after 6.5 years on my first line therapy of tamoxifen, zoladex and ibandronic acid for secondary bone Mets (diagnosed from the outset in 2016), at my review yesterday the consultant is concerned as I have become anaemic but they don’t know why. All iron, b-12 and folate levels are normal.
I was told it ‘may’ be the bone Mets starting to change after so many years on the same drugs. So they want to change my oral ibandronic acid to an injection of Denosumab.
i am nervous of the change especially as it will involve visiting the hospital monthly to start with.
Anyone else on this? How do you find it? Would love to hear some feedback. Thank you.
I have been on it for nearly three years without any problem. I am also on first line treatment - abemaciclib and fulvestrant. For the first 18 months it was every four weeks but then it was reduced to 12 weeks. I go to the hospital for fulvestrant injections every four weeks and I have denosumab at the same time. I don’t have any noticeable side effects from the denosumab and the injection doesn’t hurt at all. just the usual “sharp scratch”. Good luck with it xx
