Hi Debs
Sorry about the weekend. Hope you manage to see more of the sea.
Still in my thoughts and prayers.
Love Crispy
Hi everyone,
Crispy and Magsi keep up the good work.xxx
Ripley I don’t know how you can suffer the cold cap but glad it is working and you still have hair does it make a difference to eyelashes?
Well Mcmillan have just rung to try nd get to see me but it is looking like next Tuesday is the earliest. I am at clinic today blood trans on Thursday and pam/vinerolbine Friday. All I want to do is stay in bed so maybe this busy week is a blessing in disguise. At least I have to get out of bed! I have woken up each morning with a hangover type headache, ucking great as have not has a glass of wine since Friday. Bowels have gone the other way now cannot take any stuff in case I poo myself on long journey to hospital
Well I have said it before this is an ugly stinky disease and I wish they would hurry with a cure.
Hope all of those on treatments are doing o.k. Lesley wishing you well with rads. Sorry I am rubbish at mentioning everyone’s names.
Weather is still good and we have the September festival in St Ives lovely time of year really hope Ian and I get to enjoy some of it.
Love Debsxxx
Its is an ugly stinky b*stard of a disease, there’s no two ways about it! Glad you feel motivated to get up this week, even if it is only for more flippin hospital trips!
Hope you feel better as the week goes on and you find yourself getting up for some good reasons too!
You are always so cheery and dignified, telling it like it is but without a hint of self pity. I have been feeling very sorry for myself the last couple of days and have been an undignified mess! full of self pity, rage and despair. Then there’s you, good old debs, showing us all how it should be done, thank you and keep posting.
Lots of love
Bex xx
Thanks Bex, not sure Dr I met today will agree with dignified think I terrified him!
Hobbled into reception leaning on Ian everyone knows me and one of the nurses came over she could see I was struggling for breath. Didn’t have to wait long before being shown into examination room. The door had been left open and various nurses walking past popped in to say hi. Anew Dr walked past us 3 times and we laughed I knew he was mine. Think I caught him of guard as I said ‘well I don’t have much confidence in you if you couldn’t even find the right room’ bless his little face dropped but he came in and continued with examination. He said 'Brian ’ had told me I am the sort of women that knows what she wants and gets it. Well I still can’t breath and feel weak but was assured that this will improve after blood transfusion on Thursday. I am being booked in for a scan in next few of weeks after 3rd lot of vinerolbine to see if it is doing me any good.
Well that all the news I have in my exiting world(not).
Love Debsxxx
Debs I think you meant exciting not exiting!
Thanks celeste I hope I won’t be exiting for some time yet!
So do I Debs and I’m sure you won’t
Mx
Hi Debs
You’re not exiting if determination has anything to do with it!
L and p Crispy
hi debs,
if i’m right today is a day of rest before you blood trans. tomorrow so hope that it helps with your breathing so that you can enjoy a little of the september festival in the lovely part of the country where you live. by the way i think ian has had a great idea about a support group there seems to be very little out there. i read your posts everyday and so you never far from my thoughts and prayers,
love
lenny
xxxx
Hi everyone,
well I am still feeling ill but at least I look pink and not cancer gray. I went for the transfusion on Thursday as I sat in reception I had my head on Ian shoulder and one of the nurses asked was I struggling Ian said I was and things got moving rather quickly. I was given a bed and bloods done told I had dropped further, was not at all surprised to hear this as I have felt so weak. Plus I am having terrible cramps as I have not been since last Friday. Anyhow after brilliant treatment and care I was able to leave six hours later. On the way out I saw one of my usual chemo nurses she said I looked very pale. I should have gone for pamidronate and chemo on Friday but after long chat decided it would do me any good to have the poo problem on Friday night so I am going in on Monday. But up to now I am full of movicol but still nothing has happened so I think I may have been better of having it done after all.
I just feel so sick and can’t stand these cramp pains.
Love to everyone, weather still beautiful here.
Love Debsxxx
Hi,
Debs I saw your post about poo problems and thought I would let you know how my similar problem went and hope maybe something may be of help to you. I had 8 chemo with the last 4 being double doses of cmf, given on day 1 and repeated on day 8 of each cycle.Cmf gave me the terrible runs including 14 attacks in one day at its worst, which was so painful as it burnt. I basically had the bath ready and sat in it after every attack, just to be able to stop the burn and cope. Similarly to what you have experienced I would dramatically swing between quick drying cement constipation and non-stop go go go!I kept a poo diary to track when the switch over happened. Just before going to blocked up I would start senna tablets and rhubarb is good, etc. The ‘go cake’ recipe is still probably around too. When on the ‘go’ spell even one tiny cherry tomato would make me have pains and problems for 48 hours. In the end for certian days I had to eat no fruit, veg or fibre at all. I also became lactose intolerant for the first days after chemo and realised that cutting out milk helped a lot. The second mouthful of coffee would have me running if not. My diet for a few days was potato (but no skin if a jacket), white bread, ordinary pasta, chicken and any meat but cooked so not much oil, white rice, jelly and no milk in anything. It is a miserable diet but it did really work for me and most importantly gave me back control and time out of the bathroom and thinking poo all the time.Hope any of my waffle may help or give you an idea to try and best wishes to you and all the other ladies on here battling through tough days
Lily x
Thanks Lily at the moment it is worse than labour pains.
Love Debsxxx
Sorry you are still suffering Debs, and hoping the blood transfusion will have a good effect as well as improving the colour of your skin.
Bright x
hi debs ,
hope you get your poo problem sorted out soon, when i had my first op on my back many yrs ago, i din’t go for nearly 3 weeks and i agree it is worse than labour.
all the drugs just seem to either dry everything up or loosen everything up.
hope you get comfortable soon.
reneexx
Hi Debs
Really hope the transfusion kicks in soon and you feel the benefit. 6 hours is a bl**dy long stay at the clinic at the best of times, so I really feel for you having to endure that when low bloods make you feel so weak.
I am going to try and do a poo dance for you to get things going. I am bunged up myself at the mo after Thursday’s chemo (which is unusual as this regime has gone the other way usually), but haven’t got over a week’s worth like you. I must say I don’t like Movicol at all - gives you loads of cramps and urges but not much to show for the pain. If you aren’t drinking enough fluids then Milpar is quite good (although foul). Fingers crossed for a prompt evacuation!
xxx
Hi Debs
So sorry to hear that you have another problem to contend with, this really is a sh@@ty disease (excuse the pun!). I hope your Oncologist or GP can help you out with a solution and painkillers. Hope you are feeling the benefits of the transfusion.
Love
Linda
Oh Debs, as if you haven’t got enough to contend with! Every treatment for something seems to bring with it its own catalogue of problems doesn’t it?
My Macmillan has just recommended movicol for me, she seemed to think this will be the answer…hmm lets see shall we?! Hope it works for you soon, it’ll be such a relief for you and help with that awful nausea.
Thinking of you
Bex xx
Aww Debs me poor bairn. I really feel for you. Yet again I wish I had a magic wand.I hope they can sort you out very soon.I have been so lucky. I just take Senna at bed time the second day after chemo and Im running normal after that. Took a few chemo’s before I worked it out how to keep things moving.
Know we are thinking of you darl. HUGE BIG ((((((( HUGS)))))))) xxx Rita
Hi Debs
hope you have had a result - theres nothing worse and I think makes you feel so awful ( very strong black coffee helps me) but you may not be feeling up to that…I am thinking of you and willing an upturn in your health…( and emotional well being) love jaynex
Hi Debs
i Dont know if you remember me, but you helped me some what, during my mum’s treatment and unfortunately when my mum passed away in April this year!
It absoulutely breaks my heart reading your post, to the point i’m at work choking back tears.
This site is amazing for ladies like yourself, something to let off steam.
I wish like others, that i could do something for you, to take the pain away, like i wanted to so many times for my mum.
It’s bad enough that you have this dreadful disease, but to suffer and become like a prisoner in your home, is nothing more than cruel.
Your husband sounds amazing!
I’m thinking of you and the rest of the ladies on here.
Love Kerry xx