Morning all! How is everyone doing? I had my first dose of Docetaxel and Carboplatin yesterday and I’m currently wide away at 5am after a rubbish sleep due to the large dose of steroids but feeling ok at the minute. When did everyone’s side effects start kicking in? It’s the weirdest feeling just waiting to feel rubbish! Hope everyone who is waiting to start their treatment is feeling ok? I was so so nervous but it wasn’t as scary as I thought, the staff and the patients are so calming and put you at ease as soon as you walk through the door xx
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Hi @hucky345 hope the portacath fitting went ok, felt a bit tight those first few days and then settled down for me.
Good luck for next Weds , will be thinking about you x
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Hi @scaredmum1
1st one down that’s an achievement and means one less to go which is the way I am looking at it. I didn’t suffer with the being awake I am beginning to think I need stronger steroids as I was out like a light 
I know what you mean about waiting for the side effects , mine started really day 2 post treatment- I started on the Tuesday and started with the aches and pains really on the Thursday ( the day after the injection Filgstram - something like that) yesterday was rough on that front but not horrendous hoping things will ease off in the next few days.
I’m sleeping a lot which whilst not surprising is helping a lot- lots of Nanna naps
Hope you get some rest today xx
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Hi mumto2
Portacath done, just local injections, went well, worth doing. Similar experience bit tender but getting better.
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How you feeling? I had my last Flagrastrim for this round today thank F. It got worse for me and by day 6 I was wrecked. My lower back was so achy, plus hips and legs, it was brutal. I called the helpline and they said they usually hear from people on F because it’s so painful 
.
They recommended ibuprofen instead of paracetamol and that WORKED. So if you’re suffering chat to your team and see what suggest. I’ve also been using a huge leg hot water bottle, and plenty of walks, stretching, hydration and protein.
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Hi everyone, quick update from me and hopefully not such a muddled message as the last one (having just reread it!)
Had my first EC cycle on Thursday, was so scared but the nurses were just incredible at calming me and with my husband & sister taking turns to sit with me it all went ok.
I am using Daniel Field products, has anyone else heard of these? Not cheap and may turn out to be a costly gamble who knows.
But to conclude, had a really good sleep and didn’t feel too bad next day. But then after the Pelgraz injection had awful neck and shoulder ache, slight nausea in middle of night kept me awake. Just hoping that I’m managing to keep the side effects at bay for now fingers crossed.
Thinking of you all 
xxx
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Just popping in to say thinking of you all. Keep going, we can do this! 
@hucky345 tension rising as we prepare all the bits and bobs at home and for taking in. All the best for Wednesday, 
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That bloody injection - wowzers I know what you mean , mine seems to have settled a bit today ( god I hope I don’t regret saying that ffs) but I had one large injection rather than several days of them ( bupa was a godsend on this bit) . I’m going to ask them next time about ibruprofen as normally I can’t take but if this carries on I think I would rather up my other meds so I can.
Otherwise I ate too many slices of pizza and felt absolute pants so won’t be doing that again and sorry if tmi but gonna be having dulcolax tonight. No other issues though so counting myself lucky ( well as lucky as you can be having cancer 
)
Hope you continue to improve xx
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hi @suddy2026
Glad you managed to get through your first treatment, I think the nurses are amazing such a vocation to look after people like us - I was blubbing just saying my name at the reception! I felt ok like you until the injection, feedback is paracetamol and ibruprofen if you can have them both and keep it regular as when I didn’t it took longer to get back in control .
Think we are all super brave human beings dealing with all this and still trying to support each other so whilst I would definitely rather not be here ( in the best possible sense) I feel lucky to be amongst such wonderful women.
Take it easy all
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Thanks @mumto2 
blubbing is definitely my default as soon as I walk in there, but nobody seems to bat an eyelid, they’re just gentle and kind which makes me blub even more!
Did you find the injection impacted your sleep? The last couple of nights since injection I’ve struggle to sleep and been awake for a good few hours 
xxx
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Hi @suddy2026
I’ve had restless nights but the paracetamol has allowed me to get some decent sleep, maybe speak to your team and see if you can have ibruprofen too ? Sleep deprivation is the worst so do feel for you .
Keep an eye on your stomach too I’ve had constipation and that’s been rubbish so I’d ease that along ( excuse the pun🤣) sooner rather than later.
Hope your feeling improved soon xx
Hello, I’d like to join this group and make a post, as I start chemo this Wednesday, but I don’t appear to have a button to click on to start a message? I am very new to the Forum and I’m pretty sure it’s me doing something wrong, but I have no idea how to create a post and would reslly appreciate it if you could point me in the right direction?
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Hey Kerry, you posted just fine there and to continue you can reply straight away to someone by clicking ‘reply’ on the right hand side immediately at the bottom of their message. Or if a post or two has squeezed in between before you got a chance to reply, you can direct a comment to someone specifically if you scroll to the bottom of the page and click ‘reply’ there and put @ then the persons username. You can also write to everyone at once using the reply at the bottom of the page, or a mix of the two!
I find when I come on, I either get in via the forum app by receiving an email or a little envelope on my coloured initial on the page or I just click unread messages and chose the post.
I’m not sure if there’s an easier way, but that’s how I do it. 
hope that didn’t confuse you further! 
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@kerryw22,
Hi and welcome, im also starting my chemo tomorrow, you’re not alone, i just want to get goin and start to put an end to the cancer cells having a party in my body. Thinking about you tomorrow, we can do this.
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All the best for tomorrow. First one to tick off the list, go for it girls, you can do this! Katie🌻
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Hi @kerryw22
Welcome to the clan - we may not want to be here but glad we have each other to support and have laughs on the way
Wishing you all the best for your treatment tomorrow, I did my first one last week and whisky I was anxious ( not sure who wouldn’t be) the treatment itself went well. I’ve had a few side effects , aching being the worst as long a I took the painkiller , anstisickness and anything else I needed ( dulculax and difflam mouthwash) it hasn’t been as dreadful as I had imagined in my head . Not saying it was a breeze and everyone’s experience will be different just hoping to give a balanced view.
@hucky345 will be thinking about you tomorrow - big hugs xx
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Hi. Diagnosed with Stage 2 Invasive Breast Cancer. Had lumpectomy in October and have first cycle of EC tomorrow (18 December). Actually tumour fully removed along with 3 lymph nodes that were all clear. Oncologist then recommended Prosigna test which came back as ‘high risk’ so said that I should go ahead with chemo, then radio, followed by Lanzarole. Still not sure this is the right path for me but going to give it a go.
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Daisy11 
for tomorrow I kept a posit up in the kitchen and ticked each round off found it helped make me feel like I was achieving it if that makes sense, just wanted to share, take it a round at a time 
Shi xx
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Thanks Shi. Really wasn’t expecting this as Oncologist originally indicated radiotherapy, including giving me the dates for treatment, and hormone therapy so he just totally turned my world upside down when I went back to see him again.
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Daisy11 do take it a day at a time a treatment at a time your treatment is tailored specifically to you and can change during course of treatments. Many of us ended up having reduced doses of chemo and any of us had chemo plan changed during chemo your teams have seen it all before and tailor treatments specifically to you I thought of chemo like jumping over the grand national hedges and the 6 rounds of chemo I had as the grand national (I was bouncing off the walls on the steroids though) so be prepared for some possibly restless nights but you’ll find people on the forum at all hours everyone here’s got you you could also look into using bcn someone like me option too if that might also help or ringing the number on here and speaking to one of the bcn nurses day at a time and step by step you’ll get through you are stronger than you think you are be kind to yourself because your still you and still amazing Shi xx
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