Hi runaway girl glad you are getting support from family and friends. I know What you mean about the denial and it is completely natural in fact I would think we weren’t human if we weren’t bl@@dy angry about this whole thing. I was also told at every stage that it probably wasn’t cancer and that the tests were merely ‘precautionary’ - I didn’t have anyone with me at my biopsy results because they were supposed to be my confirmed ‘all clear’. I wasn’t - suddenly I had stage 3 breast cancer. That was in July. My life completely changed that day and I know that I will never get back the plans that I had for 2017 and the time with my 7 year old daughter that I have lost. But hopefully this time in treatment is like bring a caterpillar tucked away in our cocoon - not a particularly pleasant one - but one that we will eventually emerge from and pick up a new life with more thankfulness, grace and appreciation than ever before ???
And for those times when I am really angry about the chemo here is my little theme tune
youtu.be/Cdvk7O3Tz6A
(I should warn you that the lyrics have a lot of swearing just in case you would prefer not to click through)
Hi cathysin, I know the May thread suffered with ‘slime mouth’ think they drank fizzy water and did a few other things too, would be worth you posting on their thread asking for tips ???hope that helps ??
shi xx
Hey Cathsin - I’m also on TCHP too! All I keep hearing is how tough this regime is and I certainly felt it this time around. I have also recently had my second cycle- I’m 11 days in and have only just started to feel human today. Really suffered too with a slimy mouth to the point where drinking was a battle without feeling sick! Same for you too? I found drinking through a straw helped a little…
Are you also having treatment before surgery? Xx
Thanks Ladies for your tips and support I will certainly give them a whirl. I found Mango sorbet to be the only thing I could face last session as well. I ate a punnet of tomatoes yesterday and now apparently that does not help my Pruritus Ani (itchy bum ) you are conscious you need to eat and then find out that the stuff you do eat causes issue elsewhere. On a positive note chemo over by end of March then opp possibly radiotherapy and 12 heceptin injections to follow x
Hi Jo, good to hear from you. Glad you have a supportive group of friends and family.
We do all process and react to our bc news differently. During my treatment I often felt like I was outside, looking in, like it wasn’t happening to me. My surgeon said it was quite common, but watch out for the delayed reaction. Boy was she right!
Feel free to rant away. That’s what we’re here for
Xx
I feel just like this, I was only saying to my YD last night that despite 5 chemo cycles it still sometimes feels like it’s not real!
Hi ladies just wondered if any of you were having cold cap and cold mitts and slippers and what your experience of them were x
I haven’t heard about cold mitts and slippers only the cold capping.
I was wondering if anyone has got or thought about getting their eyebrows microbladed and if it was worth getting them done??
Cathsin, I’d read about cold mits and boots but they weren’t available so I started my first taxol with hands and feet in iced water.
My nurse thought I was mad, and I agreed with her! It was unbearable!!! Much much worse than the cap despite taking tramadol.
Try it if you’re brave. But actually my hands, feet and nails survived with udder cream, manuka honey hand cream and nail drops plus OniClife (or something like that!) nail drops.
X
I managed the cold cap on both of my treatments but the cold mitts and slippers are a different story . The first time I had tears tripping me it was that awful when they changed them mid treatment the nurse said don’t worry about it . The second treatment they offered me them again so I thought ok try it . I managed longer but did not change them mid session . See how it goes . It was particularly painful on the hand where the cannula was in so ended pulling that hand it sooner than others x
Karebear - I have had my brows microbladed but I’m afraid you do need it done before you start treatment due to the risk of infection. You usually have it topped up six weeks after the initial session, which I haven’t been able to do, but I’m quite tempted to gave it fine once I’ve finished treatment as I quite like the look. I haven’t lost my brows or lashes yet. Consider having it lightly done once you finish treatment as it does at least give you an idea where your brows are meant to be!
Thats round 2 done only 4 to go.
All went well it only took 35mins.
I hope S/E are kind to me this time round
That’s amazing only 35 min mine too from 10am until 4 last time x
My husband came with me he couldn’t believe how busy the unit was. I feel for the staff they really don’t get a minute and they don’t paid enough .
Good luck tomorrow Camilla hope S/E won’t be to bad this time round xx
Hi all what does SE mean please
S/E means side effects xx
I Done a silly thing and ate a heavy meal (chicken & chips ) when I got home from cycle 2 never again, I was so sick about 10pm felt alwful
So I’ll be putting a note in my diary just to have a Light soft diet for a couple of days after chemos
Hi Jo I had a three week late period the first week of chemo cycle 1. Think it was delayed by the stress of surgery etc but haven’t had anything since. Around the expected time of my next period I did feel a few of the usual preperiod aches and pains but no period. Then nothing at all. Don’t think my body feels it is a safe time to be fertile!
I had the Mirena coil taken out before surgery as one of my tumours was oestrogen-receptor positive i found my period came back and my last one wss on my 1st chemo treatment haven’t had any signs since