Hope your Neutrophylls start to go back up overnight Kirsty! I guess all you can do is rest up and let the medical team do what they can. Surprised they havent given you the GCSF injections though to help your body along.
Big hug 
Love that quote Karebear! So true…
Sorry to hear you are still in hospital Kirsty! I don’t know how true it is but I keep seeing ladies saying that pot noodles are good to boost the neut count?! Absolutely no idea how or why though!!
X
Morning, still here ladies,waiting on the blood results to see if allowed out yet today. Lol Ive seen that on facebook as well, curry ones ? im a bit skeptical about one haha but anything is worth a try ?
I asked about the injections and they said may consider for next round but they wouldnt give them in this current situation to someone that is clinically well as they come with their own complications and also produce immature white cells with wouldn’t solve the problem, as need mature neuts so fight infection, they are more for preventing them dropping so low in the first place xx
Hi Kirsty, hope your’e feeling better and they let you go home today.
My turn for a trip to hospital last night, felt fine Friday and during the day Saturday then last about 10.00pm developed uncontrollable shaking and shivering, red face and chest but no temperature with some nausea. I called for some advice and spoke to the chemo nurse who went through a few things and told me to try and get warm. He called me back about 15 minutes later and told me to go to a & e to get my bloods checked. I went by car they told me to sit in the waiting area which I did then I collapsed. My mum was with me and said people came rushing from everywhere and put me on the floor and told my mum I was about to arrest.
Fortunately that didn’t happen they brought my knees up and I came round but my blood pressure was really low and they thought I might have had a heart attack.
I had numerous tests carried out and found it was a urinary tract infection and dehydration. We got back about 4.00am and today the muscle and joint pains have kicked in so can barely move, taking plenty of painkillers and resting.
Hope everyone else is getting on ok. xx
Oh my god Rabbit!! That is so scary! And all coming from a urine infection, crazy how quickly it can come on and make you collapse. Glad They foubd it tho, have they given you antibiotics? What day in your cycle are you on?
Im still bloody here, feeling absolutely fine, temperature has been normal since Friday morning and ni symptoms but my neutrophils still down at 0.1 so wouldn’t let me leave today either 
another night stuck here and more days off work tomorrow xx
Oh no Rabbit!! I’m glad they know what caused it and you have meds now though. Scary to think what chemo can do to us so quickly! Xx
Very random, I know. Just cooked a roast chicken dinner which the family seemed to enjoy, but every item on my plate tasted the same, of metal.
I’m day 11 of 3rd FEC, I had hoped by now to be starting to feel normal again.
Someone suggested using plastic cutlery, will give it a go.
I know it’s not much to moan about compared with what some of you are going through.
Sure my turn will come.
Babysat my 5 month old grandson today - we live 300 miles apart so he doesn’t really know me but he smiled and chuckled for England. Seemed as delighted to see me as I was to see him. Really cheered me up!
Rabbit that must have been so scary
Kirsty hope you pick up soon . Had a great day today went to see the terracotta warriors in the museum in Liverpool then out for Sunday lunch . It’s the first time I have been out in three weeks other than trip to and from hospital . Was good to feel normal for a short while but totally shattered now x
Sounds like you both had nice days camilla and cathsin 
xx
I’m sorry to ask for advice on something random when some of you are really struggling.
I am Day 19 on my first T. 10 days ago I was admitted with really high temp, rash on my tummy and awful pain the cocodamols wouldn’t touch. They put me on IV antibiotics as my infection markers were up and oramorph for pain. What I have since found out from my GP is that I have shingles but junior doctor disregarded when I was in hospital, even though I pointed it out. I am home now taking gabapentin and Zomorph but still in pain.
What I need advice on is: on movement I get what I can only describe is a lactic acid type pain in my lower back, pelvis and thighs. Could this be down to the shingles or could it be side effect from the T?? I still have hypersensitive skin where the rash is and unfortunately for me on my tummy I can feel where every injection has gone into my tummy the last couple of months. I’m still itchy but every blister has popped and scabbed so I’m not contagious.
Love Nikki xxx
Oh Nikki that sounds awful too, seems our first Tax’s has knocked us into infection.
That is not good news about the junior doctor, sometimes you know its something more and have to push at them, when theh should have seen this to begin with.
I havent had the pelvic pains myself but they have said a side effect from T is pains and they also said to me when I aksed them for the filgastim injections (which they wont give me) that it is often the pelvis area that gets the bone pain, so that could be part of it too? Hopefully one of our Dec ladies can help more and has had these before as well. Take care xx
Hi Mamadeacs, I too bet these pains from head to foot and really uncomfortable. Oncologist told me I could take ibroprufen and paracetamol together then use co-codamol at night. I have the strongest co-codamol which you need to get from your gp. Last cycle I didnt sleep for 5/6 nights but painkillers definitely helping this cycle. Only problem is all these painkillers cause constipation. Pain should ease off after a few days. I think pain from shingles is from nerve endings whereas pain from the taxane is like lactic acid in the muscle along with joint pain.
Hope this helps and you get some relief from it soon. xx
When you talk about tax ladies do you mean doxetaxal
I believe shingles is painful on its own but coupled wit chemo side effects must be awful x
Thanks ladies…this is the thing. I don’t know if pain is chemo pain (due chemo 4 this Thursday so I thought that pain might have settled) or shingles pain whic yes it very painful, my skin is super sensitive. Do I speak to GP as the gabapentin and Zomorph not helping? I feel like such a wuss. Xx
I would definitely speak to someone if the current pain relief is not working, I personally would want to speak to my oncologist rather than gp and see if your oncology team can prescribe something else.
Luckily I haven’t suffered from any of the muscle or joint pain side effects from tax, and not on the injections so no bone pain either but I think they will put me on the injections for next cycle so I could have the bone pain on its way next round
Still in hospital ? just went out for a walk tho, im getting cabin fever x
I am on doxetaxal but been fortunate tot to have had the pain as one of my side effects .
The chemo issues are bad enough it pain as well must be awful.
Any signs of you going home Kirsty x
Yey my neutrophils have turned their corner and were 0.12 yesterday and 0.24 today! Even though that is still low, they just needed to see they were starting to go back up so they are letting me home xx
Great news Kirsty x
Ah that’s fab news Kirsty! Glad you can go home!
Mamadeacs - I had bad days pelvic and back pain on my first round of treatment. I’m on Docetaxel for 6 rounds. I have found it easier though and I’m on my 4th round tomorrow. I couldn’t take co-codamol as I’m allergic to codeine but I took ibruprofen. It worked ok… but still felt quite painful at times.
I had the results of my midway scan and I have had a complete radiological response which I’m amazed at. Makes this treatment seem more bearable after all! I feel a little bit happier going into round 4 tomorrow!! ?xx
Oh wow Sam that is amazing!! Pleased for you xx