Hi Debs, wondering how you are, hope you and Ian are both ok and coping love to you both junielizx
Hi Debs…just want to echo everyone elses good wishes and prayers… thinking of you {{hugs}} Helenx
Hi everyone, Ian is writing this for me. Sorry I have not been on lately but one day seems to blend into the next. I have no energy at all and I when I need to go for a wee I have no strength in my legs so it is a nightmare to walk to the bathroom and then when I have sat down on the loo I can’t push myself back up! I have no energy to talk on the phone and I have double vision so I can’t type. Sorry I cannot be a support to anybody else going through this.
We are lucky that our GP made time to pop in today and then telephoned again late tonight. Ian and the dogs spend the evenings wandering around looking lost, sat downstairs watching telly while I am in a coma sleep. Wish I could have a curry and a beer ! Mind you I did share a burger, chips and beer with Ian on Saturday. It was lovely, I just needed a change from Ensure drinks !
Thank you to everyone sending their love and those praying for me.
Love Debsxxx
Hi Ian and Debs, First Ian thank you for being a typist for Debs and letting us know how you are both doing. I am sorry life is being so hard. It must be very difficult for both of you just now. I wish there was more I could all do for you. If I wasn’t so far away in Edinburgh I would be only too willing to pop over and lend a hand. Life is a bitch at times isn’t it? I was thinking about you both at the weekend wondering how you were. I was away for a few days in our caravan and the site overlooked the ocean and the moon was shining on the sea. It reminded me of my lovely memories of Cornwall. This must be the first time in years that we have not managed down there. It is a favourite place for us and for our 2 girls for many many many years. I have been on chemo since April but heard this week that after this round of pills I will be stopping chemo ( for the moment anyway). I have been dealing with this wretched disease for 20 years now and I think it is so unfair that we have to suffer so much. Love is being sent to you both, from Val XX
Hello Debs and Ian, on a purely practical note, a friend who had WBR had a commode in her bedroom, it was from Social Services. I wonder if a commode might be a real help for you at this moment? You can send it back when you are stronger. I remember my friend mentioning it as she had little ones and they used to want to use it too. There’s also a raised loo seat, universal fit, it’s often given to hip replacement patients, which is when I got mine, it really helped at the time. I’ve been thinking of you both, Debs I hope you get some strength back very soon.
And I hope the treatment has worked well, I have seen how exhausting this treatment is with friends. Some of them felt they must have slept for weeks…they came through it, it took a while but they did start to feel better.
Take Care, with Love, Belinda…x
Really glad to see you posting, Debs (or Ian on your behalf - thanks Ian!)but so wish the news was better and things were easier for you. And of course you shouldn’t be worrying about and apologising for not being able to offer support to others at the moment - isn’t that typically you, though?!
I continue to think of you very very frequently - and to hope for some improvement very soon.
Much love Kay xx
Debs and Ian, just to let you know you are in my thoughts and Ill never take eating a curry for granted again!!!
sorry to hear you are having such a hard time, sending you a big hug (XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX)
love
Carol xx
Sorry to hear you are feeling so rotten and washed out, Debs.
Hope this is your low point and you start to feel better soon.
Take care - thinking of you.
X
S
So sorry to read that the treatment is being so tough on you and that you are feeling so unwell. Sending you hugs - and hope all the sleep will help you to rebuild some strength.
Victoria xx
Hi Debs, so sorry the treatment is taking such a toll on you and am praying that you will be feeling much stronger soon and able to take on a curry and a beer again.
Referring back to what Belinda has said, we’ve just had a load of aids arranged via Social Services for my mum who has mobility problems - they came virtually the same day, a commode, raised loo seat, grab rails etc - so it may be worth looking into if only for the short-term.
Please don’t apologise for not being here to support others - we’re all here to support you at the moment through this horrible time.
Lots of love
Lesley xx
Hi Debs
I don’t think I’ve posted on this thread before, but just wanted to say I’m SOOO sorry for all you and Ian are going through at the moment and that I’m thinking of you. There really isn’t anything else I can usefully say, but I hope the treatment isn’t too debilitating, take it easy on yourself during the lowest moments.
Best wishes.
Alison x
Hi Debs and Ian, just wanted to say how grateful I am that you have posted to let us know how things are with you, but so wish you had more energy, (having had radiotherapy last month I am well aware of how it zaps your energy for a short time). I hope things improve for you very soon. You are in my prayers and I will light a candle for you in church on Saturday.
Love
Linda
x
hi debs and ian,
just been catching up on things having been away and wanted to say you are never far from my thoughts and prayers. i do wish life would treat you both kinder and you could know some rest from all your symptoms. don’t forget how special you both are, your love for each other is an inspiration and i thank you for sharing with us so honestly (thanks ian for being the typist). maybe we should start a dance to give you more energy debs…
with lots of love,
lenny,
xxxx
Hi Debs
Just sending love and prayers your way, and a few growls about how horrible it is for you…(grrrrrr)
big love
Jacquie xx
Hi Debs, So sorry to hear you are feeling so tired and rotton. You have helped me so much with your posts in the past. Now it is time for others to support you and I can see that many on here are doing so. I can only imagine how it is for you.
love to you and Ian
Rachy xx
Hi Debs
Not posted on this thread before but have come across you in others.
SO sorry you are feeling so rotten and hope you feel stronger soon. Thoughts, prayers and love to you and yours.
Love Mel xx
Hi Debs just want to say that you and Ian are always in my prayers.I hope you managed to assemble a little 'bean library’before total wipeout engulfed you.Debs I am so very sorry that you[or anyone] has to go through this.
Love,Val xxxxx
Hi Debs and Ian
I’ve not been on here much recently but just wanted to add my thoughts for you both and hope that the rotten way you feel at the moment, Debs, will soon be far behind you. Wishing you all the best from your treatment and that you are soon up to another pint and curry - atta girl 
On second thoughts make sure the legs are working first - wouldn’t want to get caught out with that combination and not able to get to the loo!
Nicky xx
hello Debs and Ian, just wanted to add to the love and support for you both. Also to mention - you no doubt know, but just in case - that as well as equipment, Social services have to offer assessments of need for both you, Debs, and to Ian, as your carer, in his own right. There may just be an element of support on offer that you hadn’t thought you could access.
think of you often, as so many of us do
Monica xx
Hi Debs and Ian
Just to let you know that I am thinking of you as well.
Much love and strength
Dilys