@emilyxxx Lovely Yorkshire Gods own country! Xx
@sheraldo i feel ok about it I have grown up daughters and they both agree the more information we have the better, so can be screened accordingly etc Iām not really thinking about it until I get the results, like you Iād have freaked out 6 months ago but now take each day as it comes xx
@whataloadof how many rounds of Nab-paclitaxel are you having? I hope youāre doing well?
Iām doing ok. The side effects after infusion are much more manageable for me compared to EC.
@sheraldo 3 rounds every 3 weeks so just 1 more to go. Itās not nice & itās constant pain the first week but compared to the nausea & weakness & inability to eat during EC I agree itās more manageable x
Sore skin and body aches starting to ease now. Just keep on thinking - only one more time that we need to go through this ladies!!!
@emilyxxx In terms of time scale after radiotherapy, Iām going to find out more in a couple of weeks as have appointment with my plastic surgeon so will be asking the question about replacement. Iām hoping that I can also get symmetry surgery for the other one at the same time. My breast surgeon said it would be fine but my plastic surgeon said that they would have to put a ābusiness planā together for it! Itās not my fault Iām going to have one pert boob and one old saggy boob
I will have to wait a little longer anyway as I need to have lymph node clearance on the 6th may first before radiotherapy.
@whataloadof I have been so tired but really glad I got to watch the cheerleading comp yesterday. She has a comp in Amsterdam at the end of May and Iāve been told my surgeon Iām not allowed to fly as too soon after surgery so Iām devastated (and Ā£400 out of pocket for my flight) My husband is going to have to take her on his own. So was glad I forced myself through the pain yesterday to watch her.
Hope everyoneās pain is starting to ease off. I would love a roast dinner but everything tastes so bland I just couldnāt be bothered. So sick of not being able to taste savoury food. Sweet stuff I seem to be okay with but Iām a savoury lady at heart so itās not fair !
@shell86 Iām sure your daughter was chuffed you were watching but that is a devil about your flight being lost to Amsterdam & missing out on that trip-Iām so sorry.
Iāve not had a roast yet either-still eating quite bland-Iām just constantly thirsty but not because of a dry mouth?! Honestly the side effects just keep coming! Glad your aches have eased-mine seem to want to stick around a bit longer & seems weāre keeping funny (not funny-actually awful!) leg pains going. Iām so fixated on the calendar & counting down the days-we will get this done xx
As another who lives in North Yorkshire - have to agree to Yorkshire puddings and it being Godās own country ![]()
@finn1 ah where abouts in North Yorkshire are you? X Iām just outside Filey
@emilyxxx In Great Ayton, just below Rosebery Topping. Love it here, among the hills and moors.
Hi all, sorry Iāve been so quiet my first EC completely wiped me out. I slept for a few days and then ended up getting admitted in hospital at the weekend with raised infection markers and low neutrophils and then again with a temperature and sore throat on Wednesday. Iāve had zero appetite so hoping that comes back soon maybe once my antibiotics finish. Seeing my oncologist on Monday to see if they can change something for next time so itās more manageable as Iāve got three of to go.
Hope youāre all ok. Need to catch up on all your messages xx
Thanks for posting this Iāve been looking at the Younger people together get together after I finish chemo.
Hope your toes are less tingly xx
Definitely worth doing honestly. I learnt a lot. Toes not too bad! Tried a bit of reflexology seems to have helped a bit. X
I was at a support group today and we were talking about me starting EC next week. They advised me to make sure if I feel sick to keep getting them to try me on different anti sickness tablets. Some of the women in my group had to try 4 different types for them to find one that worked for them. They also suggested to just take them for the first 4/5 days to not let the feeling kick in if you get me. Not sure if thatās any help to you at all but itās definitely something I will take on board if I need to.
So sorry to hear you have been suffering so much with EC. I ended up in hospital after my first round of EC in December with neutropenic sepsis. My oncologist gave me a 20% reduction in dose for the remainder of my EC rounds and it made a big different. Hopefully they can do something to help for the next rounds for you. Look after yourself lovely xx
Hello lovelies. Hope youāre all doing as well as can be. I had my PICC flush today and as I was walking back to my car, it suddenly hit meā¦that was my last PICC flush !! So close now xx
However Iām day 11 of my 2nd round of Docetaxol and the sudden onset fatigue today has been horrendous. Itās hit me like a train. I actually fell asleep in my car when I was parked up waiting for the school run this afternoon. My friend saw me and panicked - starting banging on my window. She thought I had passed out. Poor woman ha ha !
Good luck with Onco. Hereās hoping they can reduce the dose a bit to help. Sending love. x
Scaring the school mumās! Iāve been really flat & low energy this week so I hear you on the tiredness. We are so close though so just have to muster one more time. One to go!! X
I had a 20% reduction too so might be an option to explore with your onc. As they said to me-they want to get us through treatment but not so that weāre completely taken down for the whole cycle. I hope youāre feeling a bit better today x