That’s interesting Karebear that you had to have the Mirena coil removed. I was on the progesterone only pill which the oncologist told me to stop but said I could have a Mirena coil fitted as the hormones are only released into the local area. I’ve decided against it as they think I am peri-menopausal as I’ve had no period since July 2017 but that conincides with the tests before diagnosis shortly thereafter, so could just be worry? xx
Kirsty are you having herceptin? if so have you started it yet?xx
Hi Kirsty, my oncologist said a copper coil is fine as it has no hormones but can cause heavy bleeding. I was just curious about the herceptin as I’ve felt quite strange for about 10 days after the injection each time.
Obviously you won’t know until you have the herceptin on its own when your chemo finishes, is the perjeta 18 treatments as well? xx
Kirsty, sorry forgot to add I was told you need to use condoms whilst having the chemo anyway to protect your partner from the drugs. xx
Kirsty, if your’e interested i’ve been looking at this as another option, not sure though? xx stressnomore.co.uk/femcap-contraceptive-cap-92461.html
Kirsty, thats awful that you have to pay for it, what is the Perjeta for?
Maybe you should consider setting up a charity fundraising page online to raise some of the cash. I’m sure many on here would donate, I would for sure. xx
Yep Kirsty, definitely put the link on when you can. xx
I also had the Mirena coil removed after diagnosis after 18 years. My ED has a non hormone coil and despite having heavy periods before it has been fine. YD had the implant when she was 16 and is now really worried about the hormone effect raising her bc risk in the future. She is about to have it removed and is hoping to switch to the same coil as her sister. My blood tests before chemo showed me to be just about menopausal so hopefully I don’t need to worry about this anymore! Like you say the inclination is decidedly lacking at the moment anyway. It is important to keep up the cuddles though our partners find this pretty tough too x
Good luck Kirsty for tomorrow and Bex (was yours today?!)
Half way girls ??Xx
Thanks Sam! Cant beleive half way already ? hope you are feeling better now with the s/e’s as coming towards cycle 3 xx
The SEs have definitely lingered around for a lot longer this time - feel more human this week though and even went into work! Can’t believe I’m back there again next week though! Hope the next 3 go just as quick xx
Has anyone heard of the drug perjeta??? It’s for HER+ breast cancer
I don’t know if they give it out in Northern Ireland
I know they don’t in Scotland unless you pay
I must ask when I get my next cycle it’s meant to be a great drug
Karebear
I’m on it Karebear. It’s being given to me with Herceptin and chemo. I think it’s relatively new?
Only it it whilst I’m having chemo though… won’t be having it for the year like Herceptin xx
That’s great to hear you made it to work Sam and glad your feeling more human now, i hope round 3 goes as fast for us all!
I posted on this thread about pejeta earlier today karebear, im having to pay for it, but its supposed to be a hreat drug so we are going for it (im in scotland)
Rabbit, thank you so much for your donation on my just giving maggies page ? xx
I can’t believe that Kirsty… I didn’t realise Scotland hadn’t approved it. I’m glad you are managing to have it …pretty poor it won’t be funded though ? x
I know Sam, it is so frustrating!! They said it was only recently approved for use on the NHS England but scotland hasnt approved it yet 
apparently they probably will in the next couple of years. Im so glad all the family are helping out to pay as we wouldnt have been able to pay £10k on our own. I swithered over it to begin with but if it could potentially save my life its worth a shot xx
Congratulations on the new grandchild camilla xx
Those of you on perjeta, are you all Surgery after chemo and just interested if you also had node involvement? I’m HER2+ and had lumpectomy then chemo and will only start herceptin when I start rads. I had no node involvement so presumably lower risk of recurrence but also wondering if I’ve missed a trick.
Thanks, I suspect that’s the difference. I am ER+ PR+ HER2+ I’m a very positive person ?. Just as well I am really ?.
There seem to be quite a few of you who are HER2+ on this thread. I think there are only 3 or 4 on the October group.
I’m HER + but ER - too! I am having chemo before surgery but I don’t have node involvement (that can be seen). Will microcells count as node involvement if that’s what is found after surgery or does it mean developed cells that can be seen on. CT or ultrasound? I have always been a little unclear on that.
The reason I’m having chemo first is to reduce the size so they can perform a lumpectomy rather than mx — that seemed to be the plan?
I have had 2 lots of Herceptin/Perjeta with my chemo (Docetaxel & Carboplatin) and I am now unable to feel the lump… I’m led to believe it’s the H/P doing this so you may find things change quickly when you have this Kirsty! Xx