Hi ladies. I am looking for advice. I have been told by my max fax consultant that I have onj due to having denosumab. My oncologist has now stopped this as I have to have an operation to have the dead jaw removed.
Basically. I had a tooth out and then they decided to do a jaw biopsy because they thought I had cancer in the jaw this then resulted in onj.
The problem is I am in horrendous pain, both with the trapped nerve and the jaw.
Really I want advice on what people are taking to manage the pain. I am allergic to codene so have been taking shed loads of paracetamol and naproxen. The pain does ease when I have my steroid tablets after chemo but that is only for three days.
Your advice will be a great help xx
Anita
I’m not a fan of denosumab after over 2 years either but a dental x ray showed no problem with onj. .my teeth are in a terrible state, gums sore and I have a swollen tingly left cheek. .but oncologist says it’s important for me to have it monthly for my extensive bony mets .
Reading on another website. .this onj is more common than the 1% they quote …even hospital dentist said yesterday they are being kept busy more with it.
Denosumab interacts with paracetamol and a lot of painkillers and chemos too. Google denosumab interaction and u will get a list of 200 drugs that can cause problems with it.
Hope u feel better soon.
Windflower
You are like me with the worry of it all …I am always trying to read up on more info on this …one article I read said that the first 12 months were the most vital and then quarterly is proven to be enough. My oncologist insists monthly but I had mine yesterday and today I’m more achy and all my teeth seem sensitive !!
I did switch to 6 weekly last year and felt better but it’s back to.monthly now. Also at my hospital it stops after 3 years so December I’m done! !
Hi can you tell me what kefir is?
Hi Windflower my max fax consultant has confirmed that I have onj the inside of my mouth is a mess where they have done the biopsy. I have been on denosumab for over 4 years and I have seen my max fax consultant today who said the only way to stop the pain is to have the operation but they can’t do anything whilst on chemo and my platelets are too low. If I could just stop the pain it would be ok it’s just having to put up with the pain and having chemo is getting me down a bit. My oncologist has said that onj is very rare but I don’t believe that for one minute. I have been told by max fax that if they do the operation they will have to rebuild the jaw using a bone from my leg!!!