Fed up with S/E. And taking tabs
Round 3 next Tuesday and goodness knows what that will bring.
I’m round 3 Weds week then the one after will be the T. I’m so frightened of the T!! Has anyone had it and not been too bad? Phaps I have to ask Nov starters. …
I think am on 6 session of FEC then radiotherphy
Camilla ask september /October ladies about T treatment they will be able to tell you all the affects and how to cope with it.
Big hugs xxx
Camilla jump on our Oct thread about your t concerns lovely, we’ve all had different experience with it. I managed 2 then switched back to fec for my 6th chemo as I had a reaction on 2nd t. It’s unusual but can happen, if it does while they are infusing it, you suddenly go hot, your chest tightens quick and you need to let your nurses know straight away so they can stop it and give you a bag of piriton, it happens quick so if you get that shout the nurse immediately, other girls are getting through t better than fec so it’s individual. If you do have reaction to t, they can put you on Abraxane or back to fec, so keep ???you will be fine darling ???
shi xx
Hi all, was impressed with today’s short bloods and clinic visit- home again in 2 hours a first. Because of numb fingertips they’re going to lower my dose which will have a negligible affect on overall outcome, if I continue on full dose there is a possibility that after 3 more I’d have to stop and peripheral nerve damage could be permanent ?. Hopefully lower dosage will mean I can complete the 12 and when finished fingers should return to normal.
Rabbit - hope abraxane still being ok for you and you’re a bit more comfortable.
Dramaminx & Karebear I’m hoping your s/e are being more kind to you too.
im in for next dose tomorrow. F x
Rabbit, bum buttering etc tips on Oct thread for you from some of us ???shi xx
Hi Camilla! I’m on Docetaxel and Carbo for 6 rounds. I don’t know what FEC is like but mine hasn’t been too horrendous. For me it’s stomach/gastro problems that have caused the biggest problem… but anti sickness and anti acid seems to have helped with that and some ibuprofen for any pain. If I can do it… you totally can!! ??Xx
Like Sam I have been on docetaxel carbo plus herceptin and perjeta for what will be six sessions third one tomorrow . Main s/ e for me is thickened saliva so it’s like eating through slime and gastro issues so doubled up on my gastric meds and the runs but the pills they give you for that is fine good luck on your upcoming treatments . Half way thrught now girls xx
Hi Camilla, like Sam & Cathsin I am also on docetaxol & carboplatin. I had AC last year which is the same as the EC part. I find the docetaxol & carboplatin better for the sickness part. I was very nauseous all the time with AC. I
Have akynseo first & the metoclopramide really takes away any nausea. Taste still awful & the main problem for me is the fuzzy hea. It seems to last for a good 10 days. I can still get up every day, do the washing, make dinner etc. I’ve read others suffer with diarrhoea but it still makes me constipated. I asked my oncologist for something stronger & movicol seems to help. She’s given me 28 days worth so I have 226 sachets if anyone needs any!! ?? After about 10 days things return to normal.
Karebear I really feel for you, I had huge problems on my first cycle, because I’d read it causes diarrhoea I didn’t take the laxatives…big mistake!! I was in agony for days, had to buy suppositories for constipation & haemmarhoids!! ?? The joys of chemo!! Hope it settles soon. Xx
Sorry to hear of those who have needed hospital trips ? Hope everyone is feeling better very soon xx
Well the halfway point was a fun one yesterday! Port didn’t work again after 2 hours of trying! Ended up with a cannula in the hand, an exploding cold cap (bright purple and foul smelling I might add!) and finished off my treatment sat in a pair of scrubs they managed to find me! Then my cannula stopped working and I had to switch hands right at the last min which added another 30 mins of extra cold capping! Wahhhh!!
But… halfway!! ?? We can do this!! X
Oh Sam sorry you had all that going on, it sounds more like paintballing than chemo, lad you can say yehhhhh half way that’s a good point to pass, keep ???shi xx
Oh sam that sounds horrendous ? Half way there though!! ???
I’ll be half way after tomorrow! Although my daughter has a nasty virus with a high temperature so is off school & the dog has to wear a cone of shame as he keeps licking his bum! He looks so sad & keeps whinging! Nothing but drama in this house!
Hope everyone’s side effects are manageable xx
Oh Sam, well done girl! What a day for you. I swear if a script writer were to trawl the monthly forums they’d have plenty of material for a dark, twisted comedy/drama series with a supportive cast, dastardly procedures and side effects but filled with love, hope, strength and occasional very strangely weird situations.
If you’re out there scriptwriter we have tales for you.
Specially large hug Sam for getting through that lot and still smiling ??? ? ?
F x
To be fair… if you can’t laugh then you will cry! It was my only option yesterday! ???Xx
Cycle 3 Pre-chemo today and Oncologist said I was at the worst end of a really severe reaction to FEC on cycle 2 and absolutely can’t have the same chemo again. Unfortunately he said both Docetaxel and Herceptin are more likely to cause a reaction than what I’ve already had.
He gave me three options;
1 - throw the towel in now and not having anymore chemo
2 - have docetaxel and herceptin together
3 - have no chemo and just herceptin
His advice go with chemo and herceptin so we have agreed I need to give it a chance but we are doing just chemo this Friday and chemo/herceptin next cycle. I have to be in hospital, closely monitored and heavily dosed with steroids and piriton as well as normal stuff. It will be a stressful day on Friday waiting to see if I react. Will find out about bloods tomorrow.
What a palaver this journey is! Xx
What a bad week we al seem to be having I spent 8 hours there today having my cocktail of drugs but nothing like your session Sam hope you are ok x
Oh mine was just a series of unfortunate events more than anything! Got to smile really! Hope everything goes ok Mamadeacs… what a nuisance ? hopefully you won’t have a reaction but if you do then you have the team around to give you everything you need.??
On a different note— has anyone’s mood been really impacted by treatment? I go in feeling really positive… come out feeling positive and then literally the next day and for about the first week after treatment, it’s like someone has flicked a light switch and I just think the worst thoughts and feel really down and sad. Is this common?? How is anyone else coping if so? Xx
I’m the same…I spoke to my GP and she said it’s well known steroids mess your head. X