@emilyxxx Hello! Lovely new oncologist. I’m getting the full package of letrozole, abemaclabib & bisphosphates as I knew but it was good to have her say-it’s aggressive but you’re young & fit. I know there could be some tough times ahead (especially after hearing there’s a 24/7 number for abemaclabib!) but there’s almost a 20% uplift from this combo for me so really need to try & get through the treatment.
Did you speak to your team today as well about your appointment? Excited for you for your lovely family holiday-not long to wait! Xx
1 Like
Hi glad appointment went well I’m in same treatment plan, we can do this!! yes I called and am going to start after my holiday appointment is at hospital to get first prescription and discuss side effects and will have bloods every two weeks for first two months then monthly after that xx
First day back at work today eeeek! Anxious doesn’t even come close xx
@emilyxxx Oh best of luck today! Deep breaths xxx
Thank you! It’s the hair, I’d be fine if I’d kept my hair, how’s yours coming along? Mines like a buzz cut all over but at least covers the scalp now probably nearly a can all over xx
@emilyxxx Did you decide to wig it or buzz? normality seems so far away without hair! I wouldn’t quite describe mine as a buzz cut yet-it’s definitely not in any rush! Really good to know we’re on the same treatment from here-we do got this xx
1 Like
Hi just went with the buzz cut hated wigs when I tried them, done my first morning back in the office and it felt amazing, I hugged and laughed lots it was just what I needed xx
And yes we most definitely have got this xxx lots of love
6 Likes
Sorry @emilyxxx, I don’t get notifications when someone replies and I’m just not on here very much.
I had my surgery last Wednesday 27th May. I’ve developed a seroma. It’s a bit uncomfortable. I hope it doesn’t last long!
And today was my first Letrozole. I’m already having hot flushes due to Goserelin. I believe I’ll start Abemaciclib after radiotherapy.
This nightmare never f**king ends!
@sheraldo it doesn’t does it! Your in same meds as me I’ve not started them all yet as delayed Abemaciclib a couple of weeks until I’m back from holiday in July, I’ve been on letrozole about 5/6 weeks and it’s been fine so far apart from aching more so towards the end of the day so fingers crossed it’s kind to you xx
Hope your recovery goes well, good luck with radiotherapy xx
1 Like
I had to go to the hospital yesterday to have a seroma aspirated. 200ml of fluid was removed! No wonder I couldn’t put my arm down by my side!
Have most of us December chemo starters finished the active treatment stage? I know me and @dani_321 are bringing up the rear!
Hopefully not long for you guys! yes I finished on 16/5 and have started my phased return to work it all feels so strange to be getting back to normal life! X
1 Like
I want a bit of time after active treatment before I go back. I want to see how I’m coping with Goserelin, Letrozole and Abemaciclib in my system. I work 12 hour shifts (2 Days, 2 Nights) and they’re taxing enough after 17 years. So I want to make sure I’m fully ready to go back. But I do miss work and my normal life!
Oh gosh definitely don’t rush back to that, I have a desk job and have been allowed to ease back gradually over 3/4 weeks so it’s been ok so far xx