Hi everyone,
I have been a member for a short while now and have taken a lot encouragement and positivity from your posts and replies but haven’t posted myself yet.
I was diagnosed with secondary breast cancer in my liver and a tiny amount on my bones on the 21st April after being sent to A&E by my GP with a pain in my right side. I am on a combination of Palboclicib, Letrozole, Denosumab and Goserelin. I also had my first scan result and there were no changes/further growth, so I was really please and felt things were at least going the right way.
I work in a school and on the day I was due to have my previous round of treatment, we were told that we had to into isolation for 10 days due to a positive case. I had to prospone my treatment for the 10 days too, which although I was was worried about doing the Dr’s were extremely reassuring. I know there will be times when treatment has to delayed due to neutrophil levels.
I went for my treatment yesterday and although I got my injections, there had been a mix up and they didn’t have my palboclicib or letrozole. The pharmacy hadn’t dispensed it and they had closed before I’d even had my appointment. I’m now having to wait till tomorrow to pick it up. In my head I know that 2 more days won’t make a difference but I feel like it’s sent me into a bit of a spiral. I was already at the end of my week off the palboclicib, then had a further 10 days off and now another 2 days and my meds won’t be in sync.
I’m scared this will set me back and the tumours will end up growing, or that this treatment plan will end sooner and they’ll run out of options. It didn’t help that the Sister in charge said that the 2 weeks missed will be added onto the end of my treatment period (like when on chemo), when there is no end just a move onto whatever the next treatment will be.
Sorry for long post, husband has tried to be reassuring but I’m struggling to snap myself out of this funk…usually I’m really positive .
Thank you for reading
Xxx