Deterioration of this disease

hi debs,

hope things get sorted in some way or another today… maybe the chemo will do the trick this time, there truly is nothing worse… i suffered terribly this way thru’ chemo… this will be the strangest prayer i’ve ever made! but saying it as i type.

lots of love,

lenny
xxxx

…my post has disappeared - where did it go?

Anyway Debs there are stronger things than movicol - perhaps they can give you something stronger to help.

I agree with Ripley, we could do a poo dance, although I’m not quite sure what MOVEMENTS that would involve.

Seriously tho nothing worse than cramping pain - I hope you can get this sorted soon.

much love

Debs

Not to be trite but have you tried a punnet of strawberries? I always found that when terribly bunged up a strawberry overdose did the trick.

The alternatives e.g. Indian curries, suppositories are too horrid to contemplate. Have a strawberry cream tea for some “gentle” persuasion.

Best wishes
D

…failing that a litre of red wine…

Well it looks like it is poo dance and prayer time. It is truly sh@t or bust time. Went to have my pamidronate and vinerolbine but guess what bloods not good I am nuetrapenic again got the pamidronate and told to go home to bed. They have told me to take sena and movicol not allowed suppositories or any other external help due to danger of infection. Feel like a very unhappy and weak bunny. I just feel sick all the time and I am off my food will try the strawberry tomorrow. Would love to do the litre of red wine but poor Ian may get done for ‘assisted suicide’ my livr can not cope with the odd glass at the moment.
Thank you for all your replies sorry this is all getting very me me me I promise I will give back to you all when I poo!!!
Love Debsxxx

Hi Debs

Hope the unhappy and weak bunny will soon be bouncing around again.

Love and prayers

m x

Doing a poo dance and prayer for you Debs.Sorry you’re having such an awful time of it. I’m not surprised you’re finding it tough. We’re all rooting for you Debs. Really hope tomorrow brings a better day for you. Love and big hugs Anne xxx

dancing with everybody else and hoping you are more comfortable very soon.
Love Nicky

Hi Debs
Im still dancing,any luck yet ? I really hope so I personally know how you feel and its so painfull.
Good Luck Debs

Love and Hugs xx
Jackie

Hi Debs, well it was berry gate its now poo gate, my heart goes out to you, there is nothing worse than that horrible feeling of being unable to go.

fingers crossed for you that there is some motion in your motions today!!!

take care

love

Carol xx

Dear Debs,
We are all gong through this with you…I pray today will be the day!!!
Take care,
Love Janx

Oh Debs, I really feel for you. It’s one more thing you don’t need, isn’t it. I know when I had a my own poo gate saga (last year on taxotere) how poo and the need to poo totally took over my life. I kept telling myself that everything must out eventually, but when it did I actually caused a bit of damage and had to go and see a bum specialist. To cap it all, like you, I couldn’t use any suppositories and had to wait for things to heal naturally (which took ages because I was on Avastin too, which causes slow wound healing).

I was told to drink loads and loads of water - apparently you keep on absorbing water right the way through the digestive tract so you can, hopefully, ease things along. Also, I was told to take six movicol all in one go and I think that was eventually what did the trick - even though it wasn’t pleasant.

Thinking of you lots.

Deirdre

I too had my own poo gate sage - and ended up with bum operation - very very painful, as a result had bidet installed when re-doing bathroom. This is an invaluable piece of kit for all those women who are unable to reach over and put bum in bath.

Debs i hope the poo will come through for you and soon!

Take care - it is miserable I know.

I’m also doing the poo dance. I managed to shoot three huge hard bullets this morning but worried about the danage I my have done…bum certinaly very sore.

Just had our bathroom done. (Focus on big walk in shower with room for stool, other kind… so missed chance for bidet…shit.)

I use movicol and senocot high strength but they are not reiable.

Jane

just to add to the self help list… a mango is the best fruit you can eat to help or keep you going. it has the highest fibre of all fruits… bit pricey i know but it really has worked for me when nothing else did… still dancing and won’t stop till it all happens!

lots of love n prayers and dances,

lenny
xxxx

ps i’m sure we are doing enough dance to cover jane as well x

… as the song says - I’m dancing as fast as I can - for both of you…Jaynex

hi debs

hope things are imroving in the toilet dept. i had some of this trouble when on chemo. the thing that got me going was sweetcorn. my sister who also had trouble found grapes. it is such an awful feeling and that alone can make you feel quite ill. i remember once when like you i had such bad cramps and i couldnt stay on the loo, cos i was going faint and weak. i really hope and pray it sorts out soon. saying that i just thought liquirich allsorts also works for some. god bless x

Hi,
had my first visit from Macmillan nurse yesterday he has changed my tablets so that they don’t bung me up more he has also recommended a poo pill so we will wait and see. Not taken them yet as prescription is not in the chemist yet!
Have been eating strawberry, liquorice, leek and potato soup, plenty going in but as of yet nothing coming out. Getting up in a bit to sit in lounge but I am still very weak if I don’t move think I will get bed sores!
Jane I hope you have managed to go.
Please keep up the poo dance.
Love Debsxxx`

Debs, cant believe we have done all this poo dancing and still no poo, you must be in agony

nice to hear from you, hope the magic pill works

take care

Carol xx

Debs I’ve been dancing for three days now, - I am exhausted, sorry Jane I’ve been dancing less for you as I didn’t know you had the problem.

I know that it must be awful to be full of ****, but my theory is you must be absorbing it into your body somehow. Are you finding that you are less popular that you once were? When you sit down - do you seem to be higher? I am worried about what happens when the dances pills and potions start to work, and to this effect, I think you should start wearing a crash helmet about the house, just in case the propulsion is so great that it might cause you to disappear into the stratosphere or at least through the roof!

I do hope that both of you in th words of Thomas Crapper be able to flush the problem out soon.

much love and very best wishes