Sam and mamadeacs each round is different, you’ve done right thing and getting your teams to tweak your meds, better to prevent nausea, keep ???you are all doing amazing ???
shi xx
Mamadeacs - I feel the same. Just been given something to top up the metroclop so waiting to see what happens. The second I think i have turned a corner, it hits me for six and I feel back to square one!
Thank you Shi … just trying to get there day by day. Hoping things get easier soon! Xx
I was told on cycle 3 to double up my Ondansetron for the first couple of days and take the metaclopramide as a top up. I also have Emend for first 3 days. Cycle 4 was best so far for nausea. If you do double up on Ondansetron though make sure you take a stool softener as it can bung you right up, although by cycle 4 on FEC my digestive system had started to go the other way so had less need.
Tonight I said to my husband I don’t think I can put up with this for another 4 goes. I think it’s fatigue for me as well today. Hope you are feeling better soon Sam xx
Hello all, I’ve had another failed chemo today with a second severe reaction to desensitized paclitaxel.There was only 1.8ml of the drug in 50ml of saline and the reaction was really quick even after shed loads of pre-meds. Feeling quite despondent now, got an appointment with onc on 11/1 to change me to abraxane. If that’s no good then my chemo will stop altogether. Not sure how this affects the future for me if I can’t have it. xx
Rabbit jumping in here to reassure you, i had 2 reactions like you and chemo stopped, i was switched to Abraxane for remaining treatment which i tolerated very well, i was told my reactions were probably down to an allergy to the solvent used to make the chemo liquidy if you know what I mean, so it could be given via drip but abraxane isn’t made with solvents making it good to use in this type of situation
Just out of interest what trust are you under?
Hi Mishy, I think you’re right both the docetaxel and pacltaxal are bound with the same solution. The sister on unit thinks the abraxane will be better as it is albumin based. I am under East Sussex NHS, I think the abraxane is more expensive but last time I saw the onc she said if the paclitaxel failed they have funding for abraxane. xx
Hi Mishy,
I think you’re right both the docetaxel and pacltaxal are bound with the same solution. The sister on unit thinks the abraxane will be better as it is albumin based. I am under East Sussex NHS, I think the abraxane is more expensive but last time I saw the onc she said if the paclitaxel failed they have funding for abraxane. xx
Just popping in to say hello… Emerging from the fog of #chemo2, better get to bed! drbexl.co.uk/category/cancer/
My hair started falling out big time so I braved the shave when getting fitted for my wig yesterday.
My husband and son were great when they seen me. So that’s another hurdle over.
Chemo no2 next Tuesday but it’s great having picc line in It should take 30mins at most
Hi Rabbit thats whst they said to me they funded it due to me having the allergy my onc said its too expensive to use as regular treatment only for the emergency situations i wasn’t sure how it would work in other Trusts im at N CC trust based in North East but covers large area up to Scotland you should be ok on it the SE are similar to Doxetaxal but less risk for Neutrophils so i didn’t need injections with it
Day 6 of cycle 2 and the fatigue is in residence. My throat has all white lesions on it again as per same days on my 1st cycle when I assumed it was a viral throat infection I had picked up. Does anyone else suffer or have suffered with this? It leves my mouth all chalky feeling and tasting and is sensitive to hot or cold temperatures.
Question for you ladies…when you finish the steriods do you find that your appetite ramps up?! When on steriods I actually want less food but when they stop I just crave fruit and have problems settling my blood sugar and am literally having 3 good meals a day with snacking between (usually fruits). I wondered if it was just my body craving nutrients that it needs as the chemo is working on the cells and carrying out repair work? Like I say I felt similar on my first cycle until around Day 12 when it all started to calm down!
I’m also craving red meat today (usually eating plenty of chicken for protein) so have popped some fresh stew beef in the oven with mushrooms, onions, peas, pearl barley and bay leaves…can’t wait to eat it later with plenty of vegetables and a few potatoes! ?
Hugs to all.
Jo x
Runaway girl has you been bc given you difflam mouthwash? You might also need some fluconzole too, I’ve gad thrush mouth every round, it’s common that chemo does this to the mouth. Ring up your unit, you don’t need to suffer when they can give you something. Hope that helps ??shi xx
Sorry that should have said has your onc given you them, predictive text …
I saw the nurse last month Shi as I thought it was thrush but turns out that it wasnt. Ive got aome mouthwash from the Day Unit but am regularly brushing my teeth after meals and gargling with salt water solution. Its weird how chemo seems to affect people differently isnt it! My usual “weak” points without chemo are my sinuses, throat and gut so stands to reason I guess that they are the ones most affected by the chemo.
Hope you are OK Shi on your current cycle!
I’ve woke up with a sore tongue and mouth ulcers,using mouthwash but it’s very sore especially the tongue.
There are spots on my tummy and legs.
Oh the joys of chemo S/E
I hope your mouth and tongue starts to feel less sore Karebear. Keep drinking plenty of fluids and maybe sucking on some small icecubes or lollies if you can manage them. Ive got some homemade lemonade lollies in the freezer from my 1st cycle which Im going to try today if only to get rid of the awful cardboard like taste in my mouth!
Looks like I may have a cold starting too so keeping an eye on my temperature. Today is a day of resting for me listening to my body rather than trying to do what I mentally think I can do ?
Karebear, please phone your team if you’ve got something that looks like a rash, one of our Oct girls got a rash and hit it checked out to be on the safe side. Sorry to be such a clucky mother hen, I just want everyone to be safe. ???shi xx
Feeling really low this cycle, lots of tears on phone to my husband last night :((. My sweats are getting worse and worse and I feel like an exhausted bald, bloated, sweaty pig. If I put make up on I sweat it off, can’t put wig on as sweat drips down, head gets cold but skull cap gets wet and makes me colder. I don’t know what to do with myself. Worrying ahead about hormone treatment for 10 years making life unbearable with more sweats. I was on HRT for 9 years before bc diagnosis and was taken off it, I used to get hot sweats then and now I get cold sweats…it is weird, I sweat and shiver at the same time. I honestly don’t think I want to take anything after chemo/rads/herceptin is finished. Has anyone else considered not taking tamoxifen or whichever hormone treatment? Is there an alternative? Xx
I rang the team and i went to unit they done my bloods. They came back fine the only thing is my immune system is very only 0.4 so I have to be extra careful round people and picking up infections etc.
Another girl I know came off the hormone therapy she said she had no quality of life when she was on it