Sam what does complete radiological response mean … does it mean it has disappeared ?? I did try to google it but it just confused me x
Hey Cathsin… to be honest im not 100% sure (seeing oncologist tomorrow!). The nurse read out the info on the phone and I get the impression that nothing can been seen on the MRI anymore. Still need to finish my 3 rounds of chemo and then have surgery as I’m guessing they will need to check for any active cells. I’m pleased though that chemo seems to be doing something though— makes the rubbish days feel worth it! Xx
That sounds great news they said that mine had reduced substantially and can only see a shadow . I wanted to see the results but was in hospital at the time . So will check when I see oncologist on wed . It is a complete buzz when you get some positive news . I feel like it is still all surreal and in automatic fight mode I can see a complete crash happening once I have my operation and possible radiotherapy x
Pleased you’re going home Kirsty. We all spend a lot of time hanging about waiting for something to happen.
When last chemo I shall REALLY celebrate ( when feel up to it!!)
Camilla last chemo is definitely something to celebrate x
I’ve been invited to a pancake event tomorrow. Since everything I eat still tastes of metal, the thought of a metallic pancake does not fill me with excited anticipation. …?
Kirsty, Thats great news you’re going home, a big relief I’m sure. Sam thats excellent new on your scan, like you say makes the suffering worthwhile if the outcome is good.
Camilla I know exactly where your’e coming from with the metallic taste, mine is made worse by the fact I have a metal splint on the whole of my upper teeth. I’ve gone right off chocolate as it’s tastes vile but maybe thats a good thing!!
Definitely try plastic cutlery as it does make a difference. xx
Yes Rabbit, I will, I’ll be in a high chair next.
Hi Kirsty, feeling much better thank you, just a bit achy and tired. Having this week off and going back to work on Monday.
Have you gone back to work today? xx
Just had the pancakes and enjoyed them. Just starting to taste again a week before next chemo. Had thin pc s rolled with mixed berries, lemon and sugar.
Baby-sitting my 5 month old grandson who sadly has a cold. No doubt it will come my way!
Change of scene lovely here in Cwall altho rain and snow showers. Hope spring on the way for us all…
Glad to hear it rabbit. Yeah I went back to work today, seen as I have been feeling totally fine the last few days but was only kept in due to bloods, I did ask the doctor if it was ok before I left yest and she said was fine to go to work. I am resting and having relaxing nights on the couch tho as dont want to over do it and get run down again so will take it very easy the rest of this week
Oh that it great you tasted the pancakes camilla 
we are having pancakes tonight too
Hope everyone else doing ok xx
Quick question ladies - does anyone else experience headaches? During this 3rd cycle of EC Ive had a headache pretty much every other day. Have been take paracetamol (after checking temp OK) and sometimes it relieves it, other times not. Not sure if its tension related but wondered if anyone else gets / or had headache.
Thanks
Joanne
Hi Joanne not had headaches myself although who knows what’s in store for us all . Great respect to all you ladies who are going to work . I am fortunate to be able to work from home which is great as don’t think I would be managing to go into work as do tired . Went to a local support group tonight was really good to get out and they are s lovely group of ladies x
Morning, hope everyone is managing ok ?
Jo, I suffer from headaches too. It was worse when I had the emend. I struggle to drink lots in the days following chemo so that doesn’t help. I was a defiant patient in cycle 3 & only took half the steroids & they were better so I’m sure the steroids don’t help. Stress must contribute too, I’ve just had pre chemo bloods for cycle 4 tomorrow & have a headache already ?
Rabbit, I do hope you’re feeling better? You’ve had such an awful time.
Kirsty, good to hear that you’re home ?
Sam, wow…that’s brilliant news ?? And your scan too cathsin! Fantastic!
Ahh, camilla, how lovely to spend time with your grandson & have a change of scenery.
Moijan, my eyes are sore/stingy where they water all the time. The bottom eyelid on my left eye has a huge bald patch of no eyelashes, it’s quite the look!! ??
I’ve spent the first half of half term in germ infested places with my 10 year old ?
Good luck to everyone in the chair this week, the end is getting a bit closer. Xx
It’s a nice feeling when your on your good (week 3) for me. Meeting friends having lunch and feeling half normal.
Round 4 on Tuesday and then it all begins again.
Xx
Karebear
Yes, Karebear, I feel more or less normal now also with round 4 on Tues.
I change drugs from FEC to pertuzumab, herceptin and docetaxel. Really feeling nervous about tax as have read about horrible side effects.
Whoever said ignorance is bliss was prob right. My husband keeps telling me to stop looking things up.
Cathsin I’ve never had an MRI from diagnosis to now. Great news for you!
Am having 6 rounds FEC100 then radiotherpy the 18 herceptin injections
It’s crazy how everyone is having different regimes isn’t it . Mine is doxetaxtal herceptin pertuzamab and carbaplatin and will stay the same over the six sessions. Although I believe they are reducing my doxetaxal this time. Number 4 session for me on wed . I was at the cancer centre giving blood yesterday and 2 people rang the bell as it was thier last session. Tears were rolling down my face both times I will be a blubbering mess when it’s my turn I can just see it now x
Cathsin well done for giving blood. I’m surprised when going through cancer treatment that that’s possible.
I shall look for the bell on Tues when I’m at my cancer unit - haven’t noticed one…
Hi Camilla sorry I worded it wrong it was blood sample for having my Hickman line put in next Tuesday to check my clotting level