Sam, no not having herceptin as I’m triple negative.
I really struggle with the nausea, ask your oncologist for Emend or Akynzeo. It’s a long acting anti sickness tablet which is taken an hour prior to chemo. It really helped my nausea, still have to take others but it’s a huge improvement.
Huge admiration for those of you working through your treatment. I’ve just popped down to Asda & matalan & it feels like I’ve done a 12 hour shift! Xx
Hi unicorngirlmummy, I’ve sent you a pm ???
shi from Oct thread xx
I’m triple negative too Unicorn and on an accelerated course every two weeks so have been signed off as I have no good third week! This is my second time round too, although not since 1998. Am I right in understanding this is your second course of chemo in a year? Did you have a relapse? Xx
Hello Shi, I’ve replied to your message xx
Dramaminx I’m sorry this is your second time ? Every 2 weeks, that’s tough going. My story is very long, to try & cut it short…I had a lumpectomy with clear margins & no spread September 2016, 4 AC chemo & 20 rads ending April 17. July last year 2 tiny pin prick areas appeared where the tumour was. After numerous frantic calls to my BCN & being fobbed off by my GP who said it was my bra rubbing (?), I was seen in clinic. The MRI was clear, USS showed nothing. Surgeon thought it was radiation necrosis. By September it a 4cm cavity. I was told over & over it wasn’t cancer. I had surgery to close it where thankfully the surgeon took a biopsy which showed again a 43mm metaplastic TN tumour in less than a year. Then a mastectomy 4 weeks later. If something doesn’t feel right don’t be afraid to voice it!! Is this in the same breast for you? Xx
Hi unicorngirlmummy I’ve pm’d you back thank you. Couple of things I’m on a 21day chemo cycle and currently this is 1st time cancer for me. With being tn, we don’t have anything else after the chemo and rads but my gran who got bc at 44 is going to be 94 this year, so with any luck I hope to take after her. ???shi xx
That’s lovely to hear that about your gran 
Xx
Hi Sam, can give u a typical day while on my ‘bad’ 7 + days after chemo. Breakfast porridge with oaty milk,org blueberries, rasp, straw. Lunch, tuna on crispbread ( no butter) a few sliced org apple and kiwi, 5 or 6 almonds, walnuts, brazil nuts.Dinner, If I feel up to it, a little org chicken made in the slow cooker with org veg and even an org stock cube. I freeze portions. If I can’t manage even a small portion of dinner I have 1 small, plain brioche with manuka honey on it. ( Yes, sugar in honey and prob the brioche but light, can tolerate it and I don’t go to bed full)
Seems to work for me, but when no appetite, small portions. Interested to hear what works for others…
Wow Shi, that’s great news about your gran, my next door neighbourhood recently passed away at 104 and she BC many years ago in both breasts. xx
Rabbit that’s was good she made 104. Yep grans going to be 94, she saw got through the war and then bc and she is the best gran, loving and kind and as hard as nails when she needs to be ??camilla, I’ve been on gluten free porridge made with water then splash of almond milk over it when cooked, scrambled egg on toast then steak and veg for lunch then rolls for dinner with variety of fillings. I’ve kept off the fruit since 1st round when I got a uti, didn’t know if the fruit irritated my bladder. Hope that helps ??shi (Oct thread) xx
Hi Shi that all sounds yummy but I don’t eat egg during my first week after chemo as I have found I get a bit constipated and apparently eggs and bananas can ‘stop you up a bit!’
Otherwise, yes, I regularly eat eggs for the iron in the yolk. (And I like them, it’s not all about feeling virtuous!)
Ah they are great ideas- thanks Camilla! I’ll definitely give some of them a go- I just struggle so much with my appetite for the first 10 days!! ? might do some food prep this weekend ready for cycle 3 next week xxx
Wow Unicornmummy, another example of knowing your body and not taking no for an answer paying off. First time round I was 26, no family history and I had a 10mm oestrogen ++ grade 1 tumour which was treated with a lumpectomy, rads and 5 years tamoxifen, which was a new drug at the time. No herceptin in those days. All ready to celebrate my 20 year anniversary in 2018 when I felt a small lump in October. Immediately went to the dr who couldn’t really feel anything but referred me straight away due to my history. A mammogram revealed nothing, it was finally picked up by an ultrasound and histology from that. It grew and grew so quickly due to it being a grade 3 TN. So a totally new cancer with different pathology but in the same breast. I am, apparently, very, very unlucky! Tested negative for BRCA1&2 so it is totally random. I had to push and push for all my appointments, make a right nuisance of myself, all while going to work and keeping it secret. As I had all my lymph nodes removed last time I don’t know if it round have been in them but my CT and bone scans came back clear so I’m taking that as good news. No more rads for me as I’ve had my lifetime exposure so mastectomy and reconstruction for me. I am seriously considering having both sides done as I don’t want to be third time unlucky in my other breast. I have been told I would be suitable for a braxon reconstruction which is a new way of doing things, the implant is wrapped in a mesh and stitched in over the muscle which gives a good cosmetic result, better recovery time and particularly suitable for smaller women who don’t have enough spare flesh for a flap. Really didn’t expect or want to be here again but that’s life. I’ve had 20 good years since my last diagnosis and things have moved on so much since then, so I’ll m feeling very positive xx
Why is it I feel very down and low when the steriods stop. I’ll have to give myself a kick up the bum and try and bake some of Tom Kerridge Apple muffins they look great yumm xx
Good morning ladies someone said to me Chemo the gift that keeps giving . I thought that was a great analogy. Well the extra gifts I have had this session (session 2 ) are fungal infection, acid reflux ( was on acid reflux meds any way but with all sleeping and hit and miss eating habits they were not touching the sides so doc said to double the dose of mess while on chemo do hopefully the horseness cough and sore throats will subside sometime soon) and red cheeks ant to top it all now got dry flaky red cheeks. Attractive hey x
The heartburn I have is terrible I can’t sleep or eat with it I must ring and see if I can up my dose to 2 tabs a day as well
It sucks
Defo worth a try Karebear
Runaway girl, I was told to ring up if you get a rash, so worth just getting the ok from your unit. Karebear a lady who was on chemo and just finished was getting That and the onc prescribed her something, so worth asking if they can prescribe something that’ll fix that for you ???shi xx
Really strange, but I had 2nd FEC last Weds and now Sun night and I feel as normal. (Except no appetite)
Went for long, sunny walk along promenade by shingly beach today.
Not complaining, of course, but keep waiting for something horrible to happen…
Husband missed going away to a w/e party of a v old friend so he cld stay and look after me. Almost feel I shd fake some symptoms - but no doubt they’ll appear soon enough!
The way you feel seems to vary a lot from cycle to cycle. I’m day 13 FEC 5 and really struggled for first 7 days this time with fatigue. Felt a bit better on day 8 went for a 2 mile walk which was like walking through treacle but ever since I have felt pretty much normal apart from dry mouth. Whereas over Christmas I had an extra week on cycle 4 and never quite felt right. I have done loads of walking since Wednesday and have found going out in the morning for a couple of miles perks me up for the rest of the day. I was told that walking helped with fatigue and it’s hard to motivate myself to do it but it really does help.
Oh runaway girl hope you are ok and get out of hospital soon x