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Hello Babychops1982

I am sorry to hear you are having such a difficult time at the moment.

Maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

With best wishes, June, moderator

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Hi babychops hang in there, sorry cant give you any advice but since i found this site after being dx 17th May uve been my inspiration your photo looks so happy and your hair looks amazing, you can sort this and come through it uve done it before. You sound like youve a fab realtionship with your husband and i hope he gets to stay so you can support each other. This bloody scary crappy disease (im still waitng to see where its gone in me , know lymph involvement from biopsy) had wle and full anc week today and results at least 13 days or more. Its so strerssful the waiting and thinking the worst but your on the ball and sorting things out very quickly,
Life isnt fair but you can and will do this, have a good night, take care ,thinking of you , julie x

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Hi baby chops,
sorry I don’t know about this drug. Your onc cannot predict the future, how can she say you will die if it comes back in an organ. I don’t have secondaries but there seems to be a lot of people on here who do and who have had success with the treatments now available.
take care x

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Hi babychops,
you are entitled to ask questions at your appointments, hope you are feeling better x

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Hi Babychops, I thinto you should speak to your GP and ask to be referred to another oncologist or another hospital? You don’t have to put up with negativity x
Suzanne x

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So sorry to hear you have been having a horrible time, sending you best wishes from stirling x

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Hi Babychops, sorry you’re having problems. I’ve been taking vinorelbine since March and it can make you very dehydrated. I try to drink 2 to 3 litres of water a day and it does help.
I had a DVT in my leg and have to inject mt stomach every day, another horrible side effect of chemo.
keep battling you’re young be positive, it’s hard but we can do it.
Thinking of you and your family.

maggs

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Babychops this is completely unrelated but there is a bunch of edinburgh bc ladies called the edinburgh breast buddies and we meet up every month for lunch and hugs… We have a facebook group for support to… Please get in touch if you think it would be helpful… Or next lunch is at hamiltons in stock bridge at 1.30 on sat 17th of aug.

Although iv not had a recurrence in the neck i have had bc three times… In both breasts and my chest wall… My first bc was over 7 years ago when i was 37 and i just turned 45 last week.

My onc and surgeon are at the wgh… And although we arent allowed to name names on here i have found them very good… My bs esp is just just fab.

Love Lulu xx

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