I had a hickman line fitted and although not pleasant to have put in. It appears to saved the veins. Not sure why this should just not be standard practice ?
Happy New year to you all, this is the year yo kick cancers butt xx
Happy New Year to everyone xx
Lesley62 you’ve hit the nail on the head. All about resources and ‘saving of’. However as you rightly say the time, energy and strain on resources with nurses having to find veins must exceed the time for nurses using lines. I was in shock when my chemo was inserted in 15 minutes. That was the nurse taking her time as it was my first chemo. That was me done! ! Heading for my second next Tuesday and not looking forward but as you say each time one is done it helps mentally. …only a good thing.
Happy New Year everyone! Let’s hope it really is a happy one eh! ??
I have a question about anti sickness - I’m currently 5 days post chemo and have been taking metoclopromide which worked last time and for most of this time, except today where I have felt really nauseous! I have phoned the chemo line and I think they are prescribing me something in addition but I was wondering how long nausea should last with chemo? I thought I’d be out of the woods by now??
Xx
I had bad nausea on first cycle so was given Emend this time for first 3 days with Ondandestron and this worked. I had just Ondandestron yesterday and was ok. I’m also Day 5 and today my nausea is back and I’m feeling worse than yesterday. It all feels so up and down. Xx